posted
Please! Someone help get the following info up quickly! Need your techy help. I have a strong suspicion the info will gone tomorrow!
Go to www.kstp.com. Scroll down and look for the story, "Is this boy sick or is his mom?"
If you have high-speed, you should be able to download the story. If not, you'll probably get a choppy version, but you can still see the picture of the boy's rash on his head. His symptoms: Perfect kid and then. . . headaches, nightmares, delusions, etc.
Mother asked for help from Rochester's Mayo. They turned HER in as Munchausen's! Case dismissed in Minneapolis (Hennepin County).
Then the mother sought help for her son at the University of Minnesota and THEY turned her in too! (That's as far as I got in the story with miserable dial-up.)
I don't think it matters what the final diagnosis is. This clearly shows how hostile the medical community in Minnesota is for anything that might even possibly resemble a tick-borne illness.
Mothers Unite! And be careful! A dear friend of mine in Wisconsin was set up to fall by a local physician. He put the blame on her in his report, never once mentioning her son's CDC-positive IgG and IgM blood tests for Lyme disease, after the mother had taken her son to this doctor to ask him for treatment for her son.
Please someone also post the web addy link for Mothers Against Munchausens.
I will try to have someone make me a copy of this tonight but if anyone has the capacity to do this, please make copies now!
Thanks all of you out there.
Posts: 422 | From Luck home | Registered: Sep 2005
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
cant find it.
Sad just sad
Posts: 3905 | From USA | Registered: May 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
The story is still there. The problem is, do not type the final "." in the address.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
M.A.M.A. Mothers Against Munchausens-by-Proxy Allegations
M.A.M.A. was begun in response to the fast growing number of false allegations of Munchausen Syndrome by Proxy (MSBP). Parents are being accused of making their own children ill. Increasingly, families across America, Britain, Australia, Canada and New Zealand are being destroyed by doctors and other professionals who make false and even malicious allegations against desperate mothers of chronically/critically ill children.
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bettyg
Unregistered
posted
so sickening; did you see the 3 areas of continuous files for her son....3 drawers full of detailed records?
sarah, thanks for the update on yourself; you bet I/others will stand up for you.
i do think i know who some of these trolls on our board are too! have suspected them for awhile! no names being typed, but you know who you are!
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Now tell me if any of you are NOT scared about what we are facing as a support community???
I've been frightened for 8 yrs now. That's how long I've known that a simple course and months of more courses of abx wasn't the simple easy fix that everyone thinks it is.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Thanks for the head's up!
I just spoke with the station, lovely reporter, and will be in touch with the mother soon.
Sarah, we will definitely stand behind you. You take care of YOU and your beautiful girls!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
How awful!!!I hope Tincup can do something to help them.
I will stand behind you too Sarah.
Posts: 6641 | From Michigan | Registered: Jun 2001
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
i'm from minneapolis and this makes me cry.
for those who don't know my story, MN is where i was imprisoned/court committed in 2 psych hospitals for five consecutive months (while pulled off lyme tx and drugged up with powerful antipsychotics) for supposed 'somatic delusional disorder,' when i was really so sick with lyme i was on the edge of death. all this with a CDC positive igenex test which they totally ignored.
you'd think in an endemic state like MN they'd have at least a tiny clue about lyme disease, but i guess that's wishful thinking on my part.
tincup, you're amazing and i hope with all my heart something can be done to help this family.
quote:Originally posted by heiwalove: [QB] i'm from minneapolis and this makes me cry.
for those who know my story, MN is where i was imprisoned/court committed in 2 psych hospitals for five consecutive months
I didn't know this happened to you. Did you get Lyme in MN? Is there certain clinics or hospitals we should avoid?
I feel so sorry for that family. This is one of the main reasons we have not taken our kids to the Mayo Clinic.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
pab, i'm not sure where i got lyme. i went back home to MN for help because i was too sick to take care of myself. unfortunately my family didn't believe me and neither did any doctor they took me to; hence, my psych hospitalization.
i'm not sure what to tell you about clinics/hospitals to avoid, because as far as i know none of the major ones in MN are the least bit lyme literate. i was locked up and seen by an ID duck at abbott northwestern who examined me for two minutes, asked if my joints hurt and declared i didn't have lyme. horrible. they know less than nothing about lyme there.
Thanks for posting it... when will this crazy ride ever end?
Laura ps Sarah we miss you!
Posts: 232 | From MN | Registered: Jul 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh Sarah,. I am so, so sorry for you having to go through that; all of us here recognize the good in your heart and the song in your soul that has carried many of us to brighter days....
Our love and support is with you. You are an angel who perserveres and doesn't give up no matter how they try and knock you down...and we love you for that.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Thanks so much all of you! I'm glad you got to see this.
Here's a little update:
I tuned in to the station last night and they announced that several doctors had phoned in yesterday, offering to help the child.
I can only wonder what kind of "help" they'll offer in Minnesota. I'm sure you will want to know too.
Staggering to think that a mother can reach out unwittingly to the two sources one would think would be the most likely to help, Mayo and the University of Minnesota, and have to face Munchausen's.
Thanks Tinny for jumping in on this with me. If you would like to read the file for the mom I referred to (the one who had been set up) pm me and we'll see if we can send it where it needs to be seen, ok?
Thanks Cal Lyme for the link to MSBP.
Please keep topic up while the link is still on the KSTP website. Thanks.
Posts: 422 | From Luck home | Registered: Sep 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Thank you for the update mjo. I am keeping them in my prayers.
Posts: 6641 | From Michigan | Registered: Jun 2001
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posted
Thanks Bev. I will pray for them too. Maybe if we all pray, or send positive thoughts, or will the vibrations around the boy and his mom and dad to change, he will get the help he needs to be well.
Let's direct some positive energy to the TV station and the writer too. You never know what might happen, we can all hope. (Guess we're good at that by now.)
Posts: 422 | From Luck home | Registered: Sep 2005
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Its bad enough that people with chronic diseases are being mistreated by these criminals and accused of having mental disorders.
but then the children are not believed either and the mothers being accused of meunchausens???
these a$$hole dr's are too egotistical to admit that there exists a disease that they do not understand so they have to blame the patient of being crazy.
Posts: 615 | From maryland | Registered: Oct 2007
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
quote:Originally posted by Tracy9: Oh Sarah,. I am so, so sorry for you having to go through that; all of us here recognize the good in your heart and the song in your soul that has carried many of us to brighter days....
Our love and support is with you. You are an angel who perserveres and doesn't give up no matter how they try and knock you down...and we love you for that.
Tracy said it so well, I just want to say the same!
Sarah, of course we have your back and will miss you while you are (understandably) away.
Posts: 2557 | From home | Registered: Aug 2006
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posted
Everyone should think about reading Linda Hanners book, "Lyme Disease: My search for a Diagnosis," to see what she went through at the hands of Mayo too.
What people have endured staggers the imagination. Are we not prisoners of war?
Posts: 422 | From Luck home | Registered: Sep 2005
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