This is topic IGENEX reuslts, question? in forum Medical Questions at LymeNet Flash.


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Posted by KarenB (Member # 10510) on :
 
Hi all,

It has been awhile since I have written but rest assured I have been reading here and there. My llmd did another lyme test on me after my first one from my primary care 2 yrs ago.

I would like some input. My llmd thinks I don't have fibromyalgia, depression etc. He believes it is from the lyme. I am do to see him at the end of the month.

IgM Western Blot

18 +++
30 +
**34 +
**39 IND
66 +

IgG Western Blot

**41 +
58 +

I have never had a positive by CDC or Igenex. So do I have it, is it recent, old? Help, would like your opinions.

Thank you so much,

Karen
 

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Posted by SForsgren (Member # 7686) on :
 
Looks consistent with Lyme. No real way to tell old or new. Get a CD57 next.
 

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Posted by KarenB (Member # 10510) on :
 
Thanks Scott,

I have never had a CD 57. I will ask him when I see him at the end of the month.

Karen
 

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Posted by SForsgren (Member # 7686) on :
 
Or call/fax him now to get an order, do the test, and then discuss the results at the end of the month when you see him...
 

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Posted by CaliforniaLyme (Member # 7136) on :
 
CD57 is expensive and certainly not diagnostic!!

And the doctor who discovered its utility saved my life!!!

Welcome to the board*)!*!
 

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Posted by KarenB (Member # 10510) on :
 
Thanks,

How expensive is the CD 57 test? My money situation is not to great right now.


Karen
 

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Posted by CaliforniaLyme (Member # 7136) on :
 
Around here it can run a couple hundred- that is a lot to someone like me! And it was useless with me- helped with my daughter but not regarding diagnosis.

Look, if your doc thinks you have Lyme- that is what matetrs.

Re testing- negative tests do NOt mean you don't have it and all that a positive antibody test means is that at SOME point in your life you had it!! Does not mean it is active- HOWEVER- you have ACTIVE symptoms and assuming your doctor has done all the necessary differentials to rule out other things then you have Lyme!

The good news is- I know plenty of people like myself who have gotten rid of things like fibromyalgia completely with longterm abx.
My fibromyalgia is 100% GONE and I am so glad because it sucked!!!!!!!!!!!!!!!!!!!!!

I hope yours goes away too-
Best wishes,
Sarah
in CA
 

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Posted by SForsgren (Member # 7686) on :
 
The opposite can also be true. I have seen IgeneX tests that were very negative and yet a CD57 of 30 which the LLMD also then used to support a diagnosis.
 

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Posted by radfaraf (Member # 11909) on :
 
Where are the prices for the igenex tests? I only see ones if you are getting a tick tested. What if you are getting yourself tested?
 

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Posted by WildCondor (Member # 434) on :
 
Call up IgeneX and ask about the prices.
 

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Posted by CaliforniaLyme (Member # 7136) on :
 
But CD57 is NOT diagnostic!!! Yes, supportive, but so is any nonspecific symptom... Bottom line, Lyme disease is a clinical diagnosis. The tests suck re diagnosis for Lyme, CD57 included! If you have had a thorough Differential Diagnosis and had everything else ruled out and are symptomatic, that is what matters-
 

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Posted by Lymetoo (Member # 743) on :
 

quote:

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Originally posted by radfaraf:
Where are the prices for the igenex tests? I only see ones if you are getting a tick tested. What if you are getting yourself tested?

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