Looking over the post on symptoms below, I started wondering if anyone else noted having an unusually low bp, or if that was just me.
I have to admit that I've always run on the low side, but sometimes my bp was so low that the RN's had a hard time even getting it, like 70-80 over 50-60 or lower.
Posted by cantgiveupyet (Member # 8165) on :
yep, i have low blood pressure just like you.
i believe it is a symptom of lyme.
Posted by bettyg (Member # 6147) on :
are you on benicar BP med also? it will make it lower yet..
yes, low BP is a lyme sx.
Posted by I Have Lyme Etc (Member # 7439) on :
Not too long ago I went over all my medical record for the last 15 years when i first got sick and I noticed a pattern of my BP getting lower and lower.Over the last few years I've been running in the 90's over 60 or high 50's... Sometimes its in the upper 80's over low 50s...None of the doctors I ever see ever make an issue out of it keep telling me it's normal cause I"m so small but I dont buy that answer.. not sure what it is.. I'm guessing it's the Lyme
Posted by cantgiveupyet (Member # 8165) on :
Robyn- all the ducks must feed us the same lines...
I get the 'because your so small" line too.
recently i got the 'we only worry when it is high' line- meaning he had no clue and didnt want to deal with it.
Im a mystery to the ducks.
Posted by blackbirdsings (Member # 7972) on :
Low blood pressure is a symptoms. I have POTS known as Postural Orthostatic Tackycardia Syndrome, caused by Lyme.
No doctor bothered to mention lyme could cause this for years, despite me going to the top drs for POTS.
NMH-neurally mediated hypotension is another version of this.
I faint (syncope) but it is under control more now than it has ever been, due to treatment.
It's not true that your blood pressure is low: -because you are a female
-because you small
-because you are skinny
-because you are a mental case and make yourself faint
-you do it to yourself
-you do it for attention
The list could go on and on. Top researchers have found people can not make themselves just faint. There is an underlying cause of the syncope.
If you are fainting, haveing pre-sync, you need a complete evaluation. Several heart tests, to make sure your heart is working properly and that there are no abnormalities.
There is also something called a TIlt Table Test. I have had several all positive and passed out on all of mine. It is a test that it pure (opposite of heaven!)---!
Have a positive tilt does act as "proof" to new doctors that you do faint and have a diagnosed problem. We carry the results of my test with us everywhere we go, and have to pull it out every couple of months at a new dr OR even someplace where I need a chair to sit in and one to put my legs up in.
Posted by Lymetoo (Member # 743) on :
Yes. I have it too.
Posted by hurtingramma (Member # 7770) on :
Sorry, I have high bp, and have had for years. In fact, I recently had to up my med for it because it was getting higher.
However, when I am taking Plaquenil, it does stay lower.
High BP runs in my family.
My daughter, however, does have a problem with low bp and has ended up in the ER because of it. She also has Lyme.
So, I guess the anser is MAYBE
Posted by hurtingramma (Member # 7770) on :
Sorry, I have high bp, and have had for years. In fact, I recently had to up my med for it because it was getting higher.
However, when I am taking Plaquenil, it does stay lower.
High BP runs in my family.
My daughter, however, does have a problem with low bp and has ended up in the ER because of it. She also has Lyme.
So, I guess the answer is MAYBE
Posted by Bluetick (Member # 8467) on :
Lyme can cause neurocardiogenic sycope or neurally mediated hypotension.
I have it. Basically my brain doesn't tell my heart to increase my blood pressure at times and I black out. It was diagnosed with a tilt table test. I take florinef to increase my blood pressure.
Apart from the acute hypotension, I also have/had very low blood pressure all the time.
Doing a search for NMH or NCS on lymenet might help.
Posted by welcome (Member # 7953) on :
Just to be sure to have your BP done on both arms. And vary as to which one you test first. Always go with the higher of the two readings.
[ 17. April 2006, 10:32 PM: Message edited by: welcome ]
Posted by pomegranite (Member # 3339) on :
Me too for low BP...
