Ive been using this for nerve pain caused by lyme, but noticed that a side affect is low WBC :-(
The last few time ive had my WBC ran it has been lower than usual. 4.1. its usual ranges from 4.5-6
I just had labs run today, but wanted to ask anyone if they have used this and had a problem with low WBC.
If this drug does this, it cant be good using it while dealing with lyme....right?
I know some abx also lower WBC, it just confuses me why drugs lower WBC.
thanks
Posted by lesley1954 (Member # 7626) on :
Interesting ... I've been on Neurontin and my WBC counts have been low the last two times (3.6 and 3.2, I think). I never connected the two. I'm on several antibiotics as well so it may be hard to say which is which. I hope others respond.
Posted by cantgiveupyet (Member # 8165) on :
Up for more opinions?
Posted by pab (Member # 904) on :
I don't know the answer to your question but I wanted to ask if you have tried Lyrica for nerve pain.
My son takes Lyrica and doesn't have any side effects.
Posted by cantgiveupyet (Member # 8165) on :
Thanks pab, i did try lyrica, and i had more side affects with that, but it was in the beginning of my illness.
its just so frustrating, i cant take abx because of yeast, now i might not be able to take this, if my WBC is being affected......ugh Posted by SouthernCO (Member # 11167) on :
I've had 2 bad reactions to Neurontin over the past 8 years. The same rheumatologist prescribed it again recently after I developed a rash on the low back and arms 8 years ago. I'd forgotten that I had a reaction before and so did the Dr. Guess my heirs would have had a pretty good malpractice case if I died, and my records were examined closely.
I'm wondering now if the rash may have been an aggravation of Lyme bacteria in the CNS? I have pictures which show a rash very similar to the pictures I have seen of Lyme rash. Will show them to my LLMD at my 1st appt. in 2 weeks. Has anyone else developed a rash after taking Neurontin?
The second reaction was a flu-like infection which came on within a day of taking Neurontin. When I looked at the side-effects, one of the more obscure ones was infection. Obviously, this could have been a result of lowered white blood cell count. Or again, it might have been an aggravation of the Lyme bacteria. Any opinions out there?
BTW, the Dr. denied Neurontin caused the infection even though the side-effect is there in black-and-white. Typical of my experiences over the past 12+ years.
Neurontin is the only drug which caused a reaction for me although I haven't been put on antibiotics as of yet.
Hope this information is helpful, and good luck to all with your treatment.
Dave
Posted by SouthernCO (Member # 11167) on :
When I looked at www.neurontin.com "infection" is actually one of the common side-effects of Neurontin.
Dave
Posted by cantgiveupyet (Member # 8165) on :
thanks Dave,
I did get a cold after starting it...hmmm.
infection probably is from it lowering the WBC.
My urologist gave this to me, but they never run labs......luckily i have other dr that do.
Can we still fight lyme with the low WBC?
Posted by SouthernCO (Member # 11167) on :
I think low WBC would be very dangerous for anyone who has Lyme infection as a primary problem. Hope someone else chimes in here as I am very new to Lyme (although I've had it for 12+ years).
Ultram was working best for me until my PCP talked me out of using it because of possible seizures. So now I'm back on hydrocodone.
My knee pain escalated about 4 years ago after an epidural steroid injection at L4-L5 and L5-S1. After reading this forum I found (4 years too late) that steroids are a no-no.
Nothing (including morphine, Lidocaine patches, or Duragesic patches) helps much with my knee pain. The biggest help so far was when I stopped eating dairy.
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