posted
Has anyone had this problem? It's not the constant dizziness I always feel, but weird waves. Like my brain is doing somersaults. When I am just sitting...not when standing up. Kind of disturbing.
Susan
Posts: 92 | From Shepherdstown, WV | Registered: Jan 2006
| IP: Logged |
posted
No, no jerks....that sounds uncomfortable! And it has a name....myoclonus. Is it from the Lyme?
Posts: 92 | From Shepherdstown, WV | Registered: Jan 2006
| IP: Logged |
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I had wierd waves like you describe before i knew i had lyme. I would be watching TV or driving and they would just happen. It was a scary feeling that landed me in the ER a few times.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i was hospitalized for 5 days in october with this-i described it just like you-intermitten -i think i said "whoooshes " of dizzines. my primary(non-llmd) and neurologist want me to take zoloft for this. i'm holding off. as time goes by it seems to get a little better-and i have a lot of other stuff going on: moving, abdom surgery, etc. if i start zoloft i want to be real clear what it does to me-so i am waiting til i'm back on all my regular meds and off the surgery pain pills. but i'm already getting a lot bertter(2 months)...and i really don't think i want to go on zoloft.
my dizziness seemed to start when i took ibuprofern, tylanol and skelactin all in the same day. plus a beer(stupid me-i hardly ever drink anthing)-but i had been walking on a fractured pelvis for over a week-it wasn't dx-and the pain just got to me. i woke up the next day and couldn't even crawl to the bathroom on my hands and knees --i had to go on my belly-and after 12 hrs of that went to er and was admitted for 5 days-the dizziness got a little better to the way you describe it. i don't remember this being a symptom before---but i guess it sure is now
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
Well, it's good to know I'm not alone. I figured this must just be a new symptom, bit it is a little troublesome....or worrisome.
Posts: 92 | From Shepherdstown, WV | Registered: Jan 2006
| IP: Logged |
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Yep. I've had those on and off for about 18 years...am going through another bout of them and this time they have been scarier than ever..momentarily I think I am going to pass out, but I don't, and sometime I get a palpitation with it also which makes it worse.
Another one of those weird symptoms.
DLL
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
| IP: Logged |
posted
I have had vertigo as my major lyme symptom for three years. I think it is a combo of both lyme and babesia. The lyme attacks the cranial nerve that controls your inner ear which is your balance mechanism.
It is a murderous manifestation of lyme and has taken me to the brink of insanity. I bounce off walls, furniture and sometimes just fall down. Not to mention how exhausting it is to be constantly moving like a kid on a merrygoround, up and down, up and down every minute of the day.
Lyme sucks! Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
| IP: Logged |
posted
Yep, I get those too... It almost feels as if I'm going into another dimension, and I haven't even taken any recreational drugs to go there!!! Luckily it only happens for a few seconds at a time.
Posts: 229 | From United Kingdom | Registered: Jul 2005
| IP: Logged |
posted
Yes, I would get this horrible scary feeling of almost wanting to pass out but never really hit the floor.
It was a strong wave that would last for about 5 seconds but enough to make you crazy. I kept thinking I was having a stroke at age 29 or perhaps low sugar levels.
I would get a numb face, my hearing was bizzare (faint buzzing), It was a head rush from hell!!!!!
Before I was diagnosed with Lyme I thought I was loosing my mind. Every 30 minutes I would jump up from bed. I thought I was going to die. I would look around the room after this would hit me and I felt like I drank a 12 martinis and took drugs.
Your not alone.......Keep taking your meds. The antibiotics did eventually help a little with some of those horrific symptoms.
Good luck and best of health!!!!
Posts: 17 | From MACEDONIA, OHIO | Registered: Jan 2005
| IP: Logged |
posted
I have these too! And realized yesterday while I thought it was my brain whooshing, it really exacerbates it when I move my eyes to one side or up/down. Then the whoosh seems to go from my ears to my head Posts: 867 | From PA | Registered: Jan 2006
| IP: Logged |
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
I had some minor dizziness last week. I thought I had ear infection and called LLMD. Advice was that I was probably herxing. Take break from abx.
posted
Yeah, I haven't been driving much for years...too tired and dizzy. Thanks for all the replies!!
Posts: 92 | From Shepherdstown, WV | Registered: Jan 2006
| IP: Logged |
posted
A few times I have had a feeling inside my brain like my brain flipped over.
Have had other times where I end up shaking my head voluntarily several times to get rid of the uncomfortable feeling from the brain. I felt like I was going to lose it with the jerking movements inside the brain.
Posts: 66 | From BC Canada | Registered: Jan 2005
| IP: Logged |
quote:Originally posted by lymesly: Has anyone had this problem? It's not the constant dizziness I always feel, but weird waves. Like my brain is doing somersaults. When I am just sitting...not when standing up. Kind of disturbing.
Susan
Yep,.... in my experience, this is from babs. Hated it intensely. All gone now!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
Wow. I was just trying to explain this to my husband recently! I get this, too, and you explained it so well.
I have it really bad right now as I type this. Upping my Neurontin is making it worse.
I feel quite drunk!
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
| IP: Logged |
1: Acta Otolaryngol. 1988 Jul-Aug;106(1-2):111-6. Related Articles, Links
Borrelia infection and vertigo.
Rosenhall U, Hanner P, Kaijser B.
Department of Audiology, Sahlgrenska Sjukhuset, Goteborg, Sweden.
73 patients with vertigo were studied regarding serum antibodies to Borrelia spirochete antigen, using an indirect immunofluorescence method. Ten patients (14%) had serological evidence of Borrelia infection. All 10 patients had severe, incapacitating vertigo. Four of the Borrelia patients had positional vertigo and all 10 had positional nystagmus when tested using ENG. Five of them had unilateral caloric weakness. Five patients had abnormal oculomotor tests. Borrelia infection is an etiological factor which should be considered in patients suffering from vertigo especially if positional nystagmus is present.
PMID: 3421091 [PubMed - indexed for MEDLINE]
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
| IP: Logged |
posted
I call them vertigo flashes........ these sudden 'whooshes' of dizziness started a few years ago for me and at first were very severe but gradually diminished in intensity.
They recently re-appeared, sometimes quite violent and scary, when I started antibiotics for chlamydia pneumoniae, maybe the brain inflammation is being aggravated by die-off.
Last night I was twice startled awake by a loud BANG!! in my head, no pain or dizziness but a loud echoing explosion, a new brain inflammation symptom??
Posts: 51 | From England | Registered: Oct 2005
| IP: Logged |
posted
I have had the loud bang symptom too! Sometimes it is like someone has dropped a book on the floor right by my bed and once it sounded like someone shouting BOO right in my ear.
I think someone should make a horror movie out of what we deal with in our brains!
And yes, I have had the whooshes, rushes, and major vertigo issues for a while.
Thanks Lymetoo for letting us know that it goes away with treatment. That is the piece of info we all live for.
Posts: 460 | From Illinois | Registered: Aug 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[loco]](graemlins/loco.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic