I know this may be a delicate subject for people to share.
I think over the years the lyme may be slowing down my system.
Am off on a stomach holiday from abx & was hoping it would improve.
I have tryed Senna tea: Senna tabs stoolsoftners phisillium caps & powder extra C & mag herbal caps like : "colon clense" liquid mag citrate eating lots of fiber.
Nothing is making a difference except the liqiud mag citrate-1/2 bottle. Not sure this is safe on a daily basis.
Anyone have any sugestions?
I have been in the search department and haven't found anything that I haven't tryed.
Thanks for any suggestion you might want to share. Posted by Lymetoo (Member # 743) on :
I have the same problem. It could be Lyme, but it could also be exacerbated by some of your medications. I take trazodone, and I know it is constipating. [darn!]
I would suggest doing an actual colon cleanse. After being on so many antibiotics for so many years, my chiropractor told me that I probably have a "lining" in my intestinal tract that prevents nutrients from being absorbed.
Only a cleanse or colonic will get that out! I seem to be making progress with the cleanse I'm doing now. Have even seen some parasites....don't want those!
Some cleanses can be constipating also, believe it or not!!! I'm using the cleanse from www.drnatura.com right now. It's much easier to comply with than the one my chiro sold me.
I'm not having any trouble with constipation on this cleanse.
I also take Multi-Fiber by Nature's Secret. You can check the ingredients and great price at www.vitacost.com
I'm counting on getting things straigtened out and no longer having to worry about constipation! That would be quite the victory!
PS....I've taken everything you listed and still take several of those myself.
Posted by HEATHERKISS (Member # 6789) on :
I've been resorting to a nice strong cup of coffee.
Posted by 5dana8 (Member # 7935) on :
Thanks Lymetoo
for the great tips.
One question: does the colon clense you are on from drnatura make you loss any weigt?
I have wanted to do a colon clense but am afraid of lossing more weight.
I will order the multi fiber you listed. Can't see any ingredients that could hurt.
Thanks heatherkiss for the coffee suggestion. I would like to not depend on the coffee too much as caffine can back fires on me.
I think it is a combination of my meds and years of abx and herxing but also feel the lyme can make the intestines sluggish.
In my years in remmision I did notice that this problem wasn't as bad.
Take care dana
Posted by iceskater (Member # 8655) on :
in the spirit of our friendship and laughs. A stick of dynamite. I am so constipated from lyme, meds and everything: I am going to wake up one morning my blue eyes will be brown!
On a serious note: maybe some of the colonics other people are recommending may help. I am going to try coffee enemas now. Perhaps ther are some other links on the board too.
I'd watch the mag citrate- don't need to get electrolytes out of whack on top of everything else.
Stay strong my friend!
Posted by 5dana8 (Member # 7935) on :
Hey iceskater
hello my freind.
You are bravor than me about the coffee enema's
I am chicken when it comes to putting any thing in coming, in the in the exit ramp.
I need an icon for a big chicken Thanks & take care dana
Posted by BorreliaBrain (Member # 7603) on :
unfortunately, IBS w/ constipation is just one of my worst Lyme symptoms - dunno, but i hear these bugs like to colonize the gut.
i did a lot of research and hit upon this stuff called "Lactulose" - its a kind of synthetic sugar.
all i read about lactulose kinda made it seem really good to me: allegedly, it helps change the pH in the gut for the better (helps acidify gut) - it is known to encourage fermentation of bifidobacteria and other good gut bacteria, so its kind of a prebiotic - it supposedly helps scavenge and and reduce extra ammonia in the body - and on top of all that - it increases bowel movements by pulling more water into the GI tract....
its does have a drawback - it can make you have a lot more gas as things in there ferment it... oh well.
its by prescription, usually called "Krystalose" so i got my doc to give it to me and have been very pleased with it - its probably placebo but i swear it makes me feel better - and it does do what its supposed to in the "going" department, very gently though - no cramps or anything.
I would def. recommend giving lactulose a "go" if nothing else is working.
oh - and it tastes very pleasant, which is a plus.
good luck!
