For cryin' outloud! I had a cat scan about 2 wks ago and just now got the report back.
I was having pain in the kidney area and one of my kidney tests was skewed, so doc ordered a CT.
Kidneys are fine, but there's a granuloma in my lung!!!
It says "Remote granulomatous disease of the left lower lung."
NOW WHAT??? I do have shortness of breath that began last yr after a second tick bite. I was dxd with asthma at that time.
From what I've read, the granulomas can be bacterial in origin.
Anybody have any info on this?? I haven't talked to my dr yet and may not be able to until next week!!!
[ 13. April 2006, 06:25 PM: Message edited by: Lymetoo ]
Posted by SForsgren (Member # 7686) on :
Have you asked your doctor whether or not Human Granulocytic Ehrlichia (HGE) or Anaplasma could be the cause of your granulomas?
Posted by Lymetoo (Member # 743) on :
NO, not yet. I did take doxy for the bite last year. Do you know what they mean by "remote"?
Posted by hiker53 (Member # 6046) on :
Lymetoo,
I AM PRAYING FOR YOU! After all you have endured you do not need this. Keep us posted. Hiker
Posted by trueblue (Member # 7348) on :
Too, I don't know anything about any of this but wanted to offer hugs and prayers.
Posted by hiker53 (Member # 6046) on :
Lymetoo,
I was so flabbergasted at your post that I posted twice. Oh well, twice the prayers are twice as good, I suppose. Hiker
Posted by pattilynn (Member # 8065) on :
Remote usually means it's from the past. Dr's will write things like "patient has a remote history of appendicitis" for example. It's not new. I don't think it will be anything serious.
Hope that helps,
Patti
Posted by 5dana8 (Member # 7935) on :
Lymetoo
I am praying for you and
wishing you healing thoughts
take care dana
Posted by gael1111 (Member # 8816) on :
Lymetoo,
I think granulomas are not uncommon with lyme disease. My ND has treated me for mycoplasma, and mycobacterium TB.
I am not saying that is what you have, but whatever it shows, just wanted you to know there are usually other options.
He tested me using kinesiology and that is what showed up. I took very strong herbal formulas (combo of about 16-20 Chinese and South American herbs) and feel much better.
If you need info let me know. Try not to despair, just try and think of it as something else the body needs to clear.
Sending You Lots Of Healing Light
Gael
Posted by gael1111 (Member # 8816) on :
Lymetoo,
I think granulomas are not uncommon with lyme disease. My ND has treated me for mycoplasma, and mycobacterium TB.
I am not saying that is what you have, but whatever it shows, just wanted you to know there are usually other options.
He tested me using kinesiology and that is what showed up. I took very strong herbal formulas (combo of about 16-20 Chinese and South American herbs) and feel much better.
If you need info let me know. Try not to despair, just try and think of it as something else the body needs to clear.
Sending You Lots Of Healing Light
Gael
Posted by robi (Member # 5547) on :
I had a noncaseating granuloma in my lymphnode in y groin. They dx'd me with sarcidosis. I had no other specific symptoms of sarc that did not also fit lyme.
I think there is overlap but there is no research of course. Granulomas can be caused by bartonella. Did you have that?
Hope this helps, robi
Posted by cantgiveupyet (Member # 8165) on :
Hang in there Lymetoo..
Sending warm thoughts your way.
I dont know anything about this.
Many hugs. Posted by Lymetoo (Member # 743) on :
quote:Originally posted by robi: Granulomas can be caused by bartonella. Did you have that? [/QB]
I don't think so, but who knows?! I was treated for all coinfections, but not tested for all of them since the tests are lousy anyway.
I figure it's Lyme related....gotta be.
Patti...Thanks for explaining the 'remote' thing! I wonder if it showed up in the scan I had last summer following my GB surgery?
That would be interesting to know. Nobody ever said anything...?
Thanks for all the support.
This literally knocked the wind out of my sails!
Posted by just don (Member # 1129) on :
Hi TuTu, I just saw this and knew I could not pass this by without sending you my best in regards to complete kicking this slight problem. I do think it sounds slight, at least at this time. try not to worry too much till doc can clear a little air here with proper dx and prognosis.
Meanwhile eat an extra egg for me. I probably wont get to. Unless I hide some myself for me, myself and I to FIND
I cant send those little yellow kisses your way, this is as close as I can come to my feelings Have a Happy Resurrection day!!! Cant help with medical probs cuz I am still --just don--
Posted by seibertneurolyme (Member # 6416) on :
Hubby has bilateral hilar adenopathy and several enlarged lymph nodes in both lungs. A bronchoscopy showed inflammation of unknown etiology.
Pulmonologist wanted to do sugical biopsy of course, but we talked her into doing a PET scan instead. Results on PET were the same as on the CAT -- could not totally rule out cancer but we weren't concerned as he has never smoked.
Alternative protocol was to repeat CAT every 6 months for 2 years which has been done (actually extended to 2 1/2 years) -- some minor changes between tests, but pulmonologist felt odds of cancer were practically nil.
Lymph drainage massage did seem to improve condition on one set of films and then it seemed to get worse after a herx -- forget which med was involved.
3 different LLMD's said they had seen similar problems before but I can't remember them saying it pointed to a particular bug -- did warn hubby that lymph nodes may be permanently enlarged and never return to normal.
