Just noticed that there is a new petition on the lyme disease association website to protest the new IDSA guidelines. Here is the link: http://www.lymediseaseassociation.org/ Posted by sometimesdilly (Member # 9982) on :
Thanks for the heads up.
The petition must (hopefully) have just been put up. I was only the 27th person to sign it.
dilly
Posted by Mo (Member # 2863) on :
these guidelines are already having significant ramifications.
this petition must have thousands of signatures asap.
mo
Posted by bettyg (Member # 6147) on :
I received it from someone where I'm on their lyme list.
I sent it to my LYME, FIBRO, CFS lyme lists asking them to sign and have their families/friends too.
YOU CAN NOT SEE ANYONE'S NAME THERE! *************************************
It was no. 53; will take a long time to hit thousands unless EVERYONE COPIED THE LINK and sends to those on your group lists, family, friends, co-workers, church, social clubs you belong to.
Petition is so HARD to understand since they made LONG SOLID BLOCKS OF TEXT! They sure didn't think of us LYMIES when writing it and putting it online! Yes, I sent my comments to Jenifer, LDA's webmaster.
Up for action and awareness!
We'll need to get this as a FEATURE at the top when Lou B returns from vacation. Bettyg Posted by LML2260 (Member # 9615) on :
Thanks Cave - I saw that after I posted this thread. We'll get 'em from all angles!! I figure the more noise we make in whatever form the better - the old greasy wheel and all!
Posted by SForsgren (Member # 7686) on :
Up. This may be the most important thing you can do right now. If you don't sign the petition, please don't complain later when our insurance rights are taken away from us.
Posted by ConnieMc (Member # 191) on :
quote:Originally posted by SForsgren: Up. This may be the most important thing you can do right now. If you don't sign the petition, please don't complain later when our insurance rights are taken away from us.
WHEN? For many, including me, those insurance rights have already been taken away. Please, everyone, sign the petition.
Posted by wrotek (Member # 5354) on :
I sign petition too, but how do You know which number are You since i did not get notification letter
Posted by wrotek (Member # 5354) on :
Oh i see counter now (.^^) sry
Posted by bettyg (Member # 6147) on :
I sent this petition link out to my lyme, fibro, and chronic fatigue members in my LOCAL area plus some of you I've met here online at lymenet.
Received 2 comments back and 1 sent me the petition again; so it is circulating around. Bettyg Posted by Foggy (Member # 1584) on :
Who is this for? Are they going to mail this to the IDSA, CDC & others?
Posted by riversinger (Member # 4851) on :
to the top
LDA will use this where ever it will be politically useful, I'm sure.
[ 23. October 2006, 01:33 AM: Message edited by: riversinger ]
Posted by lymednva (Member # 9098) on :
I was number 691, so word is spreading quickly! Posted by Lisianthus (Member # 6631) on :
5 in my family have signed allready.
Posted by lou (Member # 81) on :
Please keep this on page one so many people will sign. Only takes a minute. And pass it on.
Posted by tickedntx (Member # 5660) on :
For anyone who wants to email their friends and family about this petition, I have posted the text of the email which I sent in case anyone with foggy brain wants to use/borrow from it. (You'll notice I borrowed most of it from someone else.)
[ 26. October 2006, 08:32 AM: Message edited by: treepatrol ]
Posted by karatelady (Member # 7854) on :
I'm number 2119
Posted by SForsgren (Member # 7686) on :
Up to 2289 - we need at least 40,000. Please send the information about the petition to anyone that you know that is willing to sign it in defense of those of us with Lyme.
Posted by Ann-OH (Member # 2020) on :
I am confused. I think I already signed it, but I will give it another go, just in case I didn't.
Does anyone know to whom this petition is addressed? Who or what org. is being petitioned?
I think it is very well written and hope it reaches the goal. Looks like it has a good start.
Then click on "Send to a friend" at the bottom of the page and get your friends and relatives and neighbors and colleagues, and acquaintences etc. to sign as well.
Ann - OH
Posted by SForsgren (Member # 7686) on :
Up. Critical stuff here guys. I am surprised at the small number of people that have signed the petition. If we don't speak up, we will certainly lose this fight.
Posted by Truthfinder (Member # 8512) on :
Signatures up to 2,980.
I just sent the link to over 30 people who are pretty supportive.
Tracy
Posted by Mo (Member # 2863) on :
if we all do our job, we should easily be at 10,000 and counting to 40,000 within just a few days. this is a very simple petition to sign.
the ramifacations of the new 'guidelines' are already hitting the patients.
truth is on our side, the guidelines are arbitrary and capricious -- based on faulty and/or non-existant information -- and ignore a tremendous amount of research base and peer reviewed articles. basiclly, these guys sat around and "talked amongst themselves" - i also think they ought to expand the 'potential conflicts of interest section'.
now is the time to strike. i believe it is better for this movement that they WERE published -- *****IF we move on it NOW.*****
what a load they have spewed this time !!
..now we all have to act and hang them with their own rope.
mo
[ 25. October 2006, 12:21 PM: Message edited by: Mo ]
Posted by Truthfinder (Member # 8512) on :
**UP**
Signers are up to 3,526. It isn't going up very fast.
Are there other Lyme support boards we need to contact, or Fibro, CFS, MS boards....?
I've seen it posted on the chronic pain boards where I used to hang out...
Tracy
Posted by bettyg (Member # 6147) on :
up to 3 6 6 8 now! going really fast since 10-19~
I was just on there and entered my hubbie, step kids/spouse for 4 more!
Are ALL your immediate family members listed? If not, please enter them. BIG THANKS
All were put on MY email address since NONE of them have email or a computer. Bettyg Posted by bettyg (Member # 6147) on :
up; add your family members please!
Posted by LML2260 (Member # 9615) on :
4853 - almost 5000!
Posted by LC (Member # 7070) on :
Nearly 5100 now......
Posted by bettyg (Member # 6147) on :
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