posted
I just spoke to my brother tonight and he says that his wife is not doing well at all.
She has dementia and is declining fast.
Does anyone have any ideas, information, suggestion or just anything. Her mother died from this.
I practically begged my brother to get her tested for Lyme. Is there any other test that can be done for this.
He said if I didn't stop talking about it, he ws going to hang up on me. Well I beat him to the punch.
If he doesn't do anything else, she is going to die and very soon.
Thanks!
Maria firsttwin
Thank you in advance. Posts: 164 | From Rising Sun, MD, USA | Registered: Apr 2004
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
There really is no test for Alzheimer's disease.
In fact, accurate diagnosis can only be made upon death and autopsy of the brain
Reveal tangles of the neuro-fibers (looks like a tornado went through your brain).
A Western Blot via Igenex (tests 188 and 189) are what I would recommend.
In order to get my Mother tested, I paid for it.
I think sometimes, it is easier for people to accept a "worse" diagnosis.
I have a brother-n-law who was diagnosed with Parkinson's at age 29!
He was an avid deer hunter with a history of several hundred tick bites.
My sister, his wife, is a RN who still calls my disease Lymes.
Even though I have presented all of the supporting data for being tested,
They both refuse to even consider the possiblilty of Lyme.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Maria, all we can do is tell some of what we KNOW about TBI and then it's up to others to pursue the possibility.
I've found myself in this situation many times in 7 yrs. Just yesterday my mother told me she can't believe how similiar lyme sx are to MS. She's reading a book by author who's character and real life wife have been dx with MS.
I've told my mother several times over the last 7 yrs that MS is lyme or another TBI and she just refuses to believe it. I think she really thinks I need to go find me a MS duck.
I'm dealing with other situations in my family and the real possibility of lyme/TBI as the cause of their sx and dx. I'm just so frustrated.
Some day soon, someone/they are going to help us with confirmation!!! I've got to believe this.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
Hes found tons of spirochetes and blebs in ALZ people.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Sorry to read it, sounds very painful and difficult-
Wish I could htink of something to help but I can't!!!!
Take care of yourself through this- Sincerely,
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Firsttwin, I've been reading the lowdosenaltrexone site([email protected]). People with MS symptoms are taking a low dose and it is arresting further development of MS. It's some kind of synthetic opioid that boosts endorphins and immunity.
Now, the question remains as to who has MS proper and who has Lyme. Not sure we know the answer to that now. But it is an interesting site to read and ldn is getting good results for the majority of those trying it who have MS symptoms.
I like Skip, of Skip's Pharmacy, in Florida. He is one of the country's most knowledgeable compounders of it.
BTW, people report that ldn helps some with Lyme and not others.
Posts: 13171 | From San Francisco | Registered: May 2006
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