It has been awhile since I have written but rest assured I have been reading here and there. My llmd did another lyme test on me after my first one from my primary care 2 yrs ago.
I would like some input. My llmd thinks I don't have fibromyalgia, depression etc. He believes it is from the lyme. I am do to see him at the end of the month.
IgM Western Blot
18 +++ 30 + **34 + **39 IND 66 +
IgG Western Blot
**41 + 58 +
I have never had a positive by CDC or Igenex. So do I have it, is it recent, old? Help, would like your opinions.
Thank you so much,
Karen
Posts: 151 | From Massachusetts | Registered: Nov 2006
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SForsgren
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Looks consistent with Lyme. No real way to tell old or new. Get a CD57 next.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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I have never had a CD 57. I will ask him when I see him at the end of the month.
Karen
Posts: 151 | From Massachusetts | Registered: Nov 2006
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SForsgren
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posted
Or call/fax him now to get an order, do the test, and then discuss the results at the end of the month when you see him...
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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CaliforniaLyme
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posted
CD57 is expensive and certainly not diagnostic!!
And the doctor who discovered its utility saved my life!!!
Welcome to the board*)!*!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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How expensive is the CD 57 test? My money situation is not to great right now.
Karen
Posts: 151 | From Massachusetts | Registered: Nov 2006
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CaliforniaLyme
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Around here it can run a couple hundred- that is a lot to someone like me! And it was useless with me- helped with my daughter but not regarding diagnosis.
Look, if your doc thinks you have Lyme- that is what matetrs.
Re testing- negative tests do NOt mean you don't have it and all that a positive antibody test means is that at SOME point in your life you had it!! Does not mean it is active- HOWEVER- you have ACTIVE symptoms and assuming your doctor has done all the necessary differentials to rule out other things then you have Lyme!
The good news is- I know plenty of people like myself who have gotten rid of things like fibromyalgia completely with longterm abx. My fibromyalgia is 100% GONE and I am so glad because it sucked!!!!!!!!!!!!!!!!!!!!!
I hope yours goes away too- Best wishes, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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SForsgren
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posted
The opposite can also be true. I have seen IgeneX tests that were very negative and yet a CD57 of 30 which the LLMD also then used to support a diagnosis.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Where are the prices for the igenex tests? I only see ones if you are getting a tick tested. What if you are getting yourself tested? Posts: 526 | From NJ | Registered: May 2007
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WildCondor
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posted
Call up IgeneX and ask about the prices.
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CaliforniaLyme
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But CD57 is NOT diagnostic!!! Yes, supportive, but so is any nonspecific symptom... Bottom line, Lyme disease is a clinical diagnosis. The tests suck re diagnosis for Lyme, CD57 included! If you have had a thorough Differential Diagnosis and had everything else ruled out and are symptomatic, that is what matters-
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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quote:Originally posted by radfaraf: Where are the prices for the igenex tests? I only see ones if you are getting a tick tested. What if you are getting yourself tested?
You can get the IgG and the IgM from Igenex for around $200. It's worth every penny to find out if you have it!! www.igenex.com
Karen....If that was MY test result, I would continue treatment! Definitely!!
Right now I don't think I can afford the test. Everything else has been ruled out by my primary care. My llmd calls it positive because of my symptoms. So I will continue on with treatment and hopefully soon start to feel better.
Right now I am not on any abx. I am on cumada, adrenal support,parsley detox, burbur, amantilla, pinella, trace minerals, wobenzym N, Magnesium malate. I will be taking quina, algas, samento, and banderol later on into the protocol. My llmd is giving me a break from abx.
I appreciate all your opinions.
Thanks,
Karern
Posts: 151 | From Massachusetts | Registered: Nov 2006
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