posted
Hey, can someone tell me if L'Hermitte's sign (buzzing/zapping down the spine when neck is bent forward) can be associated with Lyme Disease? I have had this for 10 months along with other "classic" MS symptoms, and I am desperately hoping for Lyme Disease (I had a test done at IGeneX and I'm still considered "negative", with only four positive points & two that were IND). No evidence of MS, either, so I'm in limbo. Also, I'm taking Doxycycline orally - can this be effective even for neuro-Lyme? Thanks.
Posts: 23 | From wyoming | Registered: May 2006
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posted
I have that symptom. LLMD and non-LL neurologist told me that it is caused by lyme and/or MS.
MS is basically a symptom, not really a diagnosis. The term 'multiple sclerosis' just means multiple areas of demyelination in the CNS and can be used to describe these symptoms caused by lyme disease.
My LLMD believes that MS is lyme disease.
[ 13. May 2006, 03:05 PM: Message edited by: Bluetick ]
Posts: 98 | From MA | Registered: Dec 2005
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
I had L'hermittes 7 years ago. It can be caused by any inflammation as far as I know, it is not exclusive to MS.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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posted
You've had it for 13 years - I'm assuming you don't have MS? Have you been treated for Lyme, and if so, do you know why you still have L'hermitte's?
Posts: 23 | From wyoming | Registered: May 2006
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Are you having your testing done while you are activily on Abx? This would make a substantial difference in the results.
Just a thought.
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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posted
I developed L'Hermittes last year -- shortly before I was diagnosed with Lyme. Ducks were trying to go down the MS road with me, but the overall clinical picture was clearly more lyme than MS. MRI of CSpine ruled out disc problems, etc.
I came back CDC positive for Lyme, and the L'Hermittes was one of the first symptoms to disappear with abx treatment.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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