I was recently diagnosed as having Lyme instead of MS and was started on 3 antiobitics, an antioxidant, and several supplements.
After 20+ years of dealing with an MS diagnosis with no cure, I'm havng a hard time accepting that I was misdiagnosed for so long and that there is hope.
Since starting the antibiotics, I have been having really bad headaches (which I nomally do not get) and feel totally wiped out.
My questions is this: Are these side effects a good sign that it is Lyme, or would the same thing happen if it's MS?
Posted by savebabe (Member # 9847) on :
Sounds like a lyme herx. Keep going with the abx and you will get better.
Posted by Lymetoo (Member # 743) on :
I don't see any reason that antibiotics would make any difference in symptoms if you had MS.
Sounds like a herx to me too.
Posted by dmc (Member # 5102) on :
welcome to the " Told MS found Out Lyme Club" MS is a disease named for symptom. Multiple Sclerosis, (Multiple Hardening, or Multiple Lesions)
It is similar to LBP in case you didn't know LBP is Lower Back Pain. LBP is a symptom of something causing it, could be herniated disc, pulled muscle etc.
MS is an immune reaction to some pathogen that causes demylation, thus the lesions...lyme can cause lesions, as can chylamidia pneumonia, Epstein Barr Virus etc.
So, got lesions, "got MS".
I too was told MS...me in 1988 found out Lyme in 2003. 17 years with the MS lable, but since finding the cause of the immune response, & treating the cause, one can stop progression.
I just say to any health care provider that I have lyme induced MS. A simple but effective explaination.
Posted by Kawai (Member # 10005) on :
dmc:
Thanks for the reply. How are you doing now? Did you take antibiotics, and how long did it take before you felt better?
Posted by dmc (Member # 5102) on :
I sent you a private message...didn't want to fill this post with my drival.
Posted by TerryK (Member # 8552) on :
Some abx can cause headaches intially. I can personally attest to mino and it's side effect of headaches. Look up the side effects of the meds you are taking.
