luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hooray!!!
Bad as Lyme is, it beats MS.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Toldja, toldja, toldja!!!!
Yippee!!!
(Usually herxes aren't cause for celebration but in THIS case we'll make an exception!!!)
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
John congrats! However, your statement about MS is not accurate.
MS has "Lapsing and Remitting" and this is one of it's characteristics.
I go to the top MS Doctor (MD and PHd) at Cornell/Presbyterian Hospital in NYC. He acknowledges that the Lyme Disease I have might be responsible for my symptoms and Oligoclonal Bodies in my Spinal Fluid, and has me on Copaxone SubCutaneous, one shot a day, just to be sure.
Peace, Love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
| IP: Logged |
suki444
Unregistered
posted
HI good going!
I had a pending MS d/x when I started Lyme treatment and then HERXED...and now all the MS type symptoms are gone!
Pubmed is full of research linking spirochetes and MS.
Scotland has a really high rate of MS and of course Lyme disease (co-incidence? I think not!)
Just keep going and make sure you get any co-infections treated...herxing is a good sign and improvement is great news!!!
-------------------- Charter member of the ~ Delux Toasting Club ~ Our Moto: "Take No Prisoners" Posts: 95 | From San Diego | Registered: Nov 2005
| IP: Logged |
LostCityAgent
Unregistered
posted
IT WAS WONDERFUL!
I was running around with my nieces, lighting fireworks, laughing. I have not had fun like that in forever.
JR, no, MS does not have Lhermitte's sign for 2 hours, then not for 4. It has discreet specific attacks that relapse and remitt.
MS attacks (discreet) when they do happen are constant until the attack is over! LD has the true wax and wan and unpredictable altogether pathology. I would be shocked if I am wrong about this.
This leg weakness thing waxed and wanned for 2 weeks. Unlikely to be caused by MS. Wouldn't you think?
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
John,
The rumbling you hear coming from California is not an earthquake, but me jumping up and down with joy for you.
I know how worried you have been. I, too, initially had an MS diagnosis, and I was the one who finally figured it out, diagnosed myself and found an LLMD who confirmed it through tests and clinical symptoms.
I have a friend in Colorado with MS, although I keep trying to convince him and his family that it could be Lyme.
Anyway, because of him and because of my initial misdiagnosis, I read up a lot on MS and as others have said, there is a relapsing/remitting form - which is what my friend has.
When I first went to my LLMD and was deteriorating rapidly with Lyme symptoms, he said that most Lyme patients wax and wane, yet I was deteriorating steadily. He also said most Lyme patients have one-sided symptoms, but I'm symmetrical. It just shows how this disease manifests so differently in each of us. And, of course, the coinfections confuse the presentation of symptoms even more.
I rarely herx, but after nearly two years of treatment I am starting to have those 28-day flares - another confirmation of Lyme. So you may want to keep a journal of your symptoms and see if you worsen at around the 28-day level.
I'm glad this happened on July 4th for you. It was truly your Independence Day from a big fear.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
John, you said:
"I no all there is to know about MS."
Now, THAT makes me nervous!!
None of us knows all there is to know.
We read, share experiences, and keep learning!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
LostCityAgent
Unregistered
posted
What I mean is that I know enough to distinguish the situation. This was clearly a herxeimer.
Jill: yes I was steadily deteriorating (which r/r msers gen recover between attacks) and started out with 2 attacks that were 30 days each almost 2 years ago.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[woohoo]](graemlins/woohoo.gif)
![[Big Grin]](biggrin.gif)
![[Wink]](wink.gif)
![[spinning smile]](graemlins/spinsmile.gif)
![[Eek!]](eek.gif)
![[hi]](graemlins/hi.gif)
Printer-friendly view of this topic