This is topic URGENT! Warning for Mothers! Help Please! in forum Medical Questions at LymeNet Flash.


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Posted by mjo (Member # 7876) on :
 
Please! Someone help get the following info up quickly! Need your techy help. I have a strong suspicion the info will gone tomorrow!

Go to www.kstp.com. Scroll down and look for the story, "Is this boy sick or is his mom?"

If you have high-speed, you should be able to download the story. If not, you'll probably get a choppy version, but you can still see the picture of the boy's rash on his head. His symptoms: Perfect kid and then. . . headaches, nightmares, delusions, etc.

Mother asked for help from Rochester's Mayo. They turned HER in as Munchausen's! Case dismissed in Minneapolis (Hennepin County).

Then the mother sought help for her son at the University of Minnesota and THEY turned her in too! (That's as far as I got in the story with miserable dial-up.)

I don't think it matters what the final diagnosis is. This clearly shows how hostile the medical community in Minnesota is for anything that might even possibly resemble a tick-borne illness.

Mothers Unite! And be careful! A dear friend of mine in Wisconsin was set up to fall by a local physician. He put the blame on her in his report, never once mentioning her son's CDC-positive IgG and IgM blood tests for Lyme disease, after the mother had taken her son to this doctor to ask him for treatment for her son.

Please someone also post the web addy link for Mothers Against Munchausens.

I will try to have someone make me a copy of this tonight but if anyone has the capacity to do this, please make copies now!

Thanks all of you out there.
 

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Posted by merrygirl (Member # 12041) on :
 
cant find it.

Sad just sad
 

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Posted by Vermont_Lymie (Member # 9780) on :
 
The story is still there. The problem is, do not type the final "." in the address.

Unbelievable story. When will doctors wise up?

Go to:

www.kstp.com

(not www.kstp.com.)
 

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Posted by merrygirl (Member # 12041) on :
 
ok that worked.

Our medical system suckity suck sucks.\


 

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Posted by AliG (Member # 9734) on :
 
Direct page of story: KSTP- Is this mother sick or is her son?

This is positively sickening!
 

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Posted by CaliforniaLyme (Member # 7136) on :
 
www.msbp.com

M.A.M.A.
Mothers Against Munchausens-by-Proxy Allegations

M.A.M.A. was begun in response to the fast growing number of false allegations of Munchausen Syndrome by Proxy (MSBP). Parents are being accused of making their own children ill. Increasingly, families across America, Britain, Australia, Canada and New Zealand are being destroyed by doctors and other professionals who make false and even malicious allegations against desperate mothers of chronically/critically ill children.

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[ 19. February 2008, 10:45 AM: Message edited by: CaliforniaLyme ]
 

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Posted by bettyg (Member # 6147) on :
 
so sickening; did you see the 3 areas of continuous files for her son....3 drawers full of detailed records?

sarah, thanks for the update on yourself; you bet I/others will stand up for you.

i do think i know who some of these trolls on our board are too! have suspected them for awhile! no names being typed, but you know who you are!
 

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Posted by map1131 (Member # 2022) on :
 
Now tell me if any of you are NOT scared about what we are facing as a support community???

I've been frightened for 8 yrs now. That's how long I've known that a simple course and months of more courses of abx wasn't the simple easy fix that everyone thinks it is.

Pam
 

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Posted by Tincup (Member # 5829) on :
 
Thanks for the head's up!

I just spoke with the station, lovely reporter, and will be in touch with the mother soon.

And yes... this stinks!


 

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Posted by Lymetoo (Member # 743) on :
 
Good job, TC!!

Sarah, we will definitely stand behind you. You take care of YOU and your beautiful girls!!
 

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Posted by Beverly (Member # 1271) on :
 
How awful!!!I hope Tincup can do something to help them.

I will stand behind you too Sarah.
 

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Posted by heiwalove (Member # 6467) on :
 
i'm from minneapolis and this makes me cry.

for those who don't know my story, MN is where i was imprisoned/court committed in 2 psych hospitals for five consecutive months (while pulled off lyme tx and drugged up with powerful antipsychotics) for supposed 'somatic delusional disorder,' when i was really so sick with lyme i was on the edge of death. all this with a CDC positive igenex test which they totally ignored.

you'd think in an endemic state like MN they'd have at least a tiny clue about lyme disease, but i guess that's wishful thinking on my part.

tincup, you're amazing and i hope with all my heart something can be done to help this family.

