posted
I was recently diagnosed as having Lyme instead of MS and was started on 3 antiobitics, an antioxidant, and several supplements.
After 20+ years of dealing with an MS diagnosis with no cure, I'm havng a hard time accepting that I was misdiagnosed for so long and that there is hope.
Since starting the antibiotics, I have been having really bad headaches (which I nomally do not get) and feel totally wiped out.
My questions is this: Are these side effects a good sign that it is Lyme, or would the same thing happen if it's MS?
Posts: 46 | From Wisconsin | Registered: Sep 2006
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Sounds like a lyme herx. Keep going with the abx and you will get better.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
posted
I don't see any reason that antibiotics would make any difference in symptoms if you had MS.
Sounds like a herx to me too.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
welcome to the " Told MS found Out Lyme Club" MS is a disease named for symptom. Multiple Sclerosis, (Multiple Hardening, or Multiple Lesions)
It is similar to LBP in case you didn't know LBP is Lower Back Pain. LBP is a symptom of something causing it, could be herniated disc, pulled muscle etc.
MS is an immune reaction to some pathogen that causes demylation, thus the lesions...lyme can cause lesions, as can chylamidia pneumonia, Epstein Barr Virus etc.
So, got lesions, "got MS".
I too was told MS...me in 1988 found out Lyme in 2003. 17 years with the MS lable, but since finding the cause of the immune response, & treating the cause, one can stop progression.
I just say to any health care provider that I have lyme induced MS. A simple but effective explaination.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
Thanks for the reply. How are you doing now? Did you take antibiotics, and how long did it take before you felt better?
Posts: 46 | From Wisconsin | Registered: Sep 2006
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I sent you a private message...didn't want to fill this post with my drival.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Some abx can cause headaches intially. I can personally attest to mino and it's side effect of headaches. Look up the side effects of the meds you are taking.
Of course, headaches *could* be a herx.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic