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» LymeNet Flash » Questions and Discussion » Medical Questions » SEIZURE?

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Author Topic: SEIZURE?
i want help
LymeNet Contributor
Member # 9786

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i HAVE EPISODES OF WAKING IN BED-CAN THINK-BUT CANNOT MOVE OR OPEN EYES-HEAD AND ARM I THINK ARE TWITCHING

IF I TRY AND FIGHT TO ROUSE MYSELF FULLY AWAKE IT GETS WORSE, THOUGH SOMETIMES I SUCCEED.

IT IS THE HARDEST FIGHT IN THE WORLD TO ROUSE MYSELF DURING THIS

AFTER AM EXTREMELY WEAK

APPT FOR EEG ON MONDAY

NEURO SAYS IF CAN ROUSE MYSELF TO DO IT

MAKES ONE AFRAID TO SLEEP

AM ON KLONOPIN FOR SEVERE ANXIETY NOW THAT I AM EXPERIENCING AND AM IN A FOG AND UNABLE TO GO ABOUT BUSINESS

FAMILY LOSING PATIENCE

SEIZURES ASSOC WITH LYME? AM UNDIAGNOSED AND ON CEFTIN 500 TWICE A DAY

GOING TO BE RECHECKED BY IGENEX THOROUGH PANEL IN A FEW WEEKS

THANKS

Posts: 225 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
quic
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I have had similar seizure-like episodes. It seemed like every time I'd wake up I'd experience something frightening and different. Either the exp. you described, or inner shaking, or extreme anxiety, or electric shock feelings, or a blank mind, etc.

After about 5 months of abx therapy everything cleared up.

- Mike

Posts: 153 | From Watertown, CT USA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
bettex99
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Sounds like sleep paralysis. A form or narcolepsy. I had them when in an active untreated infection. Mine went away with amoxy. They were my least favorite symptom (like any are favorites ) and I had plenty of nasties, so I feel for you. Just try to say calm and you come out of it.
Posts: 160 | From texas | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I've heard several here who experienced that. Could be from herxing.

Be sure that if you get retested that you go off the abx for at least two weeks.

------------------

Please lose the CAPS...very difficult for Lymies to read...and we WANT to read it so we can help you!

--------------------
--Lymetutu--
Opinions, not medical advice!

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groovy2
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Yup

several time when waking I could not move at all-
I was completely pairlized
would last about a hour or so-- very scairy

This only happened for a month or so and
it started happening about 2 months
after starting low dose of doxi--

Has not happened in over 2 yrs now--Jay--

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Andie333
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I had both paralysis and seizures when my disease was at its worst.

Like Jay, mine happened in the first two months I was on an antibiotic. For me, it seemed like a herx reaction, as too said.

All brain MRIs were normal.

These symptoms went completely away after several months on antibiotics.

They're really scary, though, and I'm sorry you're having to go through this. Hang in there; it does get better.

Andie

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radiogirl
LymeNet Contributor
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Hi Help.
Probably the hardest part of beginning treatment with abx is what went on with my mind and body.Anxiety I had before spun wildly out of control. All of my physical ailments came roaring back with a vengence.The fear of, have I made a bad choice with abx, hung over my head.

If your family is having a hard time understanding see if some hard information will set them straight.My husband would pull up some info on the herxheimer reaction and he would read it to me.We had several books on hand that also addressed this.This did two things for my family 1.It calmed me down so that I could care for myself and my daughter.2.It reminded my husband that this is a real experience we were going thru.In time we would be over the worst of it.

And finally I came to this board and one or two others where people are on an abx protocol and dealing with herx and other problems associated with chronic infection.

I hope you have a doctor that is experienced with this sort of illness.That is key to getting not only your health back on board but your family too.Drink alot of water with lemon in it and if your on abx and responding keep your doc informed of your situation.Some docs will let you back off a little so you dont herx so badly.Take heart if your body is now clearing the infection then the worst part should hopefully be behind you soon.God Bless RG

Posts: 140 | From Texas | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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