Hi everyone I haven't posted in a long time because, well, without treatment here in SC my situation hasn't changed much. I have finally gotten my MD to agree that my swallowing problem of 5 yrs that has now left me at 84 pds is not completely my stomach but yet a muscle problem throughout as well as Brain problem coming from my underlying infections (Lyme, Babs, Erlich) to which he finally agree'd..
He has set me up to see a female neurologist on Tuesday of this coming week and I was wondering where I could find some information to take with me (yet again, like banging your head against a brick wall) to show the damage these infections can do to the brain and area's that are responsible for swallowing, body jerking and tremors etc etc..
I am also set to see an ENT on weds for the same issues which also include horrendous sinus issues..
Any direction to easy to understand articles written by other doctors would be a huge help.
Thank you so much advance.
Posted by CaliforniaLyme (Member # 7136) on :
Check out current thread started by greatcod on Lyme & Alzheimers- you can't get worse brain stuff than that!!!!
Posted by shazdancer (Member # 1436) on :
How's about letting the National Institutes of Health convince him?
What are Neurological Complications Of Lyme Disease?
Lyme disease is caused by a bacterial organism that is transmitted to humans via the bite of an infected tick. Most people bitten by an infected tick develop a characteristic skin rash around the area of the bite. The rash may feel hot to the touch, and vary in size, shape, and color, but it will often have a "bull's eye" appearance (a red ring with a clear center).
However, there are those who will not develop the rash, which makes Lyme disease hard to diagnose because its symptoms and signs mimic those of many other diseases.
Seven to 10 days following an infected tick's bite, the first stage of Lyme disease begins with flu-like symptoms such as fever, chills, swollen lymph nodes, headaches, fatigue, muscle aches, and joint pain.
Neurological complications most often occur in the second stage of Lyme disease, with numbness, pain, weakness, Bell's palsy (paralysis of the facial muscles), visual disturbances, and meningitis symptoms such as fever, stiff neck, and severe headache.
Other problems, which may not appear until weeks, months, or years after a tick bite, include decreased concentration, irritability, memory and sleep disorders, and nerve damage in the arms and legs.
Is there any treatment?
Lyme disease is treated with antibiotics under the supervision of a physician.
What is the prognosis?
Most individuals with Lyme disease respond well to antibiotics and have full recovery. In a few patients symptoms of persisting infection may continue or recur, requiring additional antibiotic treatment.
Varying degrees of permanent joint or nervous system damage may develop in patients with late chronic Lyme disease. In rare cases, some individuals may die from Lyme disease and its complications.
[Note: The National Institute of Neurological Disorders and Stroke is a division of the National Institutes of Health, a government agency. As such, this document is not protected by copyright, and can be copied and disseminated freely.]
Hope that helps,
Shaz
Posted by 5dana8 (Member # 7935) on :
Hi I Have Lyme Ect
Here's a couple of links, hope this helps & good luck with your appointment on Tuesday:
Note: look on the last link of the above link to get the articles address if you need it.
Posted by bejoy (Member # 11129) on :
Three things that have helped me with neuro lyme and swallowing problems:
Craniosacral therapy to improve cranial nerve function that feeds the swallowing process.
Cortef
Other anti-inflammatories.
Good luck!
Posted by Boomerang (Member # 7979) on :
bejoy, cortef helped with your neuro problems? How soon did you notice a difference?
Thanks!
Posted by locdog (Member # 10372) on :
I have suffered with lyme for 8 years, 6 of them undiagnosed. Main issues being neuro lyme ...
memory, "head fog", concentration, headaches, also some joint pains mostly shoulders and elbows.
Anyways all the abx and mep and so forth only get me so far at least as of now (9 months of treatment) but recently i was turned on to GINGKO
It is probably the single most effective and fast acting result i have seen yet to date. I can't even convey the amount of good it has done for me. try it maybe it will work for u:)
Posted by Boomerang (Member # 7979) on :
Sounds great, locdog. Our LLMD mentioned that but I hadn't ordered any yet. Do you get any certain type?
Thanks a bunch!
Posted by locdog (Member # 10372) on :
Just generic Ginkgo biloba at ur neighborhood pharmacy or prob even grocerie store i got 60 days supplie (2tabs 40mg ea a day) for 12 $ buy one get one free from cvs or walgreens or something.
geter done!!!
Posted by Boomerang (Member # 7979) on :
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