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Posted by isabel (Member # 8022) on :
 
Hi

I have lyme since july 2004 (neurologic problem).

We trait co-infection bartonella and babesias.
Detox...amalgam and many things.

I take malarone, zitromax,levaquin,plaquenil, difflucan and some products for detox.(6 months (levaquin) and 4 months (malarone)

I have a violent headhack (terrible)and a electric choc in my head, and i have always problem whit my throat.
The pain in my head going to my left side.Last 3 months i have pains to my heart. Now every things comme back in my head.
I have always pains every days, every hours.. never brake but sometimes the pains is better and sometimes the pains is very hard.

Do you have a idea for another co-infection give a neurologic problem like that. I take antibiotiques since 18 months.
I eat well but i continue to lost many many pounds.(I lost 21 pounds)I'M very small.

I don't understand the desease and the pains change the place all times.

If somebody have idea or suggestion, i see my LLMD in two weeks.
Sorry for my bad english

Can I stop the traitment, my doc in Canada don't beleive in this desease, I go in USA and it's expensive. Do you think is possible fell better????

Thanks Isa
 
Posted by lou (Member # 81) on :
 
You have sure got a whole bunch of germs. This is one reason why you are having so much trouble.

I will only reply to the weight loss issue, since I also had this, and when treated long enough for babesia (8 months) the weight came back. You don't mention any antimalarial except malarone. This is considered a lite version of mepron, and some people have found it not strong enough. Might be necessary to change the anti-babesial aspect of your treatment plan. Some people think babesia causes headaches. There may be symptom overlap between these diseases, as lyme can also cause headaches.
 
Posted by humanbeing (Member # 8572) on :
 
So sorry you are suffering so much, Isa.

You will improve with time...although it probably doesn't feel like that.

Do you have pain when off antiboitcs? Maybe you could ask your llmd if a short break would help to calm your over active immune system. Then restart when feeling stronger.

Maybe ask about systemic candida...with all the abx...

I am not a doc...only a student of lyme but all this pain you are having probably means that the antibiotics are doing their job. Your immune system has a hard time "cleaning up" with such a high germ load.

You are courageous to be fighting back at this illness- since you have been able to get this far-finding treatment and lymenet, you are officially a strong and resouceful lymie.

I have great respect for all the good people here who are fighting for their lives and others every day.

Hang in and Hang on...each day moves you closer to your health. Hope and patience are sometimes the best medicines with lyme.
[group hug]
 
Posted by humanbeing (Member # 8572) on :
 
I have lost a great deal of weight also--too bad it comes at such a high price.
 
Posted by Lymetoo (Member # 743) on :
 
Hi Isabel! Yes, make sure you treat that babesia a little harder. The malarone is not that strong unless you are taking a large dose.

I would also try to clear out toxins and take a break ever so often to give your body a rest.


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