BB
Posted by Kerryblue (Member # 4077) on :
Hi, Know what you are saying.
Unless someone knows how much it takes out of you. After 7 days have to get out the gloves
I almost hate to go, knowing the hrs. I am facing, BTW, that is when my temp drops really low, the sweats. Think 1 time even passed out finding my self on bath fl.
Having med background I know how to go in get the impactions, still NOT fun.
I have upped my probiotics,magnesium tabs.
Less often but I feel for you. Heck how could I work outside home, imagine 3 hrs. of potty time. Do not think that would fly,lol
heck, if it is not thing is another
I have literally had toilet block up many a time + numerous other. Prior meds. nor on lyme treatment. None around,arghh.//
Know of 1 in Fl. He will treat if you tell him what you know & want he is not on my plan. Heard many pro`s con`s
Have no idea what I am talking about, no sleep. hitting me know... Crashing big time sorry, mind **** down too. Chat latter Kerry
I do truly feel for you, know one knows how 1 can pass a bowling ball,lol
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by 5dana8: One question: does the colon clense you are on from drnatura make you loss any weigt?
[/QB]
No, but I could stand to lose a few pounds....only a few. I doubt it will do that to you.
Posted by Lymetoo (Member # 743) on :
Kerry....Me thinks you need to address this problem with a good cleanse or some of that Multi-Fiber I mentioned....sure helps. No wonder you're still very ill!
Posted by duramater (Member # 6480) on :
my doc suggested a shot glass worth of aloe vera juice after each meal. sure enough, after about a week of this, i was much improved.
btw, aloe vera juice is "an acquired taste." i add a shot of white grape juice, some water for dilution, and just chug the thing so i don't taste anything.
i use Nature's Way organic aloe vera juice & gel. refridgerate it after opening.
Posted by Lymetoo (Member # 743) on :
Yes, aloe has helped me in the past. Hard to tolerate the taste as you said.
Posted by AZURE WISH (Member # 804) on :
I tried everything....
surfack, senecot, lactalose, fiber..... all at the same time...
nothing worked ...
I had to go to the gastro dr.
he put me on zelnorm and now I am fine.
( from what I was told zelnorm makes your intenstines spasm more to push things along)
If you are on pain meds, it can make the problem worse.
Best wishes Posted by tickitout (Member # 6982) on :
quote:Originally posted by AZURE WISH: I tried everything....
surfack, senecot, lactalose, fiber..... all at the same time...
nothing worked ...
I had to go to the gastro dr.
he put me on zelnorm and now I am fine.
( from what I was told zelnorm makes your intenstines spasm more to push things along)
If you are on pain meds, it can make the problem worse.
Best wishes
Hi Azure..you seemed to be successful with Zelnorm and I am happy for you.
I just wonder if you got diarrhea from it. I am at lost of what to try and my dr. gave me something else to try before Zelnorm. I am having many problems and feel so sick and bloated.
My concern is if it is harsh reacting my spinter muscle does not work very well and know I would definitely be home for the long haul. I don't need loose stools in the least, yuck!!
I am in situation I don't know what to. Any answer would be great from your experience ffrom zelnorm..Thank you.
Posted by AZURE WISH (Member # 804) on :
I got diarreahea like the 1st or 2nd day I took t.... It only lasted that one day though...
Since then I have been fine....
I have been on it since the summer of 05.
I take two a day but if your problem isnt as bad your dr. may only prescribe it once a day.
Best Wishes Posted by Lymetoo (Member # 743) on :
quote:Originally posted by tickitout: I am having many problems and feel so sick and bloated.
[/QB]
Yeast??
Posted by 5dana8 (Member # 7935) on :
Azure wish
Not sure I want to start on another prescription right now, but thanks for the suggestion.
Funny thing. I rifed 2 days ago on lyme frequencys and got instant relief.
Don't know if this is a coincidence or not.
I am going to try the multi- fiber and colon clense suggested by lymetoo.
Thanks for all your reply's.
I am surprised at the number of them. This seems a common problem within the lyme community. Either consti or loose stools.
