posted
Do you treat until all symptoms are gone? Or do you treat for 8 weeks and hope symptoms will go away?
Posts: 146 | From New Jersey | Registered: Jun 2005
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What I see most from LLMD's is to treat until the patient is symptom free for 2 months.
If I had done the 8 weeks of treatment like my first doctor suggested, I would probably be dead right now. Instead, after 2+ years treatment, I started getting better and continue to do so.
Hope this helps,
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
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I sent you a PM just before reading this thread...My LLMD also says at least 2 months symtoms free....
and DONT forget any coinfections that may be impeding your getting better (wow so not worded well LOL)....JILL
Posts: 83 | From Northern Illinois | Registered: Feb 2005
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BostonLyme2005
Unregistered
posted
Well now,
I had Doxy for six weeks, 100 mg's 3 x a day, felt much better....
Guess What?
18 months later, finally on the correct treatment....
High doses, long time, I would say is the way to go.....
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posted
I did 3 months of Ketek, then 8 weeks of IV Rocephin with oral Zithromax. Then the LLMD said treatment is ending and you should get better. I have at least 3 symptoms that haven't gotten better.
Posts: 146 | From New Jersey | Registered: Jun 2005
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posted
coach, what are your 3 remaining symptoms, maybe they are co-infection related and need a different treatment? Jill
Posts: 83 | From Northern Illinois | Registered: Feb 2005
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posted
slurred speech, swallowing problems and weakness in ankle.
Posts: 146 | From New Jersey | Registered: Jun 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by coach: I did 3 months of Ketek, then 8 weeks of IV Rocephin with oral Zithromax. Then the LLMD said treatment is ending and you should get better. I have at least 3 symptoms that haven't gotten better.
Five months' total treatment? And that's it? I would hate to think of the shape I was STILL IN at five months' treatment. I bet lots of us on here could say the same thing.
I know this guy is an ILADS doc 'cause you already said so but again, I repeat... FIND A NEW DOC! To cut you loose after such a short period of treatmen, with these lingering symptoms that indicate ongoing infection, with NO follow-up after IV, is MIGHTY WEIRD!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
i totally agree with michelle. you need more treatment. maybe a different llmd?
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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