LymeNet Flash: Neurotoxins killing me off too

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Neurotoxins killing me off too

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Author

Topic: Neurotoxins killing me off too

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

Hopefully, I am coming out of the worse symptom for me with this condition.

I am really now sure what is going on. I am pretty much out of it.

I assume it is the neurotoxins creating all the problem.

Whatever it is ...I hate it...and each time hope it is the last time or God will take me home before it happens again.

It would be great to figure out what is going on and be able to deal with it or omit it all together.

Once again, I am looking for possible solutions.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

healthywealthywise
LymeNet Contributor
Member # 8595

posted

Oh Kam, most of us have been there.

I remember not being able to think, just feeling like an alien was in my body and I had no control. I could deal with the pain.....the brain stuff is so much worse.

I wasn't me.....I was almost outside of my body, not caring what happened.

Can you tell us where you are in terms of treatment? We care and will help you as we can. [Smile]

Posts: 867 | From PA | Registered: Jan 2006 | IP: Logged |

mag
LymeNet Contributor
Member # 8920

posted

hi kam,

i can relate - sounds like the j. herx
has stepped in - it is an awful feeling
usually i loose my brains and can not function
don' give up

Is your doc (llmd ) giving you any thing to help the herxs.....are you taking anything to detox
- rid your body of the toxins

mags

Posts: 259 | From California | Registered: Mar 2006 | IP: Logged |

healthywealthywise
LymeNet Contributor
Member # 8595

posted

Oh...and I forgot to mention. I got through the worst by realizing this wasn't me, it was the lyme affecting me physically.

You will be in control again. Just ride it out anyway you can.

At my worst, I couldn't do anything but lay in bed with the covers over my head, cry when I was at my wits end, with earphones on to cut out the sounds of life. Sleep was my friend as it took me out of feeling.

It's not you Kam. Just remember that, ok? It will get better. Let us help you, we have a lot of strong soldiers here with big shoulders to lean on. [Smile]

Posts: 867 | From PA | Registered: Jan 2006 | IP: Logged |

notcrazykate
LymeNet Contributor
Member # 10458

posted

Kam, I'm so sorry you're having such a bad time.

Sometimes the best we can do is hold on, minute by minute, hour by hour, day by day.

Just don't forget that at the end of one of those minutes or hours or days, there's a light at the end of the tunnel and you'll feel like you again.

And don't forget you're NOT alone, and everyone here is pulling for you!

Good luck and hugs!

Posts: 106 | From Michigan | Registered: Oct 2006 | IP: Logged |

bigmamma
LymeNet Contributor
Member # 7181

posted

kam,

you are in my prayers.

--------------------

Some day, this mamma's gonna dance!

Posts: 199 | From here | Registered: Apr 2005 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

PM me dear and gimme your phone number....let's talk.

Trout [Wink]

--------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
www.iowalymedisease.com
[/URL]

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

run4fun
Member
Member # 10204

posted

Its a horrid feeling! And it STINKS that you are going through it...just plain STINKS!

Are you on meds? Check out cholestryramine for clearing out neurotoxins... I dont hear much talk

about Cholestyramine on this net...but it sure worked for me. Guess I'm trying to throw out some

sort of anchor of hope and a HUGE wish that this or SOMETHING will fix it all for you...

Life is not fun feeling like you do (me too).

Hang on!!!

run

Posts: 45 | From NJ | Registered: Sep 2006 | IP: Logged |

5dana8
Frequent Contributor (1K+ posts)
Member # 7935

posted

I am so sorry you are feeling so bad [Frown]

I have been there many times. Its the pitts!

Make sure to do lots of detox!

These are just a few of my favoite (easy) detox methods:
tincups detox tea recipe

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1;t=040193
warm baths

One drink lots of lemon water
detox foot pads

Another poster mentioned Cholestryramine. I haven't tryed this but maybe it may help get rid of neuro toxins.

Talk to you LLMD about this. You may need a short break? Or go a little slower?

hang in there

One day or minuet at a time [group hug]

This may not help but it does get better over time - [group hug]

hang in there

www.positivepause.com

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005 | IP: Logged |

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

Thank you for all the posts. I am able to keep water and food down now and am doing better.

I am concerned that one of these times I will not make it through and need a back up plan.

I don't have what it takes to make the detox tea at this time. Multi tasking is still out.

But, I will print ou the recipe and see if I can get someone to make it for me.

I also will see where things stand with the budget and hopefully order some podi patches. I have used them off and on in the past and felt they helped.

I have not used them in at least a year .

I just took a hot epsom salt bath...well warm..once again the water heater was not up to par.

I am wondering if I need to try and take a Hot Epsom Salt Bath daily to help.

I would like to avoid going through that symptom as much as possible. I Had it even before I was dx and started treatment. IT was the one that scared me the most and still does.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

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