But look at those Rheumy's... WOW! After 30 years they've figured out all this?
1: Best Pract Res Clin Rheumatol. 2006 Dec;20(6):1099-118.
Lyme borreliosis.
Schnarr S, Franz JK, Krause A, Zeidler H. Rheumaklinik Ostbayern, Bad Fuessing, Germany.
Lyme borreliosis is a tick-borne infectious disease caused by the spirochaetes Borrelia burgdorferi, B. garinii and B. afzelii.
It comprises a wide spectrum of symptoms affecting skin, musculoskeletal system, heart, eyes, central and peripheral nervous system.
The diagnosis is based on clinical findings in combination with detection of specific IgM and/or IgG antibodies.
Diagnostic problems arise from patients with non-specific symptoms and positive IgG antibody detection.
Adequate antibiotic therapy cures more than 90% of the patients. However, in some patients repeated therapy is necessary and a small number of patients develop chronic arthritis or other features.
While there is currently no vaccine available, prevention of tick bite is the most effective prophylaxis.
PMID: 17127199 [PubMed - in process]
Posted by Marnie (Member # 773) on :
Do you think they like to see their names in print?
Ruin - a - tologists!
Posted by Robin123 (Member # 9197) on :
I think rheumatologists have made a lot of money from all the appointments for a fibromyalgia diagnosis...
Posted by Carol in PA (Member # 5338) on :
quote:Originally posted by Robin123: I think rheumatologists have made a lot of money from all the appointments for a fibromyalgia diagnosis...
Heh, I think you're right.
But...the article is a step in the right direction. I wish rheumatologists would get the right information during their inservice education.
Carol
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Robin123: I think rheumatologists have made a lot of money from all the appointments for a fibromyalgia diagnosis...
oh yeah
Posted by pq (Member # 6886) on :
rheumatological degenerates have always known of INFECTION, as one cause of, "that" which they treat; they've been "on top" of THIS cause, almost from the genesis of the "specialty;" they just played, "dumb," to the infectious, and drug-induced causes, for reasons, "a-to-z;" and, not the least of which, is the self-serving reason of being in the service of making bank deposits in the account by treating with...you name the immune sys. suppresant...instead of(?)...
Posted by Lymied (Member # 6704) on :
Sadly it seems to me that they are practicing denial to assure job security...pretty sad...
Posted by pq (Member # 6886) on :
may infections, and drug induced rheu. arth. make burnt roux of the low-life, criminal dirt-bag,rheumatologists' diencephalons.
for their "range-of-motion" excercise, i recommend a double set of martial arts,nun-chucks(spell. off here), and a slight over dose, then withdrawal, from srri's, so they can "recover," by knocking themselves out!" Posted by dharmacleaning (Member # 2114) on :
Oh dear , don't remind me of my appt. with the rheumatologist! It was ditto, ditto on what you passed along - but as a little bonus, he said he had worked with..........Dr. Steere! Oy.
Posted by nancyb (Member # 10154) on :
Coincidentally, yesterday my daughter had an appointment with a rheumatologist at the Hospital for Sick Children in Toronto - a world famous teaching and research hospital.
The doctor went through my daughter's history from the time she got a strange bite 3 years ago and her health fell apart.
At the end she told my daughter that she knew what was causing the chronic joint pain and that she had a prescription to cure it. My daughter's face brightened up. A cure? Really?
Are you ready for this, folks? The cure is exercise. Yup, just get active and exercise and you will feel all better. She even suggested hiking!
The doctor told us about a patient who was wheelchair bound and she told him to do the same thing - and guess what? He's walking now.
It doesn't seem to matter that my daughter was extremely active when the joint pain started and that she remained active until she could barely walk anymore.
It also doesn't matter that my daughter has a clinical diagnosis of Lyme along with some supporting Igenex bands.
No wonder they are a world renowned hospital - they perform miracles without the bother of all that science stuff.
As for Lyme, she said "I have treated 2 people for Lyme in my 20 year career."
Btw, someone told me that it was a rheumatologist that discovered Lyme. Is this true?
Posted by Robin123 (Member # 9197) on :
What a story, Nancy -- the Toronto hospital that fixes Lyme with exercise.
I believe it was Willy Burgdorfer who discovered the Lyme bacteria in 1981. He was a tick researcher.
My rheum story: I was finally diagnosed with Lyme after a 25-year mystery. Not by any medical prof'l here, but through a nurse online. I then tested positive through Igenex Western blot test and had a fantastic response to clindamycin abx.
I go to see a rheum for med follow-up. He sends out for another test. At my follow-up appt, he comes in the room and says: good news, you're negative.
I see he's ordered an ELISA. It says in the second line that a negative test result does not necessarily mean the person doesn't have Lyme. But does he read that? No.
I tell him 30-40 percent ELISA tests miss Lyme. I've since heard it's a higher miss percentage. He didn't want to hear that.
So I let him have it. Sometimes it's time to tell off a doctor. And I blasted him with the politics of the situation. He said he would write a leter to my doctor. I said so would I. I went in the next day to see my internist with my letter explaining Lyme wars.
What I decided to do after this encounter is I didn't feel like calling him a doctor anymore, since doctors should do doctoring, and this wasn't doctoring -- it was obstructing.
So I am calling him Mr. from now on, or just by his first and last name. I don't care to recognize a duck if they don't care to recognize Lyme.
Posted by Ann-OH (Member # 2020) on :
Before Willy Burgdorfer even discovered the organism that causes Lyme disease, Steere and other rheumatologists were in on the ground floor - Steere having been sent out to investigate the "Lyme Arthritis" in Lyme, CT. in the 70's.
Fibromyalgia was invented in the 80's I believe, and was the diagnosis given lots of Lyme patients, when they didn't have evidence of a tick-bite or when, after short treatment for Lyme, the symptoms are still there.
Here is the website for this article. I don't think the whole article is available, but I would like to read it. http://tinyurl.com/ydv2ne
Again, this is from a German group, and I don't agree these people are jerks. They seem to know something and at least recognize that Lyme can be a long-term deal, they mention neurologic problems, difficult diagnosis and treatment. I don't know where they got their 90% cure, but maybe they did a study just in their area.
Ann-OH
Posted by bettyg (Member # 6147) on :
i think every lymie should take/send a copy of the 12-06 PUBLIC HEALTH ALERT ISSUE to their RHEUMATOLOGIST!
do you think their closed minds could comprehend what they will read?
my pcp of 27 years learned a lot from this issue and commented briefly on it last visit i had with him! i'm his FIRST CHRONIC LYME PATIENT; his first lyme diagnosis! Posted by Aniek (Member # 5374) on :
Hey...my LLMD is a rheumatologist!
Posted by bettyg (Member # 6147) on :
up, i was dead serious about supplying copies of the 12-06 public health alert newsletter to ALL YOUR RHEUMATOLOGISTS that you go to or have gone to!! Posted by Robin123 (Member # 9197) on :
Ann -- thx for the bit on the "invention" of fibromyalgia in the '80s. I remember thinking: this is really strange, all these folks getting it, maybe it's due to pollution of some kind. We met for years in FM groups, trying this and that, nothing really worked, no one had a clue. National newletter and everything.
And there was another group meeting, too: the chronic fatigue folks.
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