As a bit of background I was sick for 5 years before finding out I had Lyme. I had been told I had Fibro and probably RA, MS, or Lupus.
I found out I had Lyme and found a fantastic LLMD in December of 2005. When I first started treatment with Ketek I got so much better so quickly I was sure I would be well within a year.
I then had a little relapse and found out it was Babs. We treated that for 7 months and the tests are now negative and the obvious Babs symptoms are gone.
Now, 15 months after starting treatment I feel worse than I did 6 months into treatment. I am getting symptoms that I didn't have before. What the heck is going on?
I used to have joint pain, neuropathy pain, muscle pain, bladder spasms, fatugue, numbness and tingling, and tremors as my worst sympotms.
I now have insane headaches, dizziness, brain fog, and fatigue. These headaches are killing me.
I just had a second CD57 and I am still in the teens.
My LLMD has switched meds again but... This is my 4th combo.
Posted by eddog (Member # 8844) on :
My story is very much like yours...original diagnosis was MS but come to find out it was Babesia and Lyme. Felt much better after treating Babs but this Mino/Flagyl stuff for Lyme is knocking the stuffing out of me. Hang in there!
Posted by lucy96734 (Member # 8372) on :
Eddog- thanks for the words of support
Lyme Ed- I don't think it is yeast but am not sure how to know for sure. About 7 months into treatment I started having yeast issues (female kind) and started Diflucan, 1 every 5 days. It seems to have kept everything in check.
I have been sugar free for 4 years, even before I knew I had Lyme as a anti-inflammation measure.
I eat low-carb, just fruits and veggies.
I don't think it is yeast but... would be open to ways to tell for sure.
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