Okay I haven't done antibiotics yet or rife, but here are the top 10 "alternative" things that have helped me the most (that I can pinpoint anyways). (17 years with Lyme - 16.5 years undiagnosed - working the whole time)
1. Magnesium!! - enabled me to function, reduced muscle, neck and back pain by 90%. Stopped twitches and spasms and helped my heart. Incredibly important.
2. Low carbhoydrate diet
3. Organic veggie/fruit smoothie every morning - lots of organic apple juice
4. Flax seed oil - good for inflammation
5. Exercise - when I could do it
6. No alcohol, coffee or MSG
7. Digestive enzymes
8. Adequate sleep
9. L-Caritine! Life saver for my hyperthyroidism and congitive function
10. cetyl-myristoleate
11. I know this was only a top 10 list but I think copper supplementation also helped me. I have taken, and continue to take a lot of other supplements, but these are some of my favourites. I also like essential oils but can't say if they have helped me yet.
gwen
Posted by SForsgren (Member # 7686) on :
Alternative:
FIR Sauna Rechts-Regulat KMT23 Teasel Root Sleep/Exercise/Diet (grouped as one since these are the common sense items)
I also acknowledge that ABX have been an important part of my journey.
Posted by WildCondor (Member # 434) on :
This could be fun!
Sleep, Exercise, Antibiotics Diagnosis and treatment of Lyme induced NMH (Neurally Mediated Hypotension) probiotics & supplements (too many to list) Monoplace Hyperbaric Oxygen IV Magnesium & IM Methyl B12, B Vitamins etc. Meditation/massage/yoga/TENS/chiropractic/acupuncture FIR Sauna, Wet Sauna, Sweat Lodges, mineral springs Low carb diet Laughing -as much as possible! Posted by JimBoB (Member # 8454) on :
1-Cipro 2-Herbs 3-Tetracycline 4-Doxycycline 5-Artemisinin 6-Oregano Oil 7-Removing Amalgams 8-Herbs 9-Lots of studying 10-More Herbs.
Jim Posted by fatigued15 (Member # 6437) on :
I am answering this from a Mom's point of view living with her teen daughter with Lyme.
- Dr. J. -ABX -QiGong therapy -sleep -listening to your body -meditation -probiotics/supplements -LAUGHING!! -acupuncture -not feeling sorry for herself and making the most out of life
[ 12. April 2006, 11:58 PM: Message edited by: fatigued15 ]
Posted by Ms. Myoclonus (Member # 6750) on :
lots of oral antibiotic combos
tindimax/bicillin
tuina (Chinese massage)
Chinese herbs
B-12 shots
Exercise (yoga, tai chi, weight lifting)
Family support
elliminating dairy because of food allergy
yeast control through low carb, probiotics, caprylic acid
lots of supplements for detoxification, increase circulation, lower inflammation, boost immune system, antioxidant
essential fatty acids
epsom salt baths
essential oils (lavender, frankincense, lemon)
Posted by Gabrielle (Member # 5329) on :
1. Diagnosing myself and find LLMD 2. Lots of different abx 3. Magnesium 4. Artemisinin 5. Diet excluding gluten, alcohol, coffee, tea, sugar, anything industrial, most milk products, low carb. 6. Being constantly on a good probiotic and nystatin. 7. Joining Lyme boards like this one, learning a lot and staying optimistic. 8. First steam sauna - now FIR sauna 9. Rife 10. Detox with German version of Bentonite clay, chlorella, cilantro and baer's garlic
Posted by Linda LD (Member # 6663) on :
add infra red sauna to the list! You can get them from Sam's club much cheaper than home depot.
