I was doing much better it seemed for a while (was able to surf, play soccer again) but recently the last two months i have gone down hill fast.
I am not sure why, although i did switch from zithromax to biaxin nothing else really changed. My muscle twitching came back full strength, my tongue and jaw have become very weak (especially my left side), I keep slurring my speach and my jaw gets tired chewing.
I am taking 1.2 million units every three days of bicillan. The doc just started me on Mepron twice a day, I have been on nistatin, and xanax about 2 miligrams a day so that i can swallow (for some reason xanax helps me and i dont know why). I am slo back on zithromax 500 miligrams a day.
I am also taking oxydyfelus 1 pill after abx everyday. If anyone has any pointers to help with my condition I would be greatful for any input. I am having a very difficult time making it through a day of work (always so tired and weak).
Posted by savebabe (Member # 9847) on :
It could be a herx from the mepron. Herxing from babs can really tough. Hopefully you will start feeling better soon.
Posted by groovy2 (Member # 6304) on :
Hey Luke
Did the bad symptoms start before you started taking Mepron?
What infections did you figure out you have?
--Jay--
Posted by luke339 (Member # 8580) on :
I tested highly positive for erichliosis a year ago. Also had a bunch of positive bands and the doc also thinks its babs. The doc says that my Lyme got treated and now babs is rearing is ugly head out of no where. Who knows, I just hate this jaw weakness and tongue issues.
if it werent for xanax i would have no relief at all, for some reason it relaxes my tongue so i can talk and use my jaw. Did anyone else have this tongue rpoblems like me (and muscles wasting)?
Posted by groovy2 (Member # 6304) on :
hey Luke
Did these symptoms start before med change???
Give more info - hard to give good answer with the info you have supply--
Herxes-- Babs treatment causes ALL kinds of crazy stuff- new symptoms to pop up --Quickly--
Having gone threw a little over One year of Babs treatment symptoms that come and go do not surprise me much anymore --
Somewhat different for for everybody tho -
I guess if I started floating around the room I would be surprised --
I have been herxing off and on for the whole time I have been doing Babs treatment-
Babs herxes Feel different from lyme herx--
Usually Much worse - No Fun -
For me the Herxes have lessened in effect as treatment goes on --AAAhhh
--Jay--
Posted by luke339 (Member # 8580) on :
Symptoms started before i switched treatments. I started getting worse at the beggining of April. The only thing that changed within that amount of time was that i was feeling better so i started doing more activities.
It all started to go bad when i was upemployed for a few weeks (in between switching jobs) and i went jogging on the beach. After a few days of 15 minute jogs on the beach my jaw felt like it was hanging off of my face on the left side.
I started twitching very badley again and my tongue started to be affected again. Its to the point where i am slurring my speach now which is a little scary. Dr. thinks its babs so he put me on mepron for babs. I dont get how i was feeling better and able to things and now i cant, i get tired in like 10 minutes.
swallowing is wicked tough also. Anyway i hope i was more clear. Thanks Jay.
Posted by groovy2 (Member # 6304) on :
Hey luke
This is what I have seen happen to me and others-
Treat Lyme only and other bugs move in to take there place somewhat --
Maybe that Could be what is happening to you also -
Most docs will only treat one infection at first so that your body dose not get overwhelmed by the herx reaction -
Exercise seems to bring on these effects on many folks also-- There was a post about this last week--
I cut down on my exercise somewhat because I had symptom flair after- Doing To Much - several times so I am just taking it easy and working my way back up slowly --