i HAVE EPISODES OF WAKING IN BED-CAN THINK-BUT CANNOT MOVE OR OPEN EYES-HEAD AND ARM I THINK ARE TWITCHING
IF I TRY AND FIGHT TO ROUSE MYSELF FULLY AWAKE IT GETS WORSE, THOUGH SOMETIMES I SUCCEED.
IT IS THE HARDEST FIGHT IN THE WORLD TO ROUSE MYSELF DURING THIS
AFTER AM EXTREMELY WEAK
APPT FOR EEG ON MONDAY
NEURO SAYS IF CAN ROUSE MYSELF TO DO IT
MAKES ONE AFRAID TO SLEEP
AM ON KLONOPIN FOR SEVERE ANXIETY NOW THAT I AM EXPERIENCING AND AM IN A FOG AND UNABLE TO GO ABOUT BUSINESS
FAMILY LOSING PATIENCE
SEIZURES ASSOC WITH LYME? AM UNDIAGNOSED AND ON CEFTIN 500 TWICE A DAY
GOING TO BE RECHECKED BY IGENEX THOROUGH PANEL IN A FEW WEEKS
THANKS
Posted by quic (Member # 5262) on :
I have had similar seizure-like episodes. It seemed like every time I'd wake up I'd experience something frightening and different. Either the exp. you described, or inner shaking, or extreme anxiety, or electric shock feelings, or a blank mind, etc.
After about 5 months of abx therapy everything cleared up.
- Mike
Posted by bettex99 (Member # 8109) on :
Sounds like sleep paralysis. A form or narcolepsy. I had them when in an active untreated infection. Mine went away with amoxy. They were my least favorite symptom (like any are favorites ) and I had plenty of nasties, so I feel for you. Just try to say calm and you come out of it.
Posted by Lymetoo (Member # 743) on :
I've heard several here who experienced that. Could be from herxing.
Be sure that if you get retested that you go off the abx for at least two weeks.
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Please lose the CAPS...very difficult for Lymies to read...and we WANT to read it so we can help you!
Posted by groovy2 (Member # 6304) on :
Yup
several time when waking I could not move at all- I was completely pairlized would last about a hour or so-- very scairy
This only happened for a month or so and it started happening about 2 months after starting low dose of doxi--
Has not happened in over 2 yrs now--Jay--
Posted by Andie333 (Member # 7370) on :
I had both paralysis and seizures when my disease was at its worst.
Like Jay, mine happened in the first two months I was on an antibiotic. For me, it seemed like a herx reaction, as too said.
All brain MRIs were normal.
These symptoms went completely away after several months on antibiotics.
They're really scary, though, and I'm sorry you're having to go through this. Hang in there; it does get better.
Andie
Posted by radiogirl (Member # 9202) on :
Hi Help. Probably the hardest part of beginning treatment with abx is what went on with my mind and body.Anxiety I had before spun wildly out of control. All of my physical ailments came roaring back with a vengence.The fear of, have I made a bad choice with abx, hung over my head.
If your family is having a hard time understanding see if some hard information will set them straight.My husband would pull up some info on the herxheimer reaction and he would read it to me.We had several books on hand that also addressed this.This did two things for my family 1.It calmed me down so that I could care for myself and my daughter.2.It reminded my husband that this is a real experience we were going thru.In time we would be over the worst of it.
And finally I came to this board and one or two others where people are on an abx protocol and dealing with herx and other problems associated with chronic infection.
I hope you have a doctor that is experienced with this sort of illness.That is key to getting not only your health back on board but your family too.Drink alot of water with lemon in it and if your on abx and responding keep your doc informed of your situation.Some docs will let you back off a little so you dont herx so badly.Take heart if your body is now clearing the infection then the worst part should hopefully be behind you soon.God Bless RG