posted
Looking over the post on symptoms below, I started wondering if anyone else noted having an unusually low bp, or if that was just me.
I have to admit that I've always run on the low side, but sometimes my bp was so low that the RN's had a hard time even getting it, like 70-80 over 50-60 or lower.
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
yep, i have low blood pressure just like you.
i believe it is a symptom of lyme.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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bettyg
Unregistered
posted
are you on benicar BP med also? it will make it lower yet..
posted
Not too long ago I went over all my medical record for the last 15 years when i first got sick and I noticed a pattern of my BP getting lower and lower.Over the last few years I've been running in the 90's over 60 or high 50's... Sometimes its in the upper 80's over low 50s...None of the doctors I ever see ever make an issue out of it keep telling me it's normal cause I"m so small but I dont buy that answer.. not sure what it is.. I'm guessing it's the Lyme
posted
Low blood pressure is a symptoms. I have POTS known as Postural Orthostatic Tackycardia Syndrome, caused by Lyme.
No doctor bothered to mention lyme could cause this for years, despite me going to the top drs for POTS.
NMH-neurally mediated hypotension is another version of this.
I faint (syncope) but it is under control more now than it has ever been, due to treatment.
It's not true that your blood pressure is low: -because you are a female
-because you small
-because you are skinny
-because you are a mental case and make yourself faint
-you do it to yourself
-you do it for attention
The list could go on and on. Top researchers have found people can not make themselves just faint. There is an underlying cause of the syncope.
If you are fainting, haveing pre-sync, you need a complete evaluation. Several heart tests, to make sure your heart is working properly and that there are no abnormalities.
There is also something called a TIlt Table Test. I have had several all positive and passed out on all of mine. It is a test that it pure (opposite of heaven!)---!
Have a positive tilt does act as "proof" to new doctors that you do faint and have a diagnosed problem. We carry the results of my test with us everywhere we go, and have to pull it out every couple of months at a new dr OR even someplace where I need a chair to sit in and one to put my legs up in.
Posts: 114 | From USA | Registered: Sep 2005
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posted
Lyme can cause neurocardiogenic sycope or neurally mediated hypotension.
I have it. Basically my brain doesn't tell my heart to increase my blood pressure at times and I black out. It was diagnosed with a tilt table test. I take florinef to increase my blood pressure.
Apart from the acute hypotension, I also have/had very low blood pressure all the time.
Doing a search for NMH or NCS on lymenet might help.
Posts: 98 | From MA | Registered: Dec 2005
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posted
My blood pressure is sometimes high, sometimes low. Both are just ways your body is trying to keep blood up to your head. I've also been diagnosed with POTS and NMH. Fluid and salt are really helpful for keeping my blood pressure and heart rate stable.
Posts: 60 | From Northern Va | Registered: Jan 2006
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Also, I've never passed out, although I have felt faint and dizzy a few times.
Lyme causes so many symptoms. It almost defies imagination.
Patti
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I have NMH and although I've never fainted I did have a positive tilt table test. That took a month to recover from.
Mine is so bad that I had to resort to meds to bring it up enough that I am no longer bedridden. I had tried salt and fluids, and still drink a lot because low blood volume also goes along with this.
Ain't life grand?!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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posted
Lyme disease does a real number on the Vagus nerve which can cause syncope, and a host of other problems including surprise, surprise Gastroparesis.
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
My BP used to be real low
(except when I was screaming in pain then it was high)
It seems as I am starting to get better it has come up and it is in the normalish range now.
posted
Low BP can be a symptom of borreliosis and/or coinfections. Make sure you have someone check your potassium levels. My BP was passing out low and hubby had to take me to the ER on several occasions. My potassium was always low and the ER ducks typically accused me of abusing diuretics because they couldn't find anything else to blame it on.
When all else fails, blame the patient.
Good luck!
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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posted
I too have a positive tilt table test. Lyme treatment and florinef helped my bp. Treating babesia is helping it even more.
Posts: 925 | From California | Registered: Sep 2004
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posted
My mom and I both LOW!
Posts: 399 | From Texas | Registered: Apr 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I run about 98/58 average, give or take.
I think it's always been this way, I remeber coming from a gyno appt. at about 18 or 19 and my mom asking what my blod pressure was.
When I said 95/50 she freaked an called the doctor who was unphased, said it must be normal fo me. It's the same 20+ years later.
The subnormal body temp gets lots of "by the way your dead" from ER nurses. So funny I forgot to laugh, bozos.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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My hubby has very high bp - we suspect Babesia, as it's getting better with treatment.
Posts: 767 | From Germany | Registered: Feb 2004
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WildCondor
Unregistered
posted
Have you guys been tested via Tilt table test for Neurally Mediated Hypotension? Lyme infection can cause this, and it can be very debilitating if left unchecked. Yes, it is inflammation of the vagus nerve.
here are some links for you to look over. Treatment for the NMh made a huge difference in my life, and without the NMH meds I couldnt function.
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Wild, How were/are you treated?
I was told many years ago what I was experiencing was postural hypotension and the latest report says dysautonomia. Doesn't sound like anyone's gonna bother testing it.
Of interest, I was out with a friend today and we did some walking and standing.
When I was hit with the feeling I'd better sit (which I do constantly, regardless of where I am) for a while.
The friend I was with asked about the red and white mottling on my legs. I have seen it before but never thought anything about it. Having just looked at that second link there was a picture.
I'll go back to reading the rest of the links, thanks.
*insert sitting down, headachey, soon to be laying down smilie here*
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
My sons is really low, especially when he stands up!
-------------------- Amy Holloway Posts: 255 | From Michigan | Registered: Oct 2005
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WildCondor
Unregistered
posted
I was treated with beta blockers, first metoprolol, then Atenolol, plus florinef and zoloft and xanax prn. Increasing water intake is essential, and avoid prolonged standing, hot weather, exhaustion, adrenaline surges, stress, coffee, sugar, dairy, carbs, hot showers, etc. Long lines really get me going still! It takes time to get on the right treatment for each individual. The results of the Tilt Table test should indicate to your Cardiologist what meds to put you on.
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Hmmm... Cardiologist, been trying to avoid going to another doc. I'll add him to my MD to do list. (I haven't seen one in 13 years.)
I don't ever do lines, I just sit down where ever I am and wait. Then I make jokes to the other people in line about this being a good place for a couch.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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