My story is a repost but I sent for my medical records and the blood work my doc did.
Lyme screen Positive Lyme WB IgG only 2 bands detected 41 and 23kDA negative Lyme WB igM 2 bands detected 41 and 23kDa positive ANA negative Sed rate 28 slightly elevated HLA b27 not back yet Anyone have any coments or info???
I got bit prob sometime in June. Had a swollen rash in the groin area, swollen lymph nodes and flu like symptoms. Went to the Doc on June 22, he put me on Doxy for 14 days. I felt better. Lyme test came back neg. Started feeling crappy in July. went back to the doc Aug 6 with arthritis type pain all over my body and could barely get out of bed. Doc put me back on doxy for 14 days. Retested for lyme and she did a sed rate. Lyme came back pos and sed rate was slightly elevated at 28.
Never really felt 100 % after bite. Now I have pain in my back, neck and hips, tired all the time and a dull headache that never goes away. I feel like crap. Went to the doc yesterday. Unbelievably he said he doesnt think its the lyme!!! Gave me muscle relaxants and moore blood work... a sed rate and a hla B27. They are not back yet. I feel like crap Ive been in bed all day. I took the muscle relaxant (Tizanidine)just knocked me out didnt help anything! Oh ya and he was nice enough to make an appointment with a Rhumatologist in OCT!!! Im so frustrated. The doctor claims I cant have Lyme anymore.
Posted by bettyg (Member # 6147) on :
welcome lynda,
for reading the results on your western blot testing, go to the top of medical and look for LYMETOO's post about this.
read the positive numbers and look for them in the IGG AND IGG areas; read comments after the numbers.
day crew will come along later to explain more to you ok. sorry you are feeling so crappy; welcome to the crappy club! Posted by Geneal (Member # 10375) on :
I only had band IgM 23 come back positive via Quest Western Blot (didn't know about this site then).
However, I also had 45 out of 75 symptoms associated with Lyme.
Thanks to this board I was directed to a LLMD.
I am nearing my one year anniversary for treatment and continue to fight this battle
Against Lyme, bartonella, babesia, and other infections that Lyme has stirred up.
Please, please find yourself a Lyme Literate Medical Doctor (LLMD) so that
You can get on the road to getting better.
Hugs,
Geneal
Posted by KS (Member # 12549) on :
My test results were the same as yours (through Quest)...IgM 23 and 41 band.
For 18 months I have been to numerous specialists (including second opinions for each), had a negative Lyme Elisa test and out of desperation, I asked a doctor to run the western blot.
Of coure I went to an ID doctor who treated me for 3 weeks and told me I should be cured. When I was still feeling horrible, he suggested it was in my head and that he didn't think I had Lyme afterall(oh, it is like a 'right of passage' for many of us).
Quickle educated myself and got to a LLMD who told me that 23 is specific for Lyme. My symptoms are atypical for Lyme so I had my doubts. Let's just say the horrid herxes I've been experiencing since on treatment confirms for me I have Lyme. However, it doesn't stop me from pursuing other potential issues.
Hope my story helps....
Posted by cmty (Member # 12877) on :
Hi Lynda, your story sounds much like mine, same response from my doctor, that was 2 years ago,I'm still dealing with fatigue, joint pain. Find yourself a LLMD, if your still having symptoms as you describe, you must be treated.
Posted by Lymetoo (Member # 743) on :
Find an LLMD ASAP!!!! Your dr is full of prunes!!
Skip the rheumatologist unless you'd like to hear the same song second verse!!
Read the entire link, including replies to it!! You will learn A LOT!!
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
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