LymeNet Flash: Struggling with Bartonella

This is topic Struggling with Bartonella in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/51432

Posted by aklnwlf (Member # 5960) on :

Hey everyone,

I'm still alive and kicking but after getting the picc-line out in July by December developed a hideous case of Bartonella.

Broke out in a rash around heart and had chest pains and big swollen ankles.

So since December I'm on 750 Levaquin and 1600 Sulfa-something. All by mouth.

Am still trying to do some more research about the heart problems. I can't take Minocycline and can't tolerate hyperthermia treatments.

Some type of heart damage from the Bartonella probably.

Good to be back online too. Got a new laptop for my birthday yesterday. Now I'll always be online.

Yeah! [Big Grin]

Posted by aklnwlf (Member # 5960) on :

UP!

Posted by pq (Member # 6886) on :

www.fluoroquinolones.org
and also www.fqresearch.org

Posted by hshbmom (Member # 9478) on :

Happy birthday my friend!

Glad to hear you have a new laptop.

We just got back from the doc in NC. My oldest dd was just Dx with Bartonella too. Dr. wants her gall bladder yanked, but need a HIDA scan first. He wants to check my gb too.

He wants to put my daughter on a picc line for IV antibiotics. She got new pain medicine that sounds promising...Lyrica & Lamictal.

A local doctor put my 2 little ones on amoxi and my oldest son on doxy last week. He's had 2 bouts of non-contagious "flu" in the past 5 weeks. Very suspicious in light of our family problems.

Got our results from Bowen...only hubby & I were CDC positive on the commercial Western blot tests, which don't include the 31 or 34 kDa bands.

Doc in Florida must have misunderstood and told me all 5 tested were CDC positive. He must have also misunderstood when he told us all were tested for coinfections & were negative. The lab director said Bowen doesn't even test for coinfections.

I'm glad you're back online! [hi]

Call me. It's time for another local meeting. Got some good stuff to discuss & a speaker lined up.

Nancy

Posted by aklnwlf (Member # 5960) on :

Hi Hshbmom! Anytime, anyplace let me know.

Northstar, did have a heart work up which was fine but the doc told me he was a country doc and I should go to a specialist.

PQ, thanks for the links.

Anyother tips out there for Bart or BLO?

Posted by NP40 (Member # 6711) on :

Chest pains ? Might be babesia.