does anyone take this supplement and if so how helpful is it for those with chronic lymes? Posted by Jill E. (Member # 9121) on :
I take it and had already been taking it for years before I got Lyme because it is very heart-healthy. Given that Lyme can cause heart problems, I'm keeping it in my regimen.
Jill
Posted by hurtingramma (Member # 7770) on :
I have taken it in the past and it has helped with the fatigue. I am off it now, as my LLMD doesn't want me taking it for now.
Posted by monkeyshines (Member # 6406) on :
I also take it, I think from reading Dr. B's guidelines. I don't know if I feel any different, but I figure it can't hurt and probably does good overall. It can be quite expensive, though.
monkeyshines
Posted by seibertneurolyme (Member # 6416) on :
After getting sick, but before Lyme and tickborne illnesses were diagnosed a neurologist put hubby on CoQ10 (400 mg minimum). He has had severe neuro symptoms including Parkinsonian tremor which progressed to myoclonus and seizure-like episodes.
A nutritional test at the beginning of his illness showed elevated lipid peroxides (4.9 -- normal should have been less than 1.0). The CoQ10 brought the number down to 1.3 although it did not improve any neuro symptoms.
The neurologist explained that hubby was literally burning up his brain (the brain is 60% fat or lipids). Lipid peroxides are one of several different free radicals. Obviously the CoQ10 did cross the blood-brain barrier and helped with brain inflammation even without antibiotics.
I think if hubby had not taken this he would have had many more than the 4 brain lesions he does have (had 5 at one time and has decreased to 4 with IV antibiotics). Also feel that this has helped some with brain fog.
Bea Seibert
Posted by achey (Member # 6284) on :
my llmd insists that I take 300mg of coq10/day. early on when I had more severe he had me taking 300 mg 3x's/day.
He feels it's very important ofr recovering neuro and heart and muscular sympotms
Posted by bettyg (Member # 6147) on :
I started this 3 wks. ago; it's good for the heart they tell me! May be that helped me also when I went to ER early eve. yesterday! Bettyg
Posted by ChrisBtheLymie (Member # 8916) on :
CoQ10 is a great. My LLMD actually tested my CoQ10 and it was very low. I have been taking 300mg and I did noticed a nice improvement in energy and heart skipps/misbeats.
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