<3

[ 19. February 2008, 10:10 PM: Message edited by: heiwalove ]
 

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Posted by D Bergy (Member # 9984) on :
 
Most doctors in MN are clueless about Lyme disease. That is why we treat it ourselves. We know more than any doctor we have dealt with.

D Bergy
 

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Posted by Tincup (Member # 5829) on :
 
I am looking for MN patients who had problems getting diagnosed or like H had.. oh my no. So sorry!!!

Anyhow... as I shake my head hearing this stuff...

Please use your screen name in the title and MN so I can connect it... and email me.

[email protected]

Thanks!


 

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Posted by pab (Member # 904) on :
 

quote:

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Originally posted by heiwalove:
[QB] i'm from minneapolis and this makes me cry.

for those who know my story, MN is where i was imprisoned/court committed in 2 psych hospitals for five consecutive months

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I didn't know this happened to you. Did you get Lyme in MN? Is there certain clinics or hospitals we should avoid?

I feel so sorry for that family. This is one of the main reasons we have not taken our kids to the Mayo Clinic.
 

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Posted by heiwalove (Member # 6467) on :
 
pab, i'm not sure where i got lyme. i went back home to MN for help because i was too sick to take care of myself. unfortunately my family didn't believe me and neither did any doctor they took me to; hence, my psych hospitalization.

i'm not sure what to tell you about clinics/hospitals to avoid, because as far as i know none of the major ones in MN are the least bit lyme literate. i was locked up and seen by an ID duck at abbott northwestern who examined me for two minutes, asked if my joints hurt and declared i didn't have lyme. horrible. they know less than nothing about lyme there.
 

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Posted by laura miller (Member # 12703) on :
 
I am from MN and I have found very little

support. No one has even heard of it being

chronic! I have worked hard at educating

everyone I can when socially possible.


I went to the Mayo clinic and spent 1000's of $

and 6 months of time, and it was 100% worthless.

Meanwhile getting sicker and sicker until I self-

diagnosed and tested positive.


I am so very sad for that family. We all have

Lyme here including my kids, so my stomach hurt

just watching that video.

Thanks for posting it... when will this crazy ride ever end?

Laura
ps Sarah we miss you!
 

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Posted by Tracy9 (Member # 7521) on :
 
Oh Sarah,.
I am so, so sorry for you having to go through that; all of us here recognize the good in your heart and the song in your soul that has carried many of us to brighter days....

Our love and support is with you. You are an angel who perserveres and doesn't give up no matter how they try and knock you down...and we love you for that.
 

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Posted by mjo (Member # 7876) on :
 
Thanks so much all of you! I'm glad you got to see this.

Here's a little update:

I tuned in to the station last night and they announced that several doctors had phoned in yesterday, offering to help the child.

I can only wonder what kind of "help" they'll offer in Minnesota. I'm sure you will want to know too.

Staggering to think that a mother can reach out unwittingly to the two sources one would think would be the most likely to help, Mayo and the University of Minnesota, and have to face Munchausen's.

Thanks Tinny for jumping in on this with me. If you would like to read the file for the mom I referred to (the one who had been set up) pm me and we'll see if we can send it where it needs to be seen, ok?

Thanks Cal Lyme for the link to MSBP.

Please keep topic up while the link is still on the KSTP website. Thanks.
 

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Posted by Beverly (Member # 1271) on :
 
Thank you for the update mjo. I am keeping them in my prayers.
 

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Posted by mjo (Member # 7876) on :
 
Thanks Bev. I will pray for them too. Maybe if we all pray, or send positive thoughts, or will the vibrations around the boy and his mom and dad to change, he will get the help he needs to be well.

Let's direct some positive energy to the TV station and the writer too. You never know what might happen, we can all hope. (Guess we're good at that by now.)
 

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Posted by roro (Member # 13383) on :
 
This is disgraceful!

Its bad enough that people with chronic diseases are being mistreated by these criminals and accused of having mental disorders.

but then the children are not believed either and the mothers being accused of meunchausens???

these a$$hole dr's are too egotistical to admit that there exists a disease that they do not understand so they have to blame the patient of being crazy.
 

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Posted by Vermont_Lymie (Member # 9780) on :
 

quote:

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Originally posted by Tracy9:
Oh Sarah,.
I am so, so sorry for you having to go through that; all of us here recognize the good in your heart and the song in your soul that has carried many of us to brighter days....

Our love and support is with you. You are an angel who perserveres and doesn't give up no matter how they try and knock you down...and we love you for that.

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