I'm new to this site but not new to lyme. I've been treating lyme since I tested postive via Western Blot in June of 06. After a year of oral antibiotics and about a 70% return of how I felt pre-lyme I just recently started IV Rocephin.
I am only three weeks into Rocephin IV 2 grams daily and have developed some neck ache/pain. It feels just like a stiff neck. I have a friend who just finished IV Rocephin after six months and she had experienced the same thing.
I never had neck issues with Lyme unless you consider three cervical fusions part of lyme. It feels like it's creeping into my jaw area?
Any one have any similar symptoms?
Barb in San Francisco
Posts: 281 | From san francisco | Registered: Jun 2006
| IP: Logged |
posted
I know when I started with the Rocephin, many of my lyme symptoms became worse, more painful. Think of it this way, before your symptoms were from a natural of dying sprockets releasing neurotoxin. This neurotoxin is what causes some of the symptoms. Now, you have abx (anti-biotics) in your system, killing more all at once than in the past. You have more toxin in your system, and the more, the worse your symptoms can get.
If you have not heard about it before, look up The Herxheimer Reaction. It further explains what will happen durring your treatment.
Hang in there babe!
Still, if you are worried about it, call your doctor. It is always best to contact your doctor if you feel something is a little off.
posted
I'm having the same problem. My neck, my head and into my spine. New added bonus - I pick anything up and both my arms shake....Unbelievable. Hang in there. I'm on my 10th week of IV rocephin. 4g per day. My first 8 weeks were 2g per day.
Posts: 298 | From Maine | Registered: Jan 2004
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
If it helps any, I can't turn my neck and I've been on rocephin going on my 3rd week.Down to my shoulder blade. My mind feels like it's burning and feel disconnected from myself. I hope your treatment goes well and you improve much. Hang in there. What choice do we have? There's relief in sight. Be well,
Lyme in Putnam
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/