Hopefully, I am coming out of the worse symptom for me with this condition.
I am really now sure what is going on. I am pretty much out of it.
I assume it is the neurotoxins creating all the problem.
Whatever it is ...I hate it...and each time hope it is the last time or God will take me home before it happens again.
It would be great to figure out what is going on and be able to deal with it or omit it all together.
Once again, I am looking for possible solutions.
Posted by tothepoorhouse (Member # 8595) on :
Oh Kam, most of us have been there.
I remember not being able to think, just feeling like an alien was in my body and I had no control. I could deal with the pain.....the brain stuff is so much worse.
I wasn't me.....I was almost outside of my body, not caring what happened.
Can you tell us where you are in terms of treatment? We care and will help you as we can. Posted by mag (Member # 8920) on :
hi kam,
i can relate - sounds like the j. herx has stepped in - it is an awful feeling usually i loose my brains and can not function don' give up
Is your doc (llmd ) giving you any thing to help the herxs.....are you taking anything to detox - rid your body of the toxins
mags
Posted by tothepoorhouse (Member # 8595) on :
Oh...and I forgot to mention. I got through the worst by realizing this wasn't me, it was the lyme affecting me physically.
You will be in control again. Just ride it out anyway you can.
At my worst, I couldn't do anything but lay in bed with the covers over my head, cry when I was at my wits end, with earphones on to cut out the sounds of life. Sleep was my friend as it took me out of feeling.
It's not you Kam. Just remember that, ok? It will get better. Let us help you, we have a lot of strong soldiers here with big shoulders to lean on. Posted by notcrazykate (Member # 10458) on :
Kam, I'm so sorry you're having such a bad time.
Sometimes the best we can do is hold on, minute by minute, hour by hour, day by day.
Just don't forget that at the end of one of those minutes or hours or days, there's a light at the end of the tunnel and you'll feel like you again.
And don't forget you're NOT alone, and everyone here is pulling for you!
Good luck and hugs!
Posted by bigmamma (Member # 7181) on :
kam,
you are in my prayers.
Posted by troutscout (Member # 3121) on :
PM me dear and gimme your phone number....let's talk.
Trout Posted by run4fun (Member # 10204) on :
Its a horrid feeling! And it STINKS that you are going through it...just plain STINKS!
Are you on meds? Check out cholestryramine for clearing out neurotoxins... I dont hear much talk
about Cholestyramine on this net...but it sure worked for me. Guess I'm trying to throw out some
sort of anchor of hope and a HUGE wish that this or SOMETHING will fix it all for you...
Life is not fun feeling like you do (me too).
Hang on!!!
run
Posted by 5dana8 (Member # 7935) on :
I am so sorry you are feeling so bad
I have been there many times. Its the pitts!
Make sure to do lots of detox!
These are just a few of my favoite (easy) detox methods: tincups detox tea recipe
Thank you for all the posts. I am able to keep water and food down now and am doing better.
I am concerned that one of these times I will not make it through and need a back up plan.
I don't have what it takes to make the detox tea at this time. Multi tasking is still out.
But, I will print ou the recipe and see if I can get someone to make it for me.
I also will see where things stand with the budget and hopefully order some podi patches. I have used them off and on in the past and felt they helped.
I have not used them in at least a year .
I just took a hot epsom salt bath...well warm..once again the water heater was not up to par.
I am wondering if I need to try and take a Hot Epsom Salt Bath daily to help.
I would like to avoid going through that symptom as much as possible. I Had it even before I was dx and started treatment. IT was the one that scared me the most and still does.
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