-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
bettyg
Unregistered
posted
I thought the same thing when I saw a PAX TV "DOC" MOVIE about RSD, REFLEX SYMPATHY DYSTROPHY. I had never had heard of it before.
I checked ART DOUGHERTY'S 300 OTHER illnesses mimic lyme disease and RSD was NOT listed on there. I believe he had a RSD BUT NOT the one you are inquiring about.
I have a link for RSD support groups that I learned of when I was on pax's DOC message board.
I was just there now; it still works; and LOTS OFINFO including telling all about it.
otherwise, I loved going to:
www.medlineplus.org the NIH site, USER-friendly, and go to illnesses and type it in there ... loads of info.
Boy, are you a GREAT neighbor checking out things to tell her parents!
IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
When I first developed Lyme symptoms of burning starting in my feet and spreading through my body, there was an article in my local newspaper about a woman athlete with RSD who had been misdiagnosed for years. Her symptoms sounded a lot like mine.
However, RDS usually develops in a dancer or athlete or has an injury that affects the nerves and then the nerves overreact and keep sending pain signals or something to that affect. I knew I had not sustained an injury prior to these symptoms.
So I finally figured out it was Lyme, but RSD can certainly cause some of the similar pain/burning/tingling symptoms we neurological Lymies get.
Also, when I recently saw a podiatrist because of foot pain from either Lyme, Bartonella or the quinolones, he was concerned that the continuing pain could develop into RSD. However he knows nothing about Lyme, he was just talking about things from a pain and foot perspective.
If you do a search through old People magazines, there was an article about Paula Abdul who suffered from pain for years from injuries as a dancer and it was finally diagnosed and treated as RSD - by a rheumatologist I had seen in Los Angeles years ago by the name of Daniel Wallace of Cedars-Sinai who is familiar with RSD (he is a lupus expert).
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
posted
One thing not prominent in RSD information: it can stem from an INFECTION. When you get bitten by a tick that is an injury, one way to develop "RSD." Then from the tick you contract an infection, another way to get "RSD."
Is this just one more garbage can disease made up to hide Lyme and TBD's? What facility developed the "RSD" nametag? Where is it studied?
Funny thing they have support groups already. Pay attention! Support groups are being pushed for everything but Lyme. Why?
I know about RSD because my best Lyme-sick friend called me freaking out last summer: her dad had tick bites all over his arm in our hyper-endemic area. The bites became huge welts. No treatment sought.
Three months later the arm developed a classic ACA rash. (Read about ACA and also look at pictures of RSD.) Her mom and dad would not take a picture of the rash though I begged and begged. By the time I saw the arm it was still pitifully swollen; the skin was so taught it was nearly transparent; blotchy patches covered his palms; the hand was immobile and extremely painful. He told me he had had blue-black patches, like blood blisters, all up and down the arm. The "blood blisters" would come off (Burst?) in the shower.
I knew what I was looking at. The ducks did not.
His WB showed several positive bands though neither IgG or IgM was IGenex or CDC positive. When your body is sick with RSD it is trying to fight the trigger with all it has so having your antibodies complexed would be likely and a "typical" positive unlikely, especially on a duck test.
He may lose the arm. And his life, but we can't make him understand he needs aggressive antibiotic therapy ASAP. Too far gone? Too sick? "RSD" makes me livid!
Posts: 422 | From Luck home | Registered: Sep 2005
| IP: Logged |
quote:Originally posted by mjo: He may lose the arm. And his life, but we can't make him understand he needs aggressive antibiotic therapy ASAP. Too far gone? Too sick? "RSD" makes me livid!
Boy, that is SAD!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
bettyg
Unregistered
posted
mjo,
Thanks for sharing such a tragic story with us all; best wishes that HOPEFULLY he will not lose his arm. Again, to take prompt action. Bettyg
IP: Logged |
posted
Hyperbaric oxygen therapy has helped some RSD cases. Which makes it worth looking into, because not much else does. The mainstream "pain management" path with increasing drugs and nerve blocks and all that is a road that leads nowhere...
I think there are studies on Pubmed that show a connection between Lyme and some RSD/CRPS cases. I think it is the one infectious disease that has been implicated in RSD. Sorry, I don't have a link.
Posts: 204 | Registered: Jan 2005
| IP: Logged |
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I vote yes...
It is a nerve disease or syndrome...
And we all know lyme is something that affects the nerves of our bodies...
I have heard RSD is caused initially by trauma to the body also but then again lyme likes to affect traumatized body parts and functions...
Soooo why not!?
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
quote:Originally posted by lymie tony z: I have heard RSD is caused initially by trauma to the body also but then again lyme likes to affect traumatized body parts and functions...
And Lyme is known to surface when there is a trauma like an automobile accident, surgery, stress, etc.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
The family doesn't have alot of money so I hate to push an expensive test on them if I'm not sure but at least I will give them some of your feedback regarding the similarities of nerve pain/injury/infection.
-------------------- We are spiritual beings on a human journey...
If you can have your friend take a look at this site it may be very beneficial to them. Okay, I am bias toward Hyperbaric Oxygen. However if she does have RSD this may be a life saver and by the way it will also kill the spirochete if she actually has Lyme...
Click on Medical Incredible to see a resent news clip..
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic