posted
Interesting ... I've been on Neurontin and my WBC counts have been low the last two times (3.6 and 3.2, I think). I never connected the two. I'm on several antibiotics as well so it may be hard to say which is which. I hope others respond.
Posts: 164 | From USA | Registered: Jul 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Up for more opinions?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I've had 2 bad reactions to Neurontin over the past 8 years. The same rheumatologist prescribed it again recently after I developed a rash on the low back and arms 8 years ago. I'd forgotten that I had a reaction before and so did the Dr. Guess my heirs would have had a pretty good malpractice case if I died, and my records were examined closely.
I'm wondering now if the rash may have been an aggravation of Lyme bacteria in the CNS? I have pictures which show a rash very similar to the pictures I have seen of Lyme rash. Will show them to my LLMD at my 1st appt. in 2 weeks. Has anyone else developed a rash after taking Neurontin?
The second reaction was a flu-like infection which came on within a day of taking Neurontin. When I looked at the side-effects, one of the more obscure ones was infection. Obviously, this could have been a result of lowered white blood cell count. Or again, it might have been an aggravation of the Lyme bacteria. Any opinions out there?
BTW, the Dr. denied Neurontin caused the infection even though the side-effect is there in black-and-white. Typical of my experiences over the past 12+ years.
Neurontin is the only drug which caused a reaction for me although I haven't been put on antibiotics as of yet.
Hope this information is helpful, and good luck to all with your treatment.
Dave
Posts: 175 | From Colorado | Registered: Feb 2007
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posted
I think low WBC would be very dangerous for anyone who has Lyme infection as a primary problem. Hope someone else chimes in here as I am very new to Lyme (although I've had it for 12+ years).
Ultram was working best for me until my PCP talked me out of using it because of possible seizures. So now I'm back on hydrocodone.
My knee pain escalated about 4 years ago after an epidural steroid injection at L4-L5 and L5-S1. After reading this forum I found (4 years too late) that steroids are a no-no.
Nothing (including morphine, Lidocaine patches, or Duragesic patches) helps much with my knee pain. The biggest help so far was when I stopped eating dairy.
Good luck, Dave
Posts: 175 | From Colorado | Registered: Feb 2007
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