quote:

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Originally posted by map1131:
Toxic my dear TOXIC.

If one doesn't really rest or if one of those organs is mad. Watch out. IMHO, what it took me a long time to understand.

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quote:

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Originally posted by map1131:
disturbed, are you sore all over your body? If someone touches you, do you feel like they smacked you?

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Skin sensitivity? Sometimes I have it, but not always.

The other day my husband was hugging me and rubbing my back and it hurt too much and I had to tell him to stop.
 

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Posted by daisys (Member # 11802) on :
 
I used to feel that way every morning. Then, after a sleep test, I was treated for alpha intrusion sleep disorder. Since then, I sleep real well. I wasn't aware of not getting deep sleep before, because I never fully woke up, so it seemed I was getting enough sleep.

The only time I wake up feeling unrested nowadays is when pain is strong enough to defeat my sleep med and I don't get into deep sleep.

If it's sporatic, it seems that something is interupting the deep sleep--at times. Keeping a health journal comes in handy at a time like this.
 

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Posted by renny (Member # 11224) on :
 
Yes, I feel like that all the time. I will have a few days where I don't feel as terrible as normal and even have a pretty good evening and then I will wake up the next morning and can hardly get out of bed. I am hurting all over and can not get my brain going at all. It really stinks because the evening before I think that maybe things are looking up and then Wham! the next morning. I still haven't figured out exactly why except that it is just one of those "Lyme" things.
 

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Posted by Tracy9 (Member # 7521) on :
 
Yeah, that damned bus comes by here, too. We must be on the same route.
 

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Posted by ICEiam (Member # 7519) on :
 
I think a bus, train, semi, bolder and anything else that could do damage hits my daughter every night while she is trying to sleep.

I agree with the toxin theory. I think she is so full of toxins her body just can't relax.

Still waiting on the results of the HLA test to see if she really does have that problem where you can't detox. We know she has the HLA DR-4 gene.

THEN, we can attack that problem, if that is what it is.

HUGS,
 

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Posted by Aniek (Member # 5374) on :
 
I wake up feeling much better ever since starting Zanaflex for muscle pain. Turns out, the pain was keeping me from sleeping well. I didn't even realize it.

Sleep helps reduce pain. So if you are not sleeping because of pain, it causes a very bad cycle. You might not realize you aren't sleeping well.
 

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Posted by Ellie K (Member # 12056) on :
 
I sleep 20 hours a day! This started when I doubled my Bicillin (on top of Babs treatment too). Tough stuff.

Even with that amount of sleep, I do not feel well rested. A lof of my sleep involves horrible nightmares and sleep paralysis, which I never had before Lyme.

Worst part of my day is waking up and remembering that I still have Lyme. There is that split second when your mind is awakening itself and you do forget just temporarily then what life has become. and in that split second you could be your normal self.
 

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Posted by jamescase20 (Member # 14124) on :
 
I am experiementing with doses of ambein. And low doses during the day. I had unearthed a liver study that was trying to lower blood amminoa in the brain. One of the experimental drugs was a benzo. Seems when you stimulate gaba benzo do bigtime, you order a detox l=glutatyion...but if you try to take it orally iv or im or anyway, it wont work and the am. level rise more. The study is on the net and something related to this on here.
 

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Posted by jamescase20 (Member # 14124) on :
 
I forgot to say, after starting the ambein I feel better! I ran out for 2 days recently and omg, the hit by a bus came right back and I slept for 2 days nearly. Just last night...I started ambeien again...and wow, I felt better right away, and a few hours later fell asleep at about 4am. Its now 7 am and I feel better not weak not good either not like I always did without it...like I was dying or something. I believe ambien or benzos used correctly scavage out the blood amminia levels. And some studies seem to back up that notion. I like the ambein better seems to loosen muscles and its not as addiction, and if I take it daytime it dont make me tired at all.
 

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Posted by Clarissa (Member # 4715) on :
 
I take xanax for my Bart anxiety herxes and it also helps me sleep. Could be a good option for you, too, Disturbed.

However, almost every morning sucks for me anyway. I remember this when treating Lyme, too. Mornings were simply awful...good sleep or not.

I think part of it is, facing a whole new boring non-productive-physically-and/or-mentally debilitating day of a TBD. For me, at least, the reality of my life right now kicks in and I become depressed.

Evenings are always better for me and the night brings me comfort. I have no idea why. Maybe the photosensitivity to the sun, maybe the symptoms subside, maybe I don't feel like an alien because the rest of the human race is laying to rest, as well?

Or maybe just because I survived yet another day of herxing and a no-sugar diet.

