Everyone talks about Bartonella and the rashes. I have never had a rash like what is being described.
Anyone else with NO rashes?
ALSO:.......
My CD57 was about 27.
I have searched other posts about this number.
Lots of differing opinions about what a low number means.
Anyone have an answer and/or opinion? Posted by SForsgren (Member # 7686) on :
Yes, no rashes but positive bartonella.
Posted by tickssuck (Member # 15388) on :
Same here...no rashes, positive for Bartonella.
Posted by ByronSBell 2007 (Member # 11496) on :
another one here.
Posted by Peacesoul (Member # 13709) on :
no rash and my LLMD and myself know I have Bart, never tested though.
Posted by seibertneurolyme (Member # 6416) on :
Add huuby to the list -- no rashes and positive to Bart.
Bea Seibert
Posted by cjnelson (Member # 12928) on :
suspect bart highly - no rash
Posted by Angelica (Member # 15601) on :
I thought I had no bart rashes but then remembered a strange scratch that was around for a long time and then left when I was on antibiotics. I have done 3 bart tests including a Fry blood smear and all have been negative but bart is still highly suspected.
My CD57 was high once and became a bit lower after some treatment.
[ 26. May 2008, 10:46 PM: Message edited by: Angelica ]
Posted by proudtoserve (Member # 14811) on :
thanks for the replies.
I was begining to think since I didnt have the rash then maybe I wasnt effected by the Bart severly.
I was trying to make sense of treating the Bart and then the Lyme.
Complicated stuff
Anyone know about the CD57?
Posted by ByronSBell 2007 (Member # 11496) on :
Out of 28 current patients at the clinic 26 have bartonella...
Posted by kelmo (Member # 8797) on :
Me.
Posted by feelfit (Member # 12770) on :
+Bartonella No rash
Posted by Alv (Member # 15192) on :
never had a rash and have neurolyme and all the coinfections.
My son had never had a rash.Only recall a couple of pimples that he said are itchy on his leg.
He has neurolyme and , babesia microti positive by igenex, mucoplasma and bartonella .Send him to Pediatritian ( ignorant) told me it might be alergic to penuts.One year later spread in HIS HEAD and has white matter on his head and he was lying in the floor with severe headaches .
Never saw a bulls eye rash on any of us.
Posted by cantgiveupyet (Member # 8165) on :
moi
Posted by TerryK (Member # 8552) on :
Just to throw in another possibility, I was negative for bart via lab tests and had no rashes until I started doxy. Then I got the long red streaks on my side. I also have a ton of symptoms. My LLMD said there is no doubt, it is bart.
I'm now on levaquin for it and the streaks are fading. It seems like bart is a very difficult infection to figure out.
Terry
Posted by mrpotto (Member # 15123) on :
another rash-less bart infected person here
Posted by kitkat32 (Member # 9682) on :
Positive by labs twice for bartonella.
No rash the I am aware of.
kit
Posted by Tracy9 (Member # 7521) on :
Same here.
Posted by Rianna (Member # 11038) on :
Yep Positive Bartonella No Rash Rianna
Posted by hcconn22 (Member # 5263) on :
No rash but very positive for bart. been treated for 2 months and feeling better already. fatigue and mental were primary symptoms.
Posted by Cass A (Member # 11134) on :
No rash (except the one when I got the tick bite) and positive for Bart with Fry Labs blood smear.
Best,
Cass A
Posted by Nora DeBoard (Member # 15600) on :
No rash but I feel like mine is Bart. I have all the s & s of Bart. Although I am awaiting further testing.
Looking forward to getting SOME form of relief from all this crap for sure. As well as knowing it is NOT all in my head!
Posted by HopefulStill (Member # 15375) on :
Proudtoserve,
Thank you so much for serving our country!!!
I have baronella and no rash...feels like I have a sunburn...palms are hot...brain feels hot and inflamed...dianosed with lyme encephalitis. Brain does feel less heat since being on abx. I am taking 1500 mgs of flagyl and 50 mgs of azithromycin.
I am glad you asked this question. I wondered this myself.
