I've been on Flagyl exclusively for the last month. Worked myself from 250mg to 750mg during the first week.
Had some breaks from pain during the first couple of weeks.
Now I must be having a herx from hell for the last ten days. I can scarcely drag myself to the bathroom from my bed (a short distance). I'm sleeping about an hour at a time because I have to get up to pee every hour. I do best just lying in bed (where I have spent most of the last 4 weeks anyway), but I get stiff and have pain when I get up.
I see my doctor in a week.
Anyone else experience this on Flagyl?
Posted by iceskater (Member # 8655) on :
Ditto. Had to stop Flagyl for 2 days to have parents drive me out of state to the neuroopthamologist( two weeks ago) Back on, but had to stop yesterday, for pain- see my MD Tuesday- up out of bed today... hooorah. Stay strong!
Posted by Jillybean (Member # 8071) on :
I've been on 1500mg Flagly daily for 7 weeks, along with IV rocephin. I herxed for 2 days after the first 2 weeks, nothing since....just little, tolerable stuff.
I have experienced more joint pain, muscle weakness, and more peeing (and tons of diarrhea). I see the LLMD on Monday.
Hang in there, Jill
Posted by Areneli (Member # 6740) on :
I know the pain. Eventually, slowly, I have reached dose 2200 mg daily. I am still sick, though.
Posted by Lymetoo (Member # 743) on :
You've probably hit your 3-5 wk cycle. [you did start the flagyl 4 wks ago] OUCH! I hope your LLMD advocates backing off the meds when the herx becomes too severe.
Posted by liz28 (Member # 4946) on :
Yes, it's normal.
Posted by Lymetoo (Member # 743) on :
How are you doing, Monica?
Posted by firecop1066 (Member # 6920) on :
Flagyl Expierience, I thought I would die the first week on 750, neuropathies, hypersensitivities, stomach issues, absolute insomnia.....
came off for a week ad went back on...No problems except for diarreha and sleep issues...everything else I do IV (rocehpin and clindy)....is stonach problems an issue for flagyl?
Taking a break by the way was the best thing i could have done...that herx was miserable...Jill
Posted by AZURE WISH (Member # 804) on :
Herxing was terrible on flagyl for me.... but it did help quite a bit.
I had a three month herx on flagyl... but when it was over I felt signifigantly better.
Best wishes Posted by Monica (Member # 224) on :
If I was still trying to work I would not be able to do that with this herxx, but since I am on disability I don't have to worry about getting to the office.
Asked my son to get me my acidopholous this a.m. and then I burst into tears because I perceived his reaction as being impatient.
As I said to him, I don't want to have to ask other people to do everything for me. It is emotionally painful.
Azure had a 3 month herx and then improvement.
For those who have had success, how long did it take?
I had no improvement last year on Ketek, plaquenil and Doryx and I say that because the little steps forward that I took were erased.
Posted by HEATHERKISS (Member # 6789) on :
![[Smile]](smile.gif)