Hey, can someone tell me if L'Hermitte's sign (buzzing/zapping down the spine when neck is bent forward) can be associated with Lyme Disease? I have had this for 10 months along with other "classic" MS symptoms, and I am desperately hoping for Lyme Disease (I had a test done at IGeneX and I'm still considered "negative", with only four positive points & two that were IND). No evidence of MS, either, so I'm in limbo. Also, I'm taking Doxycycline orally - can this be effective even for neuro-Lyme? Thanks.
Posted by Bluetick (Member # 8467) on :
I have that symptom. LLMD and non-LL neurologist told me that it is caused by lyme and/or MS.
MS is basically a symptom, not really a diagnosis. The term 'multiple sclerosis' just means multiple areas of demyelination in the CNS and can be used to describe these symptoms caused by lyme disease.
My LLMD believes that MS is lyme disease.
[ 13. May 2006, 03:05 PM: Message edited by: Bluetick ]
Posted by dontlikeliver (Member # 4749) on :
I had L'hermittes 7 years ago. It can be caused by any inflammation as far as I know, it is not exclusive to MS.
Posted by Reno'sBack (Member # 7367) on :
Bluetick, Yay!!! I found you! Do you see Dr.P?
Do you know the others with demyelination? I'm not online enough.
Thanx~Reno
Posted by Bluetick (Member # 8467) on :
Hi Reno,
Yup, I see Dr. P. I know of a few people on here with demyelination and lyme disease.
I hope that you are doing well with treatment.
Bluetick
Posted by TheCrimeOfLyme (Member # 4019) on :
Ive had it ever since I was in my early teens, so about for 13 years.
Posted by patsmad (Member # 9178) on :
You've had it for 13 years - I'm assuming you don't have MS? Have you been treated for Lyme, and if so, do you know why you still have L'hermitte's?
Posted by BOEJR (Member # 1734) on :
Hi Patsmad,
Are you having your testing done while you are activily on Abx? This would make a substantial difference in the results.
Just a thought.
Julia
Posted by patsmad (Member # 9178) on :
No, I wasn't on antibiotics when I was tested for Lyme.
Posted by minimonkey (Member # 8693) on :
I developed L'Hermittes last year -- shortly before I was diagnosed with Lyme. Ducks were trying to go down the MS road with me, but the overall clinical picture was clearly more lyme than MS. MRI of CSpine ruled out disc problems, etc.
I came back CDC positive for Lyme, and the L'Hermittes was one of the first symptoms to disappear with abx treatment.
![[Big Grin]](biggrin.gif)
Do you see Dr.P?