LymeNet Flash: rise and fall of symptoms

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»	LymeNet Flash » Questions and Discussion » Medical Questions » rise and fall of symptoms

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Topic: rise and fall of symptoms

lucy96734
LymeNet Contributor
Member # 8372

posted

As a bit of background I was sick for 5 years before finding out I had Lyme. I had been told I had Fibro and probably RA, MS, or Lupus.

I found out I had Lyme and found a fantastic LLMD in December of 2005. When I first started treatment with Ketek I got so much better so quickly I was sure I would be well within a year.

I then had a little relapse and found out it was Babs. We treated that for 7 months and the tests are now negative and the obvious Babs symptoms are gone.

Now, 15 months after starting treatment I feel worse than I did 6 months into treatment. I am getting symptoms that I didn't have before. What the heck is going on?

I used to have joint pain, neuropathy pain, muscle pain, bladder spasms, fatugue, numbness and tingling, and tremors as my worst sympotms.

I now have insane headaches, dizziness, brain fog, and fatigue. These headaches are killing me.

I just had a second CD57 and I am still in the teens.

My LLMD has switched meds again but... This is my 4th combo.

--------------------
Lucy

Posts: 342 | From Hawaii | Registered: Nov 2005 | IP: Logged |

eddog
Member
Member # 8844

posted

My story is very much like yours...original diagnosis was MS but come to find out it was Babesia and Lyme. Felt much better after treating Babs but this Mino/Flagyl stuff for Lyme is knocking the stuffing out of me. Hang in there!

Posts: 11 | From Maryland | Registered: Feb 2006 | IP: Logged |

lucy96734
LymeNet Contributor
Member # 8372

posted

Eddog- thanks for the words of support [Smile]

Lyme Ed- I don't think it is yeast but am not sure how to know for sure. About 7 months into treatment I started having yeast issues (female kind) and started Diflucan, 1 every 5 days. It seems to have kept everything in check.

I have been sugar free for 4 years, even before I knew I had Lyme as a anti-inflammation measure.

I eat low-carb, just fruits and veggies.

I don't think it is yeast but... would be open to ways to tell for sure.

--------------------
Lucy

Posts: 342 | From Hawaii | Registered: Nov 2005 | IP: Logged |

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