Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Greetings
I had the opportunity to speak with someone recently who is tied closely to the opposing side by location, reputation, research, etc.
What they said in our introductory, "get to know each other" conversation was surprising and quite encouraging. Hopefully it will touch the hearts of those who have been fighting this Lyme battle for years on end and can remember the struggles and disappointment we've faced in the past.
Hopefully YOU will see the light at the end of the tunnel in the words they shared below.... like I have.
By the way- Prior to our conversation I learned this person was unsure if they should even be talking to me ... as if who I was or what I represented (the truth and the facts) were intimidating... or as if what/who they represented wasn't quite 100 percent. Actually, I found that rather amusing.
But later in our talk, they stated the words we can all feel good about...
They said...
"... now that we have two very powerful sides ..."
Think about that.
THEY said there are TWO powerful sides.
Finally, after all these years "they" recognize "us" as a powerful force to be reckoned with... and not just someone to walk over and/or ignore.
As you know, it's been a long hard road to hoe but the casual comment they made is proof that our persistence and dedication to the cause is helping.... and we are making progress.
WE can say we are making progress all we want.. but to hear them admit it... well...
Finally, dear friend, the force is with us.
Keep up the good work.
Thanks!
PS- My emails are down and I will be off line again for a while. Please share this with those who have been working hard to make changes in the Lyme community.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Thanks for sharing, TC. Every step we make seems to get noticed a little more and more. This is optomistic. Thanks for letting us know. Sounds promising. ABOUT TIME, HUH?
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Thanks! Great news. Posts: 6286 | From Oregon | Registered: Jan 2006
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bettyg
Unregistered
posted
hogwash! by golly, IDSA is finally getting it; we are NOT GOING AWAY..
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Yeah!!!!
Thanks for the encouraging news.
It is so important that we maintain a united front.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I've never doubted we would win this war eventually. A win/win is finding a successful cure/protocol and education/awareness for TBDs.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Oppression always increases just before the revolution. That's because the party in power gets nervous when they sense they are about to lose power.
I always new the increased aggressiveness of the IDSA was a good sign.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
Thank you for sharing this and all your hard work, TC.
I smile
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
LOL, you said 'the force'! That's funny.
Always great to start the day with some good news.
Thanks
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6147 | From Columbus, GA | Registered: Jul 2004
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
WOW, great news!!!!! Thank you for sharing it Tincup.
Huggsss to all.... Posts: 6638 | From Michigan | Registered: Jun 2001
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Thanks for sharing Tinny.
I realize that you may not be on-line to read this response, but I am wondering if your conversation shed any light onto why and how these professionals on the other side feel they can continue to deny the facts and the truth?
Sorry to have to ask, but it still baffles me.
Aniek, good point!
Posts: 2557 | From home | Registered: Aug 2006
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Right, we are so 'strong' that IDSA needs larger flyswatter to keep us away.
Who are we kidding?
The truth is we are just annoying to them, not dangerous.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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quote:Originally posted by Areneli: Right, we are so 'strong' that IDSA needs larger flyswatter to keep us away.
Who are we kidding?
The truth is we are just annoying to them, not dangerous.
Yes, many members of the IDSA belong to powerful groups and may see us as powerful, even if less powerful than they are.
But contrary to what some may think, there are doctors who got into medicine to help people (versus their checkbook). They want the best & factual medical data. So, the more info/studies that are conducted that provides evidence that supports better Lyme treatment, the more support we'll gather from other physicians and health care professionals.
I believe there are doctors out there who side with our view, but are afraid to admit it for fear of losing their licenses. The more data that comes out pointing to the benefits of long term antibiotics or hopefully even better treatment than long term abx, the more these doctors will probably come out of the woodwork.
This is why more studies like Fallon's need to be conducted. This is why H.R. 741 & S. 1708 are SO important! So, start writing your representative and your senators! If you've already done so, many many thanks!
-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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posted
Every time we speak up, it matters. Yesterday I educated a doctor about what was going on. And asserted the right to have accurate info about what's going on and be able to know how best to proceed re testing and treatment.
Posts: 13116 | From San Francisco | Registered: May 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Yup, things are changing!*)*!)! yesterday I got a call on the Lyme hotline (my home number) and it was a local DOCTOR asking re info on Lyme!!! I sped over to his office with a hot pink gift bag FULL of stuff*)!*)!)*!)! ILADS DVDs, more pamphlets than I can name, BUllseye by Jonathan Edlow- !*)!**!)!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
And yesterday we had our support group meeting (next week is Thanksgiving would usually be next thursday!) and one of our local kinda-LLMDs (sees a few people of her own but we don't refer to her) told a member- "Physicians around here- it's strange- all of a sudden Lyme around here is being ACCEPTED-" !!!!!!!!!!!!!!!!!!!!!!!!!!!!
VERY different from 10 years back!!!!
VERY different!*)*!)!)!
Victoria on here (are you still on here Vic?!) said, just perfectly, when I was fretting to her, "It's not IF we'll win, but WHEN."
!!!!!!!!!!!!!!!!!!!!!!
I just think that's the best summing up I've ever heard- very reassuring- hope it's true*)!*)!!~!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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-------------------- The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back. -Abigail van Buren (Pauline Esther Friedman) (1918-2002) Posts: 409 | From Florida | Registered: Dec 2005
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