Do you treat until all symptoms are gone? Or do you treat for 8 weeks and hope symptoms will go away?
Posted by concerned mother (Member # 8128) on :
My sons doctor says you treat until you are two months symptoms free. I think that is how llmd's feel and not regular doctors.
Posted by Corgilla (Member # 4066) on :
Hi,
What I see most from LLMD's is to treat until the patient is symptom free for 2 months.
If I had done the 8 weeks of treatment like my first doctor suggested, I would probably be dead right now. Instead, after 2+ years treatment, I started getting better and continue to do so.
Hope this helps,
Corgilla
Posted by firecop1066 (Member # 6920) on :
I agree with Corgilla,
I sent you a PM just before reading this thread...My LLMD also says at least 2 months symtoms free....
and DONT forget any coinfections that may be impeding your getting better (wow so not worded well LOL)....JILL
Posted by BostonLyme2005 (Member # 7680) on :
Well now,
I had Doxy for six weeks, 100 mg's 3 x a day, felt much better....
Guess What?
18 months later, finally on the correct treatment....
High doses, long time, I would say is the way to go.....
Posted by coach (Member # 7539) on :
I did 3 months of Ketek, then 8 weeks of IV Rocephin with oral Zithromax. Then the LLMD said treatment is ending and you should get better. I have at least 3 symptoms that haven't gotten better.
Posted by firecop1066 (Member # 6920) on :
coach, what are your 3 remaining symptoms, maybe they are co-infection related and need a different treatment? Jill
Posted by coach (Member # 7539) on :
slurred speech, swallowing problems and weakness in ankle.
Posted by Michelle M (Member # 7200) on :
quote:Originally posted by coach: I did 3 months of Ketek, then 8 weeks of IV Rocephin with oral Zithromax. Then the LLMD said treatment is ending and you should get better. I have at least 3 symptoms that haven't gotten better.
Five months' total treatment? And that's it? I would hate to think of the shape I was STILL IN at five months' treatment. I bet lots of us on here could say the same thing.
I know this guy is an ILADS doc 'cause you already said so but again, I repeat... FIND A NEW DOC! To cut you loose after such a short period of treatmen, with these lingering symptoms that indicate ongoing infection, with NO follow-up after IV, is MIGHTY WEIRD!!
Michelle
Posted by hopeful123 (Member # 3244) on :
i totally agree with michelle. you need more treatment. maybe a different llmd?
Posted by humanbeing (Member # 8572) on :
I have copied this alot today, but go to link below for full article...
"In general, we have informed patients that therapy may extend for two or three years before they may reach an asymptomatic state."
![[group hug]](graemlins/grouphug.gif)