posted
Just noticed that there is a new petition on the lyme disease association website to protest the new IDSA guidelines. Here is the link: http://www.lymediseaseassociation.org/
-------------------- Lynne
"Never doubt that a small group of thoughtful, concerned citizens can change the world. Indeed, it is the only thing that ever has." - Margaret Mead Posts: 63 | From USA | Registered: Jul 2006
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Thanks for the heads up.
The petition must (hopefully) have just been put up. I was only the 27th person to sign it.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
posted
these guidelines are already having significant ramifications.
this petition must have thousands of signatures asap.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
bettyg
Unregistered
posted
I received it from someone where I'm on their lyme list.
I sent it to my LYME, FIBRO, CFS lyme lists asking them to sign and have their families/friends too.
YOU CAN NOT SEE ANYONE'S NAME THERE! *************************************
It was no. 53; will take a long time to hit thousands unless EVERYONE COPIED THE LINK and sends to those on your group lists, family, friends, co-workers, church, social clubs you belong to.
Petition is so HARD to understand since they made LONG SOLID BLOCKS OF TEXT! They sure didn't think of us LYMIES when writing it and putting it online! Yes, I sent my comments to Jenifer, LDA's webmaster.
Up for action and awareness!
We'll need to get this as a FEATURE at the top when Lou B returns from vacation. Bettyg
IP: Logged |
posted
Thanks Cave - I saw that after I posted this thread. We'll get 'em from all angles!! I figure the more noise we make in whatever form the better - the old greasy wheel and all!
-------------------- Lynne
"Never doubt that a small group of thoughtful, concerned citizens can change the world. Indeed, it is the only thing that ever has." - Margaret Mead Posts: 63 | From USA | Registered: Jul 2006
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Up. This may be the most important thing you can do right now. If you don't sign the petition, please don't complain later when our insurance rights are taken away from us.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
quote:Originally posted by SForsgren: Up. This may be the most important thing you can do right now. If you don't sign the petition, please don't complain later when our insurance rights are taken away from us.
WHEN? For many, including me, those insurance rights have already been taken away. Please, everyone, sign the petition.
Posts: 2275 | From NC | Registered: Oct 2000
| IP: Logged |
posted
I sign petition too, but how do You know which number are You since i did not get notification letter
Posts: 636 | From Wroclaw, Poland | Registered: Mar 2004
| IP: Logged |
posted
Please keep this on page one so many people will sign. Only takes a minute. And pass it on.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
For anyone who wants to email their friends and family about this petition, I have posted the text of the email which I sent in case anyone with foggy brain wants to use/borrow from it. (You'll notice I borrowed most of it from someone else.)
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
| IP: Logged |
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I'm number 2119
Posts: 686 | From Northeast Georgia | Registered: Sep 2005
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Up to 2289 - we need at least 40,000. Please send the information about the petition to anyone that you know that is willing to sign it in defense of those of us with Lyme.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I am confused. I think I already signed it, but I will give it another go, just in case I didn't.
Does anyone know to whom this petition is addressed? Who or what org. is being petitioned?
I think it is very well written and hope it reaches the goal. Looks like it has a good start.
Then click on "Send to a friend" at the bottom of the page and get your friends and relatives and neighbors and colleagues, and acquaintences etc. to sign as well.
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
Up. Critical stuff here guys. I am surprised at the small number of people that have signed the petition. If we don't speak up, we will certainly lose this fight.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Signatures up to 2,980.
I just sent the link to over 30 people who are pretty supportive.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
| IP: Logged |
posted
if we all do our job, we should easily be at 10,000 and counting to 40,000 within just a few days. this is a very simple petition to sign.
the ramifacations of the new 'guidelines' are already hitting the patients.
truth is on our side, the guidelines are arbitrary and capricious -- based on faulty and/or non-existant information -- and ignore a tremendous amount of research base and peer reviewed articles. basiclly, these guys sat around and "talked amongst themselves" - i also think they ought to expand the 'potential conflicts of interest section'.
now is the time to strike. i believe it is better for this movement that they WERE published -- *****IF we move on it NOW.*****
what a load they have spewed this time !!
..now we all have to act and hang them with their own rope.
mo
[ 25. October 2006, 12:21 PM: Message edited by: Mo ]
Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
**UP**
Signers are up to 3,526. It isn't going up very fast.
Are there other Lyme support boards we need to contact, or Fibro, CFS, MS boards....?
I've seen it posted on the chronic pain boards where I used to hang out...
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
| IP: Logged |
bettyg
Unregistered
posted
up to 3 6 6 8 now! going really fast since 10-19~
I was just on there and entered my hubbie, step kids/spouse for 4 more!
Are ALL your immediate family members listed? If not, please enter them. BIG THANKS
All were put on MY email address since NONE of them have email or a computer. Bettyg
IP: Logged |
bettyg
Unregistered
posted
up; add your family members please!
IP: Logged |
"Never doubt that a small group of thoughtful, concerned citizens can change the world. Indeed, it is the only thing that ever has." - Margaret Mead Posts: 63 | From USA | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
![[cussing]](graemlins/cussing.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic