LymeNet Flash: IV Rocephin causing Neck Problems

This is topic IV Rocephin causing Neck Problems in forum Medical Questions at LymeNet Flash.

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Posted by sfcharm (Member # 9392) on :

Hi everyone,

I'm new to this site but not new to lyme. I've been treating lyme since I tested postive via Western Blot in June of 06. After a year of oral antibiotics and about a 70% return of how I felt pre-lyme I just recently started IV Rocephin.

I am only three weeks into Rocephin IV 2 grams daily and have developed some neck ache/pain. It feels just like a stiff neck. I have a friend who just finished IV Rocephin after six months and she had experienced the same thing.

I never had neck issues with Lyme unless you consider three cervical fusions part of lyme. It feels like it's creeping into my jaw area?

Any one have any similar symptoms?

Barb in San Francisco

Posted by Skyler (Member # 11549) on :

I know when I started with the Rocephin, many of my lyme symptoms became worse, more painful. Think of it this way, before your symptoms were from a natural of dying sprockets releasing neurotoxin. This neurotoxin is what causes some of the symptoms. Now, you have abx (anti-biotics) in your system, killing more all at once than in the past. You have more toxin in your system, and the more, the worse your symptoms can get.

If you have not heard about it before, look up The Herxheimer Reaction. It further explains what will happen durring your treatment.

Hang in there babe!
[Big Grin]

Still, if you are worried about it, call your doctor. It is always best to contact your doctor if you feel something is a little off.

Posted by gopats (Member # 5218) on :

I'm having the same problem. My neck, my head and into my spine. New added bonus - I pick anything up and both my arms shake....Unbelievable. Hang in there. I'm on my 10th week of IV rocephin. 4g per day. My first 8 weeks were 2g per day.

Posted by lyme in Putnam (Member # 11561) on :

If it helps any, I can't turn my neck and I've been on rocephin going on my 3rd week.Down to my shoulder blade. My mind feels like it's burning and feel disconnected from myself. I hope your treatment goes well and you improve much. Hang in there. What choice do we have? There's relief in sight. Be well,

Lyme in Putnam

Posted by yourtroubl (Member # 11087) on :

I too am having neck problems. Its the same side the Groshong catheter is in.

I called infusion company and they said its not the Rocephin.

I wonder if its how they positioned us to put the line.