LymeNet Flash: DAY OF GREAT JOY! ! !

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Posted by LostCityAgent (Member # 9050) on :

MY FRIENDS ! ! !

I have, now confirmed that I have had my first severe herx! THE WEAKNESS SUBSIDED AS WELL AS THE FATIGUE!

MS, does not have waxing and waning patterns, and THIS WAS THE EXACT HERX THAT DR. P WARNED ME OF!

IT CAME TRUE

I AM SO HAPPY!

HAPPY 4th

John.

Posted by luvs2ride (Member # 8090) on :

Hooray!!!

Bad as Lyme is, it beats MS.

Posted by Lymetoo (Member # 743) on :

Cool!!!!!!!!!!!! [woohoo]

Posted by Michelle M (Member # 7200) on :

Toldja, toldja, toldja!!!!

[Big Grin]

Yippee!!!

(Usually herxes aren't cause for celebration but in THIS case we'll make an exception!!!)

[woohoo]

Michelle

Posted by JRWagner (Member # 3229) on :

John congrats!
However, your statement about MS is not accurate.

MS has "Lapsing and Remitting" and this is one of it's characteristics.

I go to the top MS Doctor (MD and PHd) at Cornell/Presbyterian Hospital in NYC. He acknowledges that the Lyme Disease I have might be responsible for my symptoms and Oligoclonal Bodies in my Spinal Fluid, and has me on Copaxone SubCutaneous, one shot a day, just to be sure.

Peace, Love and Wellness,
JRW

Posted by suki444 (Member # 4261) on :

HI
good going!

I had a pending MS d/x when I started Lyme treatment and then HERXED...and now all the MS type symptoms are gone!

Pubmed is full of research linking spirochetes and MS.

Scotland has a really high rate of MS and of course Lyme disease (co-incidence? I think not!)

Just keep going and make sure you get any co-infections treated...herxing is a good sign and improvement is great news!!!

Emma

Posted by 5dana8 (Member # 7935) on :

yeah John!!!

This must be really reasurring to you to confirm the lyme diagnosis vs the MS.

Now you know and you are on the right road to recovery! [woohoo]

Posted by Andie333 (Member # 7370) on :

john,

Thanks for sharing this good news. It's impossible to cure something when you haven't really figured out what's wrong.

I'm glad you're finally on the right path here.

Andie

Posted by Thereminator (Member # 8324) on :

Must...do...the...DANCE~of~JOY!!! [Wink]

Alan

Posted by LostCityAgent (Member # 9050) on :

IT WAS WONDERFUL!

I was running around with my nieces, lighting fireworks, laughing. I have not had fun like that in forever.

JR, no, MS does not have Lhermitte's sign for 2 hours, then not for 4. It has discreet specific attacks that relapse and remitt.

MS attacks (discreet) when they do happen are constant until the attack is over! LD has the true wax and wan and unpredictable altogether pathology. I would be shocked if I am wrong about this.

This leg weakness thing waxed and wanned for 2 weeks. Unlikely to be caused by MS. Wouldn't you think?

I know so much all there is to know about MS.

MICHELLE.....YOU WERE RIGHT !

[ 05. July 2006, 04:03 PM: Message edited by: LostCityAgent ]

Posted by Jill E. (Member # 9121) on :

John,

The rumbling you hear coming from California is not an earthquake, but me jumping up and down with joy for you.

I know how worried you have been. I, too, initially had an MS diagnosis, and I was the one who finally figured it out, diagnosed myself and found an LLMD who confirmed it through tests and clinical symptoms.

I have a friend in Colorado with MS, although I keep trying to convince him and his family that it could be Lyme.

Anyway, because of him and because of my initial misdiagnosis, I read up a lot on MS and as others have said, there is a relapsing/remitting form - which is what my friend has.

When I first went to my LLMD and was deteriorating rapidly with Lyme symptoms, he said that most Lyme patients wax and wane, yet I was deteriorating steadily. He also said most Lyme patients have one-sided symptoms, but I'm symmetrical. It just shows how this disease manifests so differently in each of us. And, of course, the coinfections confuse the presentation of symptoms even more.

I rarely herx, but after nearly two years of treatment I am starting to have those 28-day flares - another confirmation of Lyme. So you may want to keep a journal of your symptoms and see if you worsen at around the 28-day level.

I'm glad this happened on July 4th for you. It was truly your Independence Day from a big fear.

Take care,
Jill

Posted by Michelle M (Member # 7200) on :

John, you said:

"I no all there is to know about MS."

Now, THAT makes me nervous!! [Eek!]

None of us knows all there is to know.

We read, share experiences, and keep learning!

[hi]

Michelle

Posted by LostCityAgent (Member # 9050) on :

What I mean is that I know enough to distinguish the situation. This was clearly a herxeimer.

Jill: yes I was steadily deteriorating (which r/r msers gen recover between attacks) and started out with 2 attacks that were 30 days each almost 2 years ago.

John.