i just dont have any other explanation of why the burning is back again. things had really calmed down........i thought i was healing.....and now i burn.
my western blot even by igenex is worthless....
even when i stick to the diet i get this....i went off of it and i got it too........
i wish they could just disect me an d figure out what is wrong.
Ive been out of it all day....breathing problems, which i think is yeast symptoms....thirst, constant thirst.
i had green tea and the burning started after that, although i think it was building all day.
Posted by bettex99 (Member # 8109) on :
burning where? Skin? or inside. Sometimes when I get yeasty I burn like I am being microwaved from the inside out. Lyme does it too but yeast makes it worse. I feel for you, been there, there now.
Posted by cantgiveupyet (Member # 8165) on :
it started when i urinated during the last bit of stream the afterwards continued to burn and burn ........and now well im burning in that whole area....the urethra i think, its so hard to tell.
my pelvic muscles are tight. Im crying more.
I thought i was past this i really thought i was getting better.
i feel like im having swallowing problems too.
how can you tell a herx from yeast? i had these symptoms without abx.
I feel like im being microwaved.... Posted by cantgiveupyet (Member # 8165) on :
dup
Posted by Lymetoo (Member # 743) on :
Hey can't....check your PM. Remember caffeine will always make IC worse.
Posted by Foggy (Member # 1584) on :
Did your urologist mention Elmiron? It really helped put my IC into remission.
Posted by cantgiveupyet (Member # 8165) on :
Foggy- no not yet i was put on urisit-K.....but could only take 2 of those it caused me more pain.
I have an appt next week and i will ask about it.
For now azo seems to be helping a little bit.
Posted by Neil M Martin (Member # 2357) on :
Had the same terrible burning.
Low sugar cran juice, oral antibiotics and aloe vera did not fix until I took Pure Encapsulations Cranberry NS concentrated extract capsules (500 mg) two a day w/ plenty of water.
Avoid baths. Shower instead. If you go underwater urinate immediately afterwards. I hope this helps.
Posted by jbgoth (Member # 5567) on :
Some of the things which gave me some relief were (dont laugh), putting vaseline, olive or coconut oil down there. It soothed my skin. When i had the burning after urination, i would take a quick little shower to clean off down there and it would also help the irritation. Also, Natren makes something called Gynatren. Basically, its just probiotics you put inside the vagina. I REALLY got help from that.
I would stay away from cranberry. I drank that once and it killed my bladder. I dont know if pills would be safe or not.
Hang in there,
Jordan
Posted by cantgiveupyet (Member # 8165) on :
i will never take anything cranberry again...it killed my bladder.
i think what happend is I didnt eat lunch yesterday because i was feeling sick..
si didnt have much in my system so the combo of the chocolate..vinegar chips and green tea...iritated me. didnt eat them all at once.
right now its the only explanation i have. this happend 2 other times with chocolate the 2nd day i ate it i flared up...but the first day i was ok.
my ph is 6.5 but i guess that is enough to cause the burning to the other areas.
Ive tried crisco before, i forgot about that last nite....and vitamin E works well too.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by cantgiveupyet: i will never take anything cranberry again...it killed my bladder.
i think what happend is I didnt eat lunch yesterday because i was feeling sick..
si didnt have much in my system so the combo of the chocolate..vinegar chips and green tea...iritated me. [/qb]
You're probably right: The not eating, combined with the foods you did eat is probably what put you over the edge.
Be sure to drink LOTS of water too!!! That always helped me a little bit, at least! It dilutes the acid in the bladder [or whatever components are causing the pain.]
Hang in there! Posted by jbgoth (Member # 5567) on :
I would stay away from vinegar and also chocolate. Both are very bad things to have if you are fighting yeast.
Jordan
Posted by WildCondor (Member # 434) on :
Is the burning like facial flushing sunburn? Babesia treatment killed my burning hell.
Posted by cantgiveupyet (Member # 8165) on :
yes, but in the bladder area. Just like a sunburn...like when you get it on your hands that stinging feeling. what did you use for Babs?
Posted by suki444 (Member # 4261) on :
We generally use Trimethoprim here for bladder infections. The infection sounds as if it is in your urethra too..if there is any change in odour (even like strong urine odour) then there is possibly bugs are colonising in the urethra and the skin outside...a specialist in London uses Polytim or Gentacin antibiotic eye ointment to put on here to kill the bugs on the perianum.
The book by Angela Kilmartin called 'The Patient's Encyclopaedia of Urinary Tract Infection, Sexual Cystitis and Interstitial Cystitis (Paperback)' on amazon helped me a lot.
Yeast can exacerbate cystisis and so can caffeine and other foods. Scrupulous hygiene is a huge issue, see Angela's book.
If it is not cystisis but burnign skin and breathing difficulties then Babesia could be the culprit. Mepron x 2 daily, Clarithromycin 500mg x 2 daily and Artemesia OR Artemesinin is the standard regimen for 5 months minimum.
hope you get this sorted out Emma
Posted by ebrischoux (Member # 7281) on :
Cantgiveup-Here is anothre thought....My son is having the exact same problems as you are....Currently scheduled for an Ultrasound of kidneys and Cystscopy of bladder....
We just started giving him Questran a week ago as he cannot eliminate toxins on his own it seems and the urinary issues have gotten much better...Still there but much better.
I remember a post during search of Questran on this board where someone had IC cleared up after starting Questran....
Maybe it would be worth a try with you too....I had tried D-Mannose for two months (maybe not long enough) and the problem never got an ounce better....Eileen
Posted by NP40 (Member # 6711) on :
We've tried various things for yeast. Threelac, extra virgin coconut oil, freeze-dried garlic, etc. All had some beneficial effects.
Posted by suki444 (Member # 4261) on :
Hi
There are nasty bugs that can live in the urinary tract and can only be found by sensitive tests..mycoplasma genitalium, enterococcus etc. etc.
I'd get a culture for these first along with antibiotic sensitivity...there is a lab in America that does it but I forget the name...one of the IC groups could point you in the right direction.
Angela Kilmartin's book has details of all the kinds of infections you can get.
Questran could help if it is a toxicity issue, but depends on what is causing your particular case...everyone is different. I think us Lymies get opportunistic bugs that other people don't have a problem with.
Emma
Posted by suki444 (Member # 4261) on :
P.S.
Matia Britzman's from BOMAMED herbs work but I cannot take them as I am on so many antibiotics and I am pretty sure there is Artemsia in them so that is out for me.
Trimethoprim helped me most, I had enterococcus in the bladder.
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