What due you all do for pain. I am in so much pain I can not sleep. All my joints hurt, plus these headaches are enough to drive me up the wall. Last night I sat in the tub for two hours as my legs hurt so bad and couldn't sleep due to the pain. Here I am again tonight suck getting no sleep. Any ideas would be great!
Thank you Posted by CaliforniaLyme (Member # 7136) on :
Hey there!*)!*!
I used the pain to deepen my spirituality. I don't take pain medication of any kind and I was in horrible pain for years. I found that after a while, I could have a wonderful day even in severe pain. HOWEVER, I was still working on agony. When in agony, nothing could really make it a good day. I was still stuck there. BUT I did learn to resolutely look at the positive and do my best to enjoy life and be of service to others every day, regardless of intense pain.
Now I have only a minute of pain a month thank god and it is very mild- a flash in my left knee.
Pain is no fun. If you can take pain meds and believe in them, do take them.
I wish I believed I could take them without trouble but I didn't and don't trust myslf to take pain pills with that amount of pain I was having. I WOULD take pain pills if I was in surgery or broke an arm or some LIMITED hting- but the Lyme pain was possibly endless, ongoing- and I didn't trust myself with forever!!!
Pain may feel like it will kill you but, yup I am going to write it- if it doesn't kill you it will make you stronger*!)!!! Seriously, Hang in there*)!*! Best wishes, Sarah
Posted by lymeinhell (Member # 4622) on :
For joint pain due to inflammation: Zyflamend
All natural anti-inflammatory - got me off RX NSAIDs.
Both great places to get it.
Posted by Lymetoo (Member # 743) on :
Mangosteen juice....be sure to get Xango brand.
Hydrocodone when you can't function at all.
Posted by Nebula2005 (Member # 8244) on :
Pills suck, but sometimes there's nothing else.
What has helped me--
Ambien for sleep. Hydrocodone for pain.
Also, for pain: butalbital, acemtaminaphen and caffeine. I think the brand name is Fioricet? Butalbital is a weak barbiturate, but it's not a controlled substance so doctors may be more willing to prescribe it. You're not supposed to take it with doxycycline, I think it interferes with it being absorbed.
It's used for tension headaches.
Maybe your doctor whould let you drop your antibiotic dose temporarily.
Pain is the worst of my symptoms. I hope you can find something to get you through.
Posted by Ann in CA (Member # 97) on :
During the years I have had lyme there have been several periods when the pain was so bad I could not sleep. (These were almost always when I was off abx or in search of an LLMD. The worst was for 9 sleepless nights (shoulder pain which turned out to be frozen shoulder-caused by lyme inflammation) (My local doc wanted to give me steroid shots-luckily by then I knew better)
I ended up seeing an LLMD acupuncturist. He did acupuncture and prescribed ice and bromelain and turmeric capsules, and physical therapy (electrical stimulation machine until I could move and then excercises) (as well as anti-inflammatory diet-lots of wild salmon, etc, no sugar, white flour, you can find lists online.
I can remember deep bone and muscle pain that was almost as bad, and the only thing that helped was getting back on abx--but eventually, after years of different abx, the pain is pretty much gone, and only damage is to one knee and eyes.
I have only had acupuncture that one period, but without it I do not know how long I could have held out. Just believe, if you stick with treatment from a real LLMD, you should get better.
Best wishes.
Ann
Posted by iceskater (Member # 8655) on :
I have chronic fatigue issues, vision problems, in addition to pain. The pain is joint pain and also ocular pain, which is the most difficult to combat. I am on Darvocet, prn for pain. I have been on minocycline for the lyme and it appears to be helping additionally with the pain issues. Hope that you improve and the pain subsides.
Posted by hopeful123 (Member # 3244) on :
pain is difficult enough during the day, but at night, that's a different story. i am taking amytripriptaline (sp?) 10 mg. for pain and to help promote sleep. i also take nsaid for achey pains and even some pain like urinary tract infections. a small amount of sonata for sleep, but at most a couple of times a week is all.
everybody is different when it comes to pain. you can ask others for input, but it's really best not to compare yourself to someone else, imo.
![[bonk]](graemlins/bonk.gif)
are enough to drive me up the wall. Last night I sat in the tub for two hours as my legs hurt so bad and couldn't sleep due to the pain. Here I am again tonight suck getting no sleep. ![[confused]](graemlins/confused.gif)
Any ideas would be great!![[group hug]](graemlins/grouphug.gif)
![[hi]](graemlins/hi.gif)