LymeNet Flash: I need some help please!

This is topic I need some help please! in forum Medical Questions at LymeNet Flash.

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Posted by firsttwin (Member # 5529) on :

I just spoke to my brother tonight and he says that his wife is not doing well at all.

She has dementia and is declining fast.

Does anyone have any ideas, information, suggestion or just anything. Her mother died from this.

I practically begged my brother to get her tested for Lyme. Is there any other test that can be done for this.

He said if I didn't stop talking about it, he ws going to hang up on me. Well I beat him to the punch.

If he doesn't do anything else, she is going to die and very soon.

Thanks!

Maria
firsttwin

Thank you in advance. [Frown]

Posted by Geneal (Member # 10375) on :

There really is no test for Alzheimer's disease.

In fact, accurate diagnosis can only be made upon death and autopsy of the brain

Reveal tangles of the neuro-fibers (looks like a tornado went through your brain).

A Western Blot via Igenex (tests 188 and 189) are what I would recommend.

In order to get my Mother tested, I paid for it.

I think sometimes, it is easier for people to accept a "worse" diagnosis.

I have a brother-n-law who was diagnosed with Parkinson's at age 29! [Eek!]

He was an avid deer hunter with a history of several hundred tick bites.

My sister, his wife, is a RN who still calls my disease Lymes. [dizzy]

Even though I have presented all of the supporting data for being tested,

They both refuse to even consider the possiblilty of Lyme. [Mad]

Hugs,

Geneal

Posted by map1131 (Member # 2022) on :

Maria, all we can do is tell some of what we KNOW about TBI and then it's up to others to pursue the possibility.

I've found myself in this situation many times in 7 yrs. Just yesterday my mother told me she can't believe how similiar lyme sx are to MS. She's reading a book by author who's character and real life wife have been dx with MS.

I've told my mother several times over the last 7 yrs that MS is lyme or another TBI and she just refuses to believe it. I think she really thinks I need to go find me a MS duck.

I'm dealing with other situations in my family and the real possibility of lyme/TBI as the cause of their sx and dx. I'm just so frustrated.

Some day soon, someone/they are going to help us with confirmation!!! I've got to believe this.

Pam

Posted by treepatrol (Member # 4117) on :

Dr Macdonalds is well versed in alz
heres his website.
http://www.molecularalzheimer.org/

Hes found tons of spirochetes and blebs in ALZ people.

Posted by CaliforniaLyme (Member # 7136) on :

Sorry to read it,
sounds very painful and difficult-

Wish I could htink of something to help
but I can't!!!!

Take care of yourself
through this-
Sincerely,

Posted by firsttwin (Member # 5529) on :

You know I was diagnosed with both MS and Lyme.

Well the last MRI I had show no lesions on my spine and the ones before that did.

What does that mean? I am really confused.

From what I understand, if you have this so called MS, the lesions will not go away.

Anyone have any take on this.

Thanks!

firsttwin

Posted by Robin123 (Member # 9197) on :

Firsttwin, I've been reading the lowdosenaltrexone site([email protected]). People with MS symptoms are taking a low dose and it is arresting further development of MS. It's some kind of synthetic opioid that boosts endorphins and immunity.

Now, the question remains as to who has MS proper and who has Lyme. Not sure we know the answer to that now. But it is an interesting site to read and ldn is getting good results for the majority of those trying it who have MS symptoms.

I like Skip, of Skip's Pharmacy, in Florida. He is one of the country's most knowledgeable compounders of it.

BTW, people report that ldn helps some with Lyme and not others.