L
Posted by AZURE WISH (Member # 804) on :
Random order
1. finding my llmd
2. Ketek (other ABX in the past)
3. olive leaf extract
4. Saccromyces boulardii
5. acidolphilous
6. lots of water
7. having my family including my cat
8. making sure I eat enough protein
9. sleeping when my body needs it (even if it means all day)
10. Minimizing "junk" foods as much as I can
[ 28. March 2006, 10:49 AM: Message edited by: AZURE WISH ]
Posted by robi (Member # 5547) on :
1.LLMD
2.ABX combos
3.Supportive partner
4.Acupuncture
5.Magnesium
6.B-12 injections 7.laughing with (please note I said "with" not "at") LymeInHell
8.No sugar, no transfat, high protien, clean meat,organic veggies
9. Keep learning about what to do to improve
10.Epsom salt baths
Posted by Christine202 (Member # 6158) on :
Bicillan
Mepron
Zithro
Excersise
Working with a Shamanic Healer
Meditation and stress reduction techinques
Extra protein in the form of shakes
Yeast/sugar preservative free diet
Enough rest
Accupuncture
Hope to be able to keep adding to my list!
Posted by brentb (Member # 6899) on :
1. silver 2. oil of oregano 3. multivitamin xtra C 4. rest-meditation 5. excercise 6. green tea 7. water/detox 8. cannabis - neuroprotective 9. pomegranate juice 10. keep fighting
Posted by gwenb (Member # 7217) on :
Great responses! I am surprised there are not more areas of overlap. If we get enough people answering we can do a top ten compilation from everyones' list.
Gwen
Posted by Andie333 (Member # 7370) on :
Getting my LLMD
Sleep, meditation and prayer
Minimizing stress as much as possible
Acupuncture and Chinese medicine
Antibiotics and supplements
Foot detox pads
Diet (eliminating white foods and coffee)
Water (lots and lots of water)
Laughter
Trying to stay positive and hopeful
Posted by TheCrimeOfLyme (Member # 4019) on :
1. Allergy desensitization and ART testing
2. Bicillin
3. Rife
4. Eliminating stress and relationships that were making me sicker.
5. TENS Unit for pain ( If anyone wants to know where to get one, please PM me)
6. Sauna
7. Elimination of coffee and caffeine. NIXED my chronic jaw pain, shoulder pain and neck pain that I had for THREE years.
8. Liver flushes
9. Homeopathic support, frequency waters, etc.
10. Chiropractor.
Those arent in any specific order.. but they gave me 90 percent of my life back.
Posted by 5dana8 (Member # 7935) on :
1-finding a LLMD to treat me 2-abx 3-probiotics 4-prayer 5-lots of suppluments 6-lots of water & anti candita diet 7-never giving up-EVER 8-support of SO & family 9-hot epson baths & lots of detox 10-trying to stay as active as possible when not herxing.
Posted by alexander (Member # 9027) on :
good idea though hard to say what of all those things played which role.
1. Combo of rocephin + biaxin + plaquenil 2. Finding a llmd you can trust (not easy after discovering the stupidity of docs in general) 3. Resuming work, taking part in normal life again and don't think all the time about lyme 4. But on the other hand becoming an expert for my disease and the only one who decides how to proceed 5. Sleep 6. Living extremely healthy 7. Internet (for diagnose, research and contact) 8. Family 9. Swimming 10. Supplements (vitamins, magnesium, fishoil)
Posted by gwenb (Member # 7217) on :
I'm cheating a bit here - but I think my first top ten focused too heavily on supplements. So here is my revised - holistic - top 10.
1. Being my own advocate and researcher 2. Finding a lyme literate doctor 3. Supplements - see some of my top 10 above - magnesium and L-Carnitine being key 4. Exercise 5. Diet - very, very important. Low carb, almost no sugar, no alcohol, no coffee, no glutens etc. Lots of organic fruits and veggies (low starch) 6. Internet support groups - I finally didn't feel alone in my fight against Lyme 7. Being politically active regarding Lyme disease. 8. Rest 9. Controlling stress 10. Being open-minded regarding this disease
![[lol]](graemlins/lol.gif)
![[Cool]](cool.gif)
![[Smile]](smile.gif)
![[hi]](graemlins/hi.gif)