Do you feel better with movement..but still get fatigued easily?
Take care,
Posted by proudtoserve (Member # 14811) on :
Hey Hopefulstill
YOu wrote: "Do you feel better with movement..but still get fatigued easily?"
Ididnt really have a problem with Movement. My biggest problem was the Fatigue and weakness. To the point that holding down the brake peddle at a stop light would require using both legs.
One leg would get shakey and too weak to hold the brake that long.
I still dont feel any better yet, I have only been on Rifampin for a month now. Hope is comming.
N0o one knows anything new about the CD57 number?
Thanks all for replies- interesting to see the "normal" bart rash is not soo normal.
Proud to serve
Posted by Tincup (Member # 5829) on :
Before you say no rashes... and "for sure"....
Look at this link. I saw lots of skin manifestations that I wouldn't have thought were bartonella... but they were.
you can add me on to the the positive for bart (hens and quintana) and no rash.
My son has not tested positive for bart yet, but responds best to meds that address bart/and has sx of bart, but no rash.
kp
Posted by HopefulStill (Member # 15375) on :
Proud to Serve,
I have Lyme/Bart and have been taking 1500 mgs of Flagyl and 50 mgs of Azithromycin daily.
I started this on May 2nd. I have already seen some improvement.
I have Lyme ecephalylis and the hot/inflamed filling in my brain is better. I was falling frequently daily and haven't fallen in about 2 weeks. I was feeling air hunger and would get breathless very easily this has improved.
It is so important to be on the correct medication. I feel my doctor hit a homerun.
I have had Lyme for 2 years and just got diagnosed a little more than a month ago.
I went into denial thinking I was misdiagnosed because a doctors suggested I had MS, early Lupus, etc. I myself thought I had Lupus because I matche almost all the symptoms.
As I am seeing some improvements, I know that I was diagnosed correctly. Also the herxing proves to me that I have lyme.
I just wanted to let you know what medications are helping me since we share the same diagnosis.
Take care,
Posted by proudmom (Member # 15532) on :
Lyme CD57 Test THE CD-57 Striker Panel Test Our ability to measure CD-57 counts represents a breakthrough in Chronic Lyme Disease treatment.
It can be used to help determine how active the infection is, how well the treatment is working, and whether, after treatment ends, a relapse is likely to occur!
This is how it works: Chronic Lyme infections are known to suppress the immune system. The Lyme spirochete can affect all major cell types of the immune system, but it most clearly can impact a specific subset of the natural killer cells.
This is called the CD-57 subset. Just as in HIV infection, which suppresses T-cell counts, Lyme suppresses Natural killer cell count such as CD57. As in HIV infection, where abnormally low T-cell counts are routinely used as a marker of how active the infection is, in Lyme we can use the CD-57 count to indicate how active the Lyme infection is.
When Lyme is active, the CD-57 count is suppressed. We currently are having our tests run by LabCorp because published research on this test was based on their methods. At this lab, the expected range for the CD 57 count is above 60.
However, in the chronic Lyme patient, CD-57 counts are usually well below 60 and may be at risk with levels of 60-100.
This test can be run at the start of therapy, then every several months to document the effectiveness of treatment. One hopes to see a stable number or a rising trend over time.
When antibiotic therapy is finally at an end, if the CD-57 count is not above 60, then a Lyme relapse is more likely to occur.
Test interpretation: Low CD57 occurs in chronic Lyme or when the disease has been active for over 1 year. A review of the affects of other infections, only Lyme spirochetes lowers the CD57. Following is the criteria established by research.
Test interpretation: Low CD57 occurs in chronic Lyme or when the disease has been active for over 1 year. The count reflects the degree of infection. It is not a diagnostic test but is used as a marker for Lyme being active. Test done by LabCorp.
>200 is normal < 20 severe illness 0-60 is seen in chronic Lyme disease > 60 Lyme activity indicates improvement
![[Smile]](smile.gif)
![[bonk]](graemlins/bonk.gif)
![[Big Grin]](biggrin.gif)
![[kiss]](graemlins/kissing.gif)