All I know, is it comes with these illness'. Totally not fair but it passes when treatment is successful.

For 3 years after Lyme treatment I woke up like a little morning bird, flitting about happily, getting ready for work.

It is NOT permanent.

Xanax might get ya through for now...
 

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Posted by jamescase20 (Member # 14124) on :
 
Actually we most likely have adrenal insuffentcy. Maybe even addisons disease. In that condition, its typical that you cant get started in the morning. If fact...often till around 6pm. And one spends there best focused hours usually between midnight and 6am roughly speaking. I got that out of a book. I do have this I was diagnosied with this about 8 years ago. I remember, okay, my adrenals are not working, but is this just another symtom? He didnt know what to say, and prescribed corisone. I felt a very little better, then nothing. I basially just stoped and on and off.
 

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Posted by Peacesoul (Member # 13709) on :
 

quote:

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Originally posted by sixgoofykids:
No, I always wake up feeling like I've been hit by a bus .... it takes me a lot of time to get going in the morning! That's the reason I can't say I'm 100%, it's the 10% that's still bad.

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same here. I always feel like sludge and my mornings are so slow. It takes me a few hrs to feel somewhat ok
Since doing lots of detox and doing detox baths every morning, it's been a lot better though.
And and since stopping the zithro. That abx really made me feel lousy!
 

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Posted by lymeHerx001 (Member # 6215) on :
 
every day, I wake and then dont feel good until I have my coffee in the morning.

Then my pain goes down by 60-70%. The coffee lifts my mood for an hour or so and then I get foggy and go into the slumps!!!!!!!

This disease sucks.

Recentlly I started experimenting with taking chlorella b4 bed. I wake up in less pain.
 

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Posted by map1131 (Member # 2022) on :
 
disturbed, I know that feeling. Sometimes my husband can rub my back or leg, because he knows how much I love my Russian massage lady that I see for bodywork every 3 weeks.

He thinks he's helping. When he does it, I say rub a little lighter, honey. lol My Dad used to hug me real tight and he finally learned that he was hurting me.

When my husband hugs me tight sometimes and my reaction can be not so nice. I have to tell me him to hug me softly. Men!!!!! lol just kidding guys reading this.

I appreciate hugs, just sometimes when I'm aching all over, they hurt. That's when I know my body is toxic and the more detox methods I use during these periods the better. Remember I don't use abx and haven't for four years.

I use a rife machine to kill off the bad guys and I still herx after a rife session or I feel toxic during the 30 day lyme reproduction cycle when they come out to play.

I am someone that never had good days when I had been on abx continuence for over 2 yrs. It took me months and many different protocols to try to control my toxic body. Been learning this lyme & company within MY system since '99 dx.

I haven't won the war yet. But I'm still figuring out the part I call & company. I have recent tick bites that have muddied the picture in the last 2 yrs.

Pam
 

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Posted by lymebytes (Member # 11830) on :
 
All the time each day is a "crap shoot" and I never know how I will wake up feeling.

I must say the worst part like Ellie said, is opening my eyes and thinking "another day of Lyme" this is my life for now and that is the hardest part for me.
 

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Posted by Curiouser (Member # 14128) on :
 
Rather than a bus/train/truck, I usually wake up feeling like I'd been run over by a couple of bicycles and a half-loaded wheelbarrow.

Not much pain, but the stiffness and fatigue doesn't make it easy to get moving in the morning.

Sounds like my joints have been replaced by rice crispies.

Coffee is my friend. Praise to Caffeina - benevolent goddess of all things java!

Seriously tho, would love to actually wake up refreshed and ready to go some morning.
 

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Posted by ecowoman (Member # 8251) on :
 
I was just asking my husband why I felt like I was hit by a bus! How can I wake up fatigued and in pain when I just slept 11 hours? It is somehow comforting to know it is not unusual.
However, I have had an increase in frequency of feeling this way. I imagine it is a herx due to new abx beg of December. Has anybody tried some of the supplements recommended on this webiste?
http://www.endfatigue.com/
I have been meaning to try them to see if they help.
 

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Posted by lymeHerx001 (Member # 6215) on :
 
Im laughing inside because I dont know either.

I have to sleep exactlly 6 hours.

If I wake up and then go back to sleep I am in MORE pain and my mind is SCREWED> I get very depressed and just want to die.


Sad but true. Yes, this is from going back to sleep to try and get some more sleep, never works!@
 

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Posted by ldfighter (Member # 9405) on :
 
For me it was a mack truck, nearly every morning for many years. And then long-term abx got rid of it completely! There is hope, hang in there.
 

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