I didn't know bb likes to hang out in the intestional tract either.
But in my case some of the problem lays in the nite meds I take to sleep too.
Thanks again and take care
And hope we can all "keep things moving" dana
Posted by AP (Member # 8430) on :
I just had a back-up for 2 weeks... I tried colon cleansing, fiber, milk of mag, anything, and everything to get something out.... Called my PCP when cramping showed up yesterday... No call-back.
My boyfriend and I ended up in the emergency clinic late last night where they did x-rays and found a rather large load waiting to drop. The Dr. RXd Go-Easy, and a suppository (can't remember which one), but when all was said and done, I've lost 7 pounds in the last 12 hours!
But when it comes to constipation, I've been there, done that, and don't want to do it again. 7 pounds of bile!!! That's a newborn baby!
Posted by trails (Member # 1620) on :
I have a few thoughts on this:
First here is an excellent article written by an ILADS doc about gastro issues and tick born illnesses.
Second, sometimes gastro issues are reproductive issues in disguise. I have severe endometriosis and only had severe constipation as my symptom for alomst 3 years. The only thing that would SORT of help it was pysillium husks with tons of water daily.
There is research linking lyme with endo.
We have found since then that adhesions wrapped around my colon and kinked it and pulled it out of place. fun fun.
It is something to consider. as if you dont have enough on your plate as it is.
much luck, Trails
Posted by Truthfinder (Member # 8512) on :
Zelnorm worked great for me... for awhile. Then it began to lose its effectiveness and I developed other abdominal pain, which I suspect was my gall bladder.
In the original literature that came out with Zelnorm, it was only to be prescribed for a certain length of time - 6 weeks, I think - with another "round" as a possible option if your doctor recommended it. It was never intended to be a long-term medication. I even called the manufacturer and asked about this.
I've tried to take it since then, and rather quickly, I get the same additional pains in my gut, so I think it is no longer an option for me.
Seems like gall bladder problems are often a consequence of Zelnorm use, so proceed with caution, and pay attention if you developp other gut pains or symptoms.
I've ordered a homeopathic remedy that is supposted to help speed up the transition of food through the intestines. I'll post about it if it works/ helps.
Tracy
Posted by Kerryblue (Member # 4077) on :
THANKS LYMTOO FOR YOUR CONCERN.
I HAVE TRIED EVERYTHING, MAINLY FIBER,PROBIOTICS, & THE MIX THAT YOU SPOKE OF.
NADDA, UGH
AS FAR AS GOING IN FOR COLON CLEANSE NO EXTRS MONEY.
WE RESEARCHED THIS, WE ALREADY HAVE TROUBLE WITH NAUTUAL FLORA WE NEED.
THE COLON CLEANSE HVE TO BE CAREFUL. MY BACKGROUND IN MED.
THAT IS MAYBE THE ONLY THING NOT THE BEST, UPSETTING DESTROYING OUR NATUAL FLORA WE SO DESPERATELY NEED. IN SINC.
YES, I ALMOST HATE TO HAVE TO GO, KNOWING WHAT I GO THROUGH.SIGH
MAYBE COUPLE THING HAVE NOT HEARD OF IF CAN AFFORD????WOULD TRY...
KERRY
Posted by AZURE WISH (Member # 804) on :
My doc is planning on weening me off the zelnorm soon hopefully.
First cut down to 1 a day then off.
He said that basically my intenstines were too slow and
the plan was to jumpstart them with the zelnorm.
Thank u for the heads up about the potential problems though.
I don't have a gallbladder so that is one thing I don't have to worry about getting messed up. Posted by abxme (Member # 2067) on :
I can totally relate. Here are some things that helped me get over the hump so to speak.
Alkaline Diet - most important !!! Cut down on meat consumption ( meat is heavy and harder for the body to evacuate) Goji Berries Prunes just a couple ( The sugar feeds the lyme) Absolutely No Dairy Products ( They are really binding) Ground Flax Seeds Distilled water enemas when it got really bad. Chiropractic adjustments. Some people said that Triphala and ayurvedic herb is extremely helpful but it did not help me.
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