LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu
LymeNet on Facebook

LymeNet on Twitter


The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Struggling with Bartonella

- UBBFriend: Email this page to someone!    
Author Topic: Struggling with Bartonella
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

Icon 2 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey everyone,

I'm still alive and kicking but after getting the picc-line out in July by December developed a hideous case of Bartonella.

Broke out in a rash around heart and had chest pains and big swollen ankles.

So since December I'm on 750 Levaquin and 1600 Sulfa-something. All by mouth.

Am still trying to do some more research about the heart problems. I can't take Minocycline and can't tolerate hyperthermia treatments.

Some type of heart damage from the Bartonella probably.

Good to be back online too. Got a new laptop for my birthday yesterday. Now I'll always be online.

Yeah! [Big Grin]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf
Posts: 6918 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

Icon 1 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
UP!

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf
Posts: 6918 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
pq
Frequent Contributor (1K+ posts)
Member # 6886

Icon 1 posted      Profile for pq     Send New Private Message       Edit/Delete Post   Reply With Quote 
www.fluoroquinolones.org
and also www.fqresearch.org
Posts: 2708 | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

Icon 7 posted      Profile for hshbmom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Happy birthday my friend!


Glad to hear you have a new laptop.

We just got back from the doc in NC. My oldest dd was just Dx with Bartonella too. Dr. wants her gall bladder yanked, but need a HIDA scan first. He wants to check my gb too.

He wants to put my daughter on a picc line for IV antibiotics. She got new pain medicine that sounds promising...Lyrica & Lamictal.

A local doctor put my 2 little ones on amoxi and my oldest son on doxy last week. He's had 2 bouts of non-contagious "flu" in the past 5 weeks. Very suspicious in light of our family problems.

Got our results from Bowen...only hubby & I were CDC positive on the commercial Western blot tests, which don't include the 31 or 34 kDa bands.

Doc in Florida must have misunderstood and told me all 5 tested were CDC positive. He must have also misunderstood when he told us all were tested for coinfections & were negative. The lab director said Bowen doesn't even test for coinfections.

I'm glad you're back online! [hi]

Call me. It's time for another local meeting. Got some good stuff to discuss & a speaker lined up.

Nancy
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

Icon 2 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Hshbmom! Anytime, anyplace let me know.

Northstar, did have a heart work up which was fine but the doc told me he was a country doc and I should go to a specialist.

PQ, thanks for the links.

Anyother tips out there for Bart or BLO?

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf
Posts: 6918 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
NP40
Frequent Contributor (1K+ posts)
Member # 6711

Icon 1 posted      Profile for NP40     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chest pains ? Might be babesia.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
NP40
Frequent Contributor (1K+ posts)
Member # 6711

Icon 1 posted      Profile for NP40     Send New Private Message       Edit/Delete Post   Reply With Quote 
Chest pains ? Might be babesia.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
- Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA

| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.