I ma having mobility issues in my joints and would really appreciate some support and feedback. has anyone here had this symptom what abx helps best with lyme in the joints.
i can barely bend my spine and knees did any abx help anyone with this and what kind please share thanks
Posted by clpgotlyme (Member # 7875) on :
I believe Ceftin has really helped this symptom for me. My knee pain came back with a vengence when I tried to go off it last year! Hope you are feeling better soon. Hugs, Cindy
Posted by Vermont_Lymie (Member # 9780) on :
Hi Lynn, My llmd uses plaquenil for this. Hope you are well!
Posted by treepatrol (Member # 4117) on :
Hey hey Citrus trying to find that certain abx by asking what one worked for us probaly wont cut it. Because it seems to be different in each individual. What you need is a good abx that penitrates that deeply. Heres a link Abxs that penitrate ABX'sPenitrates I like Biaxin,Minocycline,Doxy,Septra or Bactrim,Ceftin hard gut flora,Tindamax,Flagyl,Levaquin watch that one. Theres tons of good ones. You need one that is Bactricidal, and one that is bacteriostatic.
Posted by valymemom (Member # 7076) on :
I agree with Tree. Yet, I can agree that ceftin got rid of the knee pain for me, too.
IV rocephin and IM bicillin are good lyme treatments and most often arthritis is associated with Bb. Yet, I see arthritis mentioned with bart and babs..... so I am clueless.
Are you going to see an llmd?
Posted by chiz (Member # 10301) on :
hi Citruslyme
My son was found to have HLA DR4 antigen. On this basis his LLMD put him on plaquenil and it resulted in an immediate improvement with his joint pains. Other LLMDs recommend plaquenil for other reasons e.g alters pH intracellularly to make zithromax more effective.
Plaquenil is only licenced for use in rheumatoid arthritis, which is thought to be an autoimmune aetiology (I think that's spelt etiology in american English). It was originally a malaria treatment but no longer recommended for this as it is associated with high levels of resistance. Interestingly, I am sure that my son improved on plaquenil because it was treating babesia which we now think he has as a coinfection. But his joint pain improved within days of starting plaquenil.
About 20% of caucasians have HLA DR4 antigen and they are at increased risk of rheumatoid arthritis and having an adverse reaction to vaccination with lyme disease vaccine.
Maybe worth asking your LLMD about?
Chiz
Posted by luvs2ride (Member # 8090) on :
Or your problem may not be the bacteria and in that case abx are not the answer.
You may have food sensitivities. These cause an immune response and are VERY COMMON for those of us with chronic illness. You can develop new sensitivities at any time just as you can become allergic to medication at any time.
My doctor identified egg whites, lettuce, lobster, red bell peppers and halibut as food sensitivities. Stopping these foods initially caused a rash on parts of my body as it expelled toxins. The joint inflammation and pain reduced substantially. Pretty good for someone with Rheumatoid Arthritis. My life returned to normal with minor joint pain. I went from a high moderate RA to weak positive.
That was one year ago. Recent food allergy testing shows a new allergy to diary casein and soy. Stopping those foods has eliminated the joint pain altogether. I haven't had a retest for RA but I bet I am currently in full remission.
Luvs
Amazing but true. Hopefully, once the disease is gone, the food sensitivities will be also.
Luvs
Posted by Squeegee (Member # 7219) on :
Minocycline improved my knee pain and the addition of Plaquenil eliminated it.
Posted by savebabe (Member # 9847) on :
I found that IM bicillin and plaq really hit my joint pain and almost cleared up all the symptoms.
I also found this combo to really help against headaches and cracking joints.
Feel better.
Posted by citruslyme (Member # 7851) on :
thanks for all your insights
hmm plaquenil sounds promising
can plaquenil be used with biaxin to help absorb it better how does it alter your PH anyone here know
I did not notice anythign on the macrolides for my joints--only made it worse.
I take it the macs dont penetrate well
I know the macs dont get into the spinal fluid, but do they get into the other fluids like the knees and hips......
or does one need an abx that crosses the blood brain barrier in roder for it to kill the ketes in the synovial fluid.....
the food sensitivities idea sounds good---the toxin theory
so toxins can actually make your joints ache and swell and you dont have to have an ifnection in there I never had a positive RA test though. the inflammation is massive however and mobility limited
did anyone here ever fele like burning acid or hot boiling water dripping down their joints
I get this all the time on my spine and other joints and wanted to know if this is normal. I have asked this question numerous times and no one here seems to answer it
so i would really appreciate any advice on that like is it normal, does lyme do this
thanks
Posted by citruslyme (Member # 7851) on :
up for more input
Posted by citruslyme (Member # 7851) on :
[QUOTE]Originally posted by savebabe: [QB] I found that IM bicillin and plaq really hit my joint pain and almost cleared up all the symptoms.
I also found this combo to really help against headaches and cracking joints.
Savebabe did you have babs or just lyme like maybe it killed the babs in the joints
Posted by luvs2ride (Member # 8090) on :
citruslyme,
70% of the immune system resides in the gut. A leaky gut causes disease and disease can cause a leaky gut. Vicious circle and never one without the other. BTW, my stomach never hurt. I would never have made the connection between my gut and my joints if not for my doctor.
I have been diagnosed with babs, H.Pylori. The doctor put me on plaquenil on June 4. I have been taking ever since. She started me on amoxicillan and biaxin on 7/27/07. So far, the plaquenil has not done anything obvious. The amoxy and biaxin are creating an increase in joint pain which she told me to expect a flare of some kind. I am dealing with it by taking 2 aspirin morning and 2 evening. This is keeping me pretty much painfree so far.
She will increase my biaxin to level good for babs once she hears I'm tolerating this dose so well.
On one visit she told me I am casein and soy allergic and within 48 hrs of cutting that out of my diet, all joint pain was gone. That was before the amoxy and biaxin had had time to cause a flare.
Even though you are on antibiotics for the bacterias, you still have to remedy the gut. The two treatments together work far better than either one alone.
Abx alone is especially bad because abx cause damage to the gut flora balance which can increase your illness. Vicious circle.
Luvs
Posted by Radha (Member # 8464) on :
when you took bicillin or ceftin did your joints get even more painful before they got better or did they just feel better right away? thanks for any input Radha
Posted by randibear (Member # 11290) on :
i am only on ceftin 1000 per day. it has really helped my facial twitching. i don't have the joint issues but i take 1500 of glucosamine. i can tell when i don't take the glucosamine, i really start hurting.
Posted by CaliforniaLyme (Member # 7136) on :
for me it was IV Rocephin only- different for different people-!!
Posted by bejoy (Member # 11129) on :
I was able to clear up my joint pain pre-lyme diagnosis by taking high doses of freeze dried garlic capsules.
Allicilin seems to be quite potent for lyme. You won't stink if you take it with parsley or chlorophyll.
Posted by citruslyme (Member # 7851) on :
thanks everyone for your input california lyme-----your mail box is full----
Can anyone here describe their joint pain associated with borrelia-- what sensations
and did it get better with abx right away like rahdah asked or did it get worse more input appreciated
Posted by Andie333 (Member # 7370) on :
Ceftin helped me, along with acupuncture. But it all took time.
When I started treatment, I couldn't walk without limping, cross my legs or completely straighten out my right leg. The pain was excruciating.
Now I am able to do all those things...but I've been on abx for 2 years.
Posted by savebabe (Member # 9847) on :
I had babs, bart and lyme.
The best combo I was ever on for all these diseases was;
Plaq ketek (or biaxin) Mepron septra IM bicillin
I also use glutathione and B-12 to detox and boost my immune system, along with a multivitamin.