LymeNet Flash: Message for you to share

This is topic Message for you to share in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/60475

Posted by Tincup (Member # 5829) on :

Greetings

I had the opportunity to speak with someone recently who is tied closely to the opposing side by location, reputation, research, etc.

What they said in our introductory, "get to know each other" conversation was surprising and quite encouraging. Hopefully it will touch the hearts of those who have been fighting this Lyme battle for years on end and can remember the struggles and disappointment we've faced in the past.

Hopefully YOU will see the light at the end of the tunnel in the words they shared below.... like I have.

By the way- Prior to our conversation I learned this person was unsure if they should even be talking to me ... as if who I was or what I represented (the truth and the facts) were intimidating... or as if what/who they represented wasn't quite 100 percent. Actually, I found that rather amusing.

But later in our talk, they stated the words we can all feel good about...

They said...

"... now that we have two very powerful sides ..."

Think about that.

THEY said there are TWO powerful sides.

Finally, after all these years "they" recognize "us" as a powerful force to be reckoned with... and not just someone to walk over and/or ignore.

As you know, it's been a long hard road to hoe but the casual comment they made is proof that our persistence and dedication to the cause is helping.... and we are making progress.

WE can say we are making progress all we want.. but to hear them admit it... well...

Finally, dear friend, the force is with us.

Keep up the good work.

Thanks!

[Big Grin]

PS- My emails are down and I will be off line again for a while. Please share this with those who have been working hard to make changes in the Lyme community.

Posted by Lymetoo (Member # 743) on :

That's super news!! Thanks, Tinny!! [Smile]

Posted by tdtid (Member # 10276) on :

Thanks for sharing, TC. Every step we make seems to get noticed a little more and more. This is optomistic. Thanks for letting us know. Sounds promising. ABOUT TIME, HUH?

Cathy

Posted by TerryK (Member # 8552) on :

[woohoo]

Thanks! Great news. [Smile]

Posted by bettyg (Member # 6147) on :

hogwash! by golly, IDSA is finally getting it; we are NOT GOING AWAY..

we are going down fighting! whoopie! [Big Grin]

Posted by Geneal (Member # 10375) on :

Yeah!!!!

Thanks for the encouraging news.

It is so important that we maintain a united front.

Hugs,

Geneal

Posted by map1131 (Member # 2022) on :

I've never doubted we would win this war eventually. A win/win is finding a successful cure/protocol and education/awareness for TBDs.

Pam

Posted by Aniek (Member # 5374) on :

Oppression always increases just before the revolution. That's because the party in power gets nervous when they sense they are about to lose power.

I always new the increased aggressiveness of the IDSA was a good sign.

Posted by aiden424 (Member # 7633) on :

Wow, what wonderful news!

Kathy

Posted by trueblue (Member # 7348) on :

Thank you for sharing this and all your hard work, TC. [kiss]

I smile

Posted by aklnwlf (Member # 5960) on :

LOL, you said 'the force'! That's funny.

Always great to start the day with some good news.

Thanks [Big Grin]

Posted by Beverly (Member # 1271) on :

WOW, great news!!!!! Thank you for sharing it Tincup. [Wink]

Huggsss to all.... [group hug]

Posted by Vermont_Lymie (Member # 9780) on :

Thanks for sharing Tinny.

I realize that you may not be on-line to read this response, but I am wondering if your conversation shed any light onto why and how these professionals on the other side feel they can continue to deny the facts and the truth?

Sorry to have to ask, but it still baffles me.

Aniek, good point!

Posted by Areneli (Member # 6740) on :

Right, we are so 'strong' that IDSA needs larger flyswatter to keep us away.

Who are we kidding?

The truth is we are just annoying to them, not dangerous.

Posted by Soleilpie (Member # 8481) on :

quote:
Originally posted by Areneli:
Right, we are so 'strong' that IDSA needs larger flyswatter to keep us away.

Who are we kidding?

The truth is we are just annoying to them, not dangerous.

Yes, many members of the IDSA belong to powerful groups and may see us as powerful, even if less powerful than they are.

But contrary to what some may think, there are doctors who got into medicine to help people (versus their checkbook). They want the best & factual medical data. So, the more info/studies that are conducted that provides evidence that supports better Lyme treatment, the more support we'll gather from other physicians and health care professionals.

I believe there are doctors out there who side with our view, but are afraid to admit it for fear of losing their licenses. The more data that comes out pointing to the benefits of long term antibiotics or hopefully even better treatment than long term abx, the more these doctors will probably come out of the woodwork.

This is why more studies like Fallon's need to be conducted. This is why H.R. 741 & S. 1708 are SO important! So, start writing your representative and your senators! If you've already done so, many many thanks!

Posted by Robin123 (Member # 9197) on :

Every time we speak up, it matters. Yesterday I educated a doctor about what was going on. And asserted the right to have accurate info about what's going on and be able to know how best to proceed re testing and treatment.

Posted by CaliforniaLyme (Member # 7136) on :

Yup, things are changing!*)*!)! yesterday I got a call on the Lyme hotline (my home number) and it was a local DOCTOR asking re info on Lyme!!! I sped over to his office with a hot pink gift bag FULL of stuff*)!*)!)*!)! ILADS DVDs, more pamphlets than I can name, BUllseye by Jonathan Edlow- !*)!**!)!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

And yesterday we had our support group meeting (next week is Thanksgiving would usually be next thursday!) and one of our local kinda-LLMDs (sees a few people of her own but we don't refer to her) told a member- "Physicians around here- it's strange- all of a sudden Lyme around here is being ACCEPTED-" !!!!!!!!!!!!!!!!!!!!!!!!!!!!

VERY different from 10 years back!!!!

VERY different!*)*!)!)!

Victoria on here (are you still on here Vic?!)
said, just perfectly, when I was fretting to her, "It's not IF we'll win, but WHEN."

!!!!!!!!!!!!!!!!!!!!!!

I just think that's the best summing up I've ever heard- very reassuring- hope it's true*)!*)!!~!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Posted by Soleilpie (Member # 8481) on :

CaliforniaLyme,

That's great news!