I wouldn't be overly concerned about this, but it bears watching of course.
Bea Seibert
Posted by bettyg (Member # 6147) on :
Tutu, just read your latest adventure. Weekends sure are long when you want answers but you are starting to get them from medical staff online .. good.
My thoughts & prayers go to you too that this won't bring you down after ALL the progress you hve mde.
Bettyg
Posted by Michelle M (Member # 7200) on :
Thoughts are with ya, Toots.
" In most persons, the granulomatous disease will not progress. Over time, the granulomas decrease in size and can calcify, leaving a focal calcified spot on a chest radiograph that suggests remote granulomatous disease."
(Culled from web.)
i.e., if a bacterial infection caused the spot on your lung, which has now shrunken and calcified, there you go. Hopefully, that will be all there is to it, other than maybe "watching" it a while to make sure it looks the same.
Try not to worry - the CT scan is marvelous at picking up the characteristics of lesions or spots.
Hope your doc can put your mind to rest soon.
Hugs your way,
Michelle
Posted by aiden424 (Member # 7633) on :
Lymetoo, Thoughts and prayers are with you. I did do a search on Granuloma and the Mayo Clinic site said that most of the lung granulomas are caused by fungus.
Hugs!! Kathy
Posted by Lymetoo (Member # 743) on :
thanks guys! Yeah, I read a few nasty things myself. I saw the note about fungus....good ole yeast?? or fungus?
I decided not to worry until Monday. How's that?!
Posted by dguy (Member # 8979) on :
Granulomas are often associated with Sarcoidosis. The Marshall Protocol reports a near 100% cure rate for Sarcoidosis patients who have been treated for the duration (2 to 3 years).
Since the bacteria that cause Lyme and Sarcoidosis have many similarties, the MP looks promising for Lyme too.
Posted by map1131 (Member # 2022) on :
Lymetoo, this morning when I read this tread I thought about you and your lung detection post I read yesterday. Just wanted to make sure you did see this thread.
Take care, Pam
Posted by Lymetoo (Member # 743) on :
Thanks, map and dguy! I'll run that parasite on my Rife today.
I've been doing a parasite cleanse for several months now.
Dguy...I left you a message on the MP thread.
Posted by Biting Back (Member # 6018) on :
Remote = Separated from one another, separated by intervals or spaces greater than the ordinary.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Biting Back: Remote = Separated from one another, separated by intervals or spaces greater than the ordinary.
OH, that's entirely different! Thanks!
Posted by Health (Member # 6034) on :
Lymetoo,
I hope things go well for you on Monday, and that it is nothing too serious that cannot be dealt with and cured.
Youve been through too much, after hearing all the babesia treatment you did, and all that horrifying herxing, and now this,
Good luck, let us know what happens.
Trish
Posted by bettyg (Member # 6147) on :
Sending you my thoughts and prayers for tomorrow. Bettyg
Posted by Lymetoo (Member # 743) on :
I called dr's office and his nurse told me I didn't need to do anything about it. She said it's associated with the Lyme disease and that the CT did not show a big problem.
I'm going to call my GP tomorrow [he's not in today] and ask if this problem showed up on the CT I had last summer.
My GP can go over to the hospital and look at both scans. That will make me feel a bit better, I think.
Thanks everybody for 'holding my hand' this week-end! Posted by dontlikeliver (Member # 4749) on :
Hey Lymetoo! Good to hear it is 'only' Lyme related, and not too serious!!
Hope you can relax a bit now.
Hugs DLL
Posted by cantgiveupyet (Member # 8165) on :
So glad to hear that lymetoo
Now you can breathe a little easier.
Posted by bettyg (Member # 6147) on :
Tutu, we'd be happy to "hold your tutu's at no charge too"...LOL.
Seriously, glad you got a good report today.
I don't know about CTs, but Friday pm, I picked up a CD of my brain MRI; perhaps they could do a CD for you of your CT scan? Just throwing out this idea at you.
Earlier tonight, I spent some time looking at the 150+ scans of my MRI; NOT sure what I was looking at, but referred back to the area he stated I'd had a "mini stroke". Best wishes tutu.
Bettyg
Posted by sofy (Member # 5721) on :
Glad to hear your doc relieved your mind about this. Just seems like its always somethimng. Hope all goes well.
Posted by lou (Member # 81) on :
Vet Pathol. 2006 May;43(3):391-2.
Systemic granulomatous disease and sialometaplasia in a dog with bartonella infection.
Saunders GK, Monroe WE.
College of Veterinary Medicine, Virginia Tech, Blacksburg, VA 24061-0442 (USA).
Systemic granulomatous disease involving the spleen, heart, lymph nodes, omentum, liver, kidney, lung, mediastinum, and salivary glands developed in an 8-year-old Rottweiler. The dog also had sialometaplasia of both submandibular salivary glands. Bartonella henselae and B. vinsonii subsp. berkhoffii DNA was amplified from the salivary gland by polymerase chain reaction analysis. Bartonellae may be the cause of this systemic disease, but to the authors' knowledge, involvement of omentum, mediastinum, and salivary glands has not previously been reported in association with Bartonella infection. Bartonellae should be considered potential causes of sialometaplasia.
PMID: 16672593 [PubMed - in process]
Posted by iceskater (Member # 8655) on :
Just hugs, good wishes and prayers my friend
Posted by DolphinLady (Member # 6275) on :