This is topic Can RSD by Lyme? in forum Medical Questions at LymeNet Flash.


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Posted by humanbeing (Member # 8572) on :
 
My 16 year old neighbor was just diagnosed with RSD...she has severe pain in one foot...swelling etc.

She said the docs have been stumped for years and ruled everything else out.

Before I go on my Lyme Awareness binge, can anyone tell me anything about RSD being confused with lyme?
Thanks!
 

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Posted by Lymetoo (Member # 743) on :
 
I don't know .... up for some answers!
 

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Posted by bettyg (Member # 6147) on :
 
I thought the same thing when I saw a PAX TV "DOC" MOVIE about RSD, REFLEX SYMPATHY DYSTROPHY. I had never had heard of it before.

I checked ART DOUGHERTY'S 300 OTHER illnesses mimic lyme disease and RSD was NOT listed on there. I believe he had a RSD BUT NOT the one you are inquiring about.

I have a link for RSD support groups that I learned of when I was on pax's DOC message board.

http://www.freewebs.com/helprsd/

I was just there now; it still works; and LOTS OFINFO including telling all about it.

otherwise, I loved going to:

www.medlineplus.org the NIH site, USER-friendly, and go to illnesses and type it in there ... loads of info.

Boy, are you a GREAT neighbor checking out things to tell her parents!
 

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Posted by Jill E. (Member # 9121) on :
 
When I first developed Lyme symptoms of burning starting in my feet and spreading through my body, there was an article in my local newspaper about a woman athlete with RSD who had been misdiagnosed for years. Her symptoms sounded a lot like mine.

However, RDS usually develops in a dancer or athlete or has an injury that affects the nerves and then the nerves overreact and keep sending pain signals or something to that affect. I knew I had not sustained an injury prior to these symptoms.

So I finally figured out it was Lyme, but RSD can certainly cause some of the similar pain/burning/tingling symptoms we neurological Lymies get.

Also, when I recently saw a podiatrist because of foot pain from either Lyme, Bartonella or the quinolones, he was concerned that the continuing pain could develop into RSD. However he knows nothing about Lyme, he was just talking about things from a pain and foot perspective.

If you do a search through old People magazines, there was an article about Paula Abdul who suffered from pain for years from injuries as a dancer and it was finally diagnosed and treated as RSD - by a rheumatologist I had seen in Los Angeles years ago by the name of Daniel Wallace of Cedars-Sinai who is familiar with RSD (he is a lupus expert).

Jill
 

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Posted by mjo (Member # 7876) on :
 
One thing not prominent in RSD information: it can stem from an INFECTION. When you get bitten by a tick that is an injury, one way to develop "RSD." Then from the tick you contract an infection, another way to get "RSD."

Is this just one more garbage can disease made up to hide Lyme and TBD's? What facility developed the "RSD" nametag? Where is it studied?

Funny thing they have support groups already. Pay attention! Support groups are being pushed for everything but Lyme. Why?

I know about RSD because my best Lyme-sick friend called me freaking out last summer: her dad had tick bites all over his arm in our hyper-endemic area. The bites became huge welts. No treatment sought.

Three months later the arm developed a classic ACA rash. (Read about ACA and also look at pictures of RSD.) Her mom and dad would not take a picture of the rash though I begged and begged. By the time I saw the arm it was still pitifully swollen; the skin was so taught it was nearly transparent; blotchy patches covered his palms; the hand was immobile and extremely painful. He told me he had had blue-black patches, like blood blisters, all up and down the arm. The "blood blisters" would come off (Burst?) in the shower.

I knew what I was looking at. The ducks did not.

His WB showed several positive bands though neither IgG or IgM was IGenex or CDC positive. When your body is sick with RSD it is trying to fight the trigger with all it has so having your antibodies complexed would be likely and a "typical" positive unlikely, especially on a duck test.

He may lose the arm. And his life, but we can't make him understand he needs aggressive antibiotic therapy ASAP. Too far gone? Too sick?
"RSD" makes me livid!
 

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Posted by Lymetoo (Member # 743) on :
 

quote:

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Originally posted by mjo:

He may lose the arm. And his life, but we can't make him understand he needs aggressive antibiotic therapy ASAP. Too far gone? Too sick?
"RSD" makes me livid!

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quote:

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Originally posted by lymie tony z:

I have heard RSD is caused initially by trauma to the body also but then again lyme likes to affect traumatized body parts and functions...

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