Pom
Posted by pamyla (Member # 8575) on :
My blood pressure is sometimes high, sometimes low. Both are just ways your body is trying to keep blood up to your head. I've also been diagnosed with POTS and NMH. Fluid and salt are really helpful for keeping my blood pressure and heart rate stable.
Posted by psano (Member # 7785) on :
Bettyg,
I'm not on Benicar or any other bp medication.
Also, I've never passed out, although I have felt faint and dizzy a few times.
Lyme causes so many symptoms. It almost defies imagination.
Patti
Posted by lymednva (Member # 9098) on :
I have NMH and although I've never fainted I did have a positive tilt table test. That took a month to recover from.
Mine is so bad that I had to resort to meds to bring it up enough that I am no longer bedridden. I had tried salt and fluids, and still drink a lot because low blood volume also goes along with this.
Ain't life grand?!
Posted by hwlatin (Member # 4123) on :
Lyme disease does a real number on the Vagus nerve which can cause syncope, and a host of other problems including surprise, surprise Gastroparesis.
Posted by AZURE WISH (Member # 804) on :
My BP used to be real low
(except when I was screaming in pain then it was high)
It seems as I am starting to get better it has come up and it is in the normalish range now.
Best wishes
Posted by Biting Back (Member # 6018) on :
Low BP can be a symptom of borreliosis and/or coinfections. Make sure you have someone check your potassium levels. My BP was passing out low and hubby had to take me to the ER on several occasions. My potassium was always low and the ER ducks typically accused me of abusing diuretics because they couldn't find anything else to blame it on.
When all else fails, blame the patient.
Good luck!
Posted by DolphinLady (Member # 6275) on :
I too have a positive tilt table test. Lyme treatment and florinef helped my bp. Treating babesia is helping it even more.
Posted by lymex5&counting (Member # 7202) on :
My mom and I both LOW!
Posted by trueblue (Member # 7348) on :
I run about 98/58 average, give or take.
I think it's always been this way, I remeber coming from a gyno appt. at about 18 or 19 and my mom asking what my blod pressure was.
When I said 95/50 she freaked an called the doctor who was unphased, said it must be normal fo me. It's the same 20+ years later.
The subnormal body temp gets lots of "by the way your dead" from ER nurses. So funny I forgot to laugh, bozos. Posted by daniella (Member # 6753) on :
low bp too.....
Posted by Gabrielle (Member # 5329) on :
I have low bp, too.
My hubby has very high bp - we suspect Babesia, as it's getting better with treatment.
Posted by WildCondor (Member # 434) on :
Have you guys been tested via Tilt table test for Neurally Mediated Hypotension? Lyme infection can cause this, and it can be very debilitating if left unchecked. Yes, it is inflammation of the vagus nerve.
here are some links for you to look over. Treatment for the NMh made a huge difference in my life, and without the NMH meds I couldnt function.
I was told many years ago what I was experiencing was postural hypotension and the latest report says dysautonomia. Doesn't sound like anyone's gonna bother testing it.
Of interest, I was out with a friend today and we did some walking and standing.
When I was hit with the feeling I'd better sit (which I do constantly, regardless of where I am) for a while.
The friend I was with asked about the red and white mottling on my legs. I have seen it before but never thought anything about it. Having just looked at that second link there was a picture.
I'll go back to reading the rest of the links, thanks.
*insert sitting down, headachey, soon to be laying down smilie here*
Posted by concerned mother (Member # 8128) on :
My sons is really low, especially when he stands up!
Posted by WildCondor (Member # 434) on :
I was treated with beta blockers, first metoprolol, then Atenolol, plus florinef and zoloft and xanax prn. Increasing water intake is essential, and avoid prolonged standing, hot weather, exhaustion, adrenaline surges, stress, coffee, sugar, dairy, carbs, hot showers, etc. Long lines really get me going still! It takes time to get on the right treatment for each individual. The results of the Tilt Table test should indicate to your Cardiologist what meds to put you on. Posted by trueblue (Member # 7348) on :
Hmmm... Cardiologist, been trying to avoid going to another doc. I'll add him to my MD to do list. (I haven't seen one in 13 years.)
I don't ever do lines, I just sit down where ever I am and wait. Then I make jokes to the other people in line about this being a good